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Haning Out With Friends.
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8 posts in this topic

i was recently diagnosed with celiacs and it is very hard to hang out with friends or even my boyfriend at food places cause they dont know what i can or cant eat and then seeing them eat the things i cant in a way makes me mad. anyone else have this problem?

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I think if you explain to your friends exactly what your diet means, they should be a lot more accepting. If you're hanging out a restaurants, find out if they have a gluten free menu (most do) or at least other options for you. If you're at someone's house, you could always ask your friend or their parent if they have anything like gluten-free chips. There's always the option of bringing your own food.

In the end, if they're not understanding, maybe they're not worthwhile friends.

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In my experience most restaurants do not have a gluten free menu and most of the ones who say they do, really don't (they use the same fryers, ovens, work spaces, etc.).

I really only trust Chipotle (everything except their tortillas are gluten free)and P.F. Chang's (they have a separate kitchen and large gluten free menu).

When I hang out with friends I just eat beforehand and get a drink at the restaurant. It sucks, but it gets easier with time.

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I absolutely have this problem! Although it doesn't exactly make me mad, it makes me feel sad. Why can't my body just process normal food like normal people? Why does EVERYTHING have gluten in it? And how come NO ONE knows what Celiac is???

The best thing to do is just focus on what you can eat. I'm sure almost every restaurant will have a salad or a steak or an option that's natually gluten-free.

You may want to explain your condition to your friends... in my experience, they usually give me a lot of sympathy and they like to ask me a lot of questions about it. I actually appreciate their interest, rather than them just blowing it off like it's no big deal.

Good luck to you and know that you are not alone!

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I understand and I know what you are feeling. I have found I eat out alot less now. At first I was hesitant to say anything to any of my friends but once I did, they started asking me questions and I found they were amazingly supportive. I have certain restuarants that I know I can go and eat something. New places I am always cautious. Going to otehr people's houses I always wonder if there will be anything I can eat. I ahve gotten used to eating less when I am out and in some cases where we had nothing but fast food all around us, I was the only one not eating, but I knew I would just get soemthing later. It stinks sometimes purely from a convenience stand point but really I have never felt better in my life and I know that as soon as I get a crumb I would be sick all over again and that keeps me very aware of why I am gluten-free!

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The emotional aspect of seeing other people have things you can't have does get easier over time. The more you view it as poison, the less you'll want it, then you'll end up with the problem I have... thinking everyone would be better off without it!

As for eating out, I have a really hard time trusting most restaurants, and I live in Portland, OR, where "gluten-free" restaurants are a dime a dozen! Many of them now just say "gluten-free friendly" or have warnings and describe their practices, because they've learned that cross-contamination is a hard thing to deal with. There are a couple restaurants that are completely gluten-free. You might look into that in your area and see if you can find a new favorite spot.

Another way to get safer food at a place is to go to the same restaurant a lot and talk to the regular staff about how to keep you safe. You can work with them to come up with a safe dish or two that you can order time and again. They'll be happy to have a regular customer who tips well and brings friends!

My preference is to find other things to do with friends. When I do go to a restaurant I usually eat first and just order a drink. I always take my own food to friend's houses or if I'm going to be out and about for long.

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I know! I just recently turned 19 and its really hard to go out to bars or find somewhere to eat! I find the bar to be pretty hard cause people usually get food while they drink as well right, and bars neeevvvveeeerrrrrr have anything gluten free! And my boyfriend always gets food when we go out drinking and it sucks cause I just have to sit there and watch him eat :(

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
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