Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hashimotos- "normal" Levels But Major Symptoms?
0

7 posts in this topic

Does anybody here have hashimotos with "normal" levels(other than positive antibodies) and still have major symptoms. I was diagnosed with hashimotos and went gluten free last may. I thought it had to be celiac disease because my thyroid levels were "normal" and I was having crazy symptoms. I have been gluten free for 8 months and have definately gotten better but Im still not close to 100%. Its mostly mental issues(brain fog/etc.) that doesnt seem to go away. My question is could this be because I need thyroid medication? I have heard that with hashimotos you want your levels to be in the top 75% and my FT3/4 were a bit low. Also my TSH was like 2.2 last I checked and I heard you want it to be around 1. Could this be causing these symptoms? I dont feel normal at all and it seems crazy that low normal levels could be causing this!! Anybody have any insight or suggestions?

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you read the book Stop The Thyroid Madness you will have a better understanding of what you need to do. They also have an excellent website and facebook group. You can also read the books by Dr. Shames or Dr. Langer.

If you have antibodies, you have Hashimoto's. Your TSH needs to be around 1.0 to better supress the antibodies.

Are you on Synthroid or only a T4 medication? If so, that may be part of your problem. Look into natural desicated thyroid (NP-Thyorid or Naturthroid). It may be better for you. Or, take additional T3 (but make sure your doctor understands how to administer it properly....time release T3 is usually not a good choice and many doctors like it, but it drives patients crazy).

0

Share this post


Link to post
Share on other sites

You just described me to a T. Problem is, My Dr. had my TSH totally suppressed with T3/T4 and it didn't help. An endo just put me on Armour but I'm not very hopeful.

I think my issue might be subclinical adrenal autoimmunity and slightly low cortisol. I keep reading lists of so-called adrenal fatigue symptoms and they fit me. It turns out that adrenal autoimmunity is more likely with Hashimoto's but subclinical adrenal problems are sort of "off the radar" for mainstream doctors. They are aware of Addison's, but you only get Addison's disease when your adrenals are 90% destroyed. What happens before that??? Do we get dizzy and generally feel like crap???

0

Share this post


Link to post
Share on other sites

Does anybody here have hashimotos with "normal" levels(other than positive antibodies) and still have major symptoms. I was diagnosed with hashimotos and went gluten free last may. I thought it had to be celiac disease because my thyroid levels were "normal" and I was having crazy symptoms. I have been gluten free for 8 months and have definately gotten better but Im still not close to 100%. Its mostly mental issues(brain fog/etc.) that doesnt seem to go away. My question is could this be because I need thyroid medication? I have heard that with hashimotos you want your levels to be in the top 75% and my FT3/4 were a bit low. Also my TSH was like 2.2 last I checked and I heard you want it to be around 1. Could this be causing these symptoms? I dont feel normal at all and it seems crazy that low normal levels could be causing this!! Anybody have any insight or suggestions?

I was just going to post about the exact same issues. I am fatigued and big time brain fog. I can't even remember what I am trying to say mid-sentence. I am completely off gluten and my stomach pains did go away (neg blood test for celiacs). I am seeing my endo this Friday, and was looking for advice on what to say. My TSH levels are about the same as yours (2.3). I do not feel normal either. My thyroid is enlarged with a goiter. I am gaining weight despite exercising 5 times a week (running and weights). I am hoping my endo goes by how I feel and not just bloodwork.

0

Share this post


Link to post
Share on other sites

You just described me to a T. Problem is, My Dr. had my TSH totally suppressed with T3/T4 and it didn't help. An endo just put me on Armour but I'm not very hopeful.

I think my issue might be subclinical adrenal autoimmunity and slightly low cortisol. I keep reading lists of so-called adrenal fatigue symptoms and they fit me. It turns out that adrenal autoimmunity is more likely with Hashimoto's but subclinical adrenal problems are sort of "off the radar" for mainstream doctors. They are aware of Addison's, but you only get Addison's disease when your adrenals are 90% destroyed. What happens before that??? Do we get dizzy and generally feel like crap???

I have never heard of Addison's, will look it up. I am hoping my endo will put me on armour as well. What are some ways to go about discussing this with my endo (without sounding like I have no idea what I am talking about)?

0

Share this post


Link to post
Share on other sites




I have never heard of Addison's, will look it up. I am hoping my endo will put me on armour as well. What are some ways to go about discussing this with my endo (without sounding like I have no idea what I am talking about)?

I don't know that you can. :( Mine is testing 8am serum cortisol, which is a near-useless measurement, just to rule out that something isn't horribly wrong with my adrenals. I will be genuinely surprised if my cortisol is anything other than low-normal because I don't have enough adrenal symptoms, only the dizziness.

I just got the Stop the Thyroid Madness book and it has a section on adrenals that you might find helpful. You know about http://www.stopthethyroidmadness.com/ right?

My endo would really like me to see someone who knows autoimmunity, but he says all the rheumatologists at the clinic where he works are only interested in people with joint pain. (Not sure why he's clueless about autoimmunity since Addison's, Hashimoto's, Graves', and Type 1 diabetes are all endocrine diseases.) We talked about the possibility of a neurologist but neither of us think a neurologist would see a deficit in cognitive function without any sort of baseline because I generally test high on that sort of thing.

0

Share this post


Link to post
Share on other sites

I don't know that you can. :( Mine is testing 8am serum cortisol, which is a near-useless measurement, just to rule out that something isn't horribly wrong with my adrenals. I will be genuinely surprised if my cortisol is anything other than low-normal because I don't have enough adrenal symptoms, only the dizziness.

I just got the Stop the Thyroid Madness book and it has a section on adrenals that you might find helpful. You know about http://www.stopthethyroidmadness.com/ right?

My endo would really like me to see someone who knows autoimmunity, but he says all the rheumatologists at the clinic where he works are only interested in people with joint pain. (Not sure why he's clueless about autoimmunity since Addison's, Hashimoto's, Graves', and Type 1 diabetes are all endocrine diseases.) We talked about the possibility of a neurologist but neither of us think a neurologist would see a deficit in cognitive function without any sort of baseline because I generally test high on that sort of thing.

I found an endocrinologist with really good reviews, who prescribes armour thyroid based on symptoms and labs (not just labs). I am in the process of obtaining all my medical records to bring to that appt. on Monday. I am hoping that helps! Thanks for the link to stop the madness-It has been very helpful!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,438
  • Topics

  • Posts

    • Thank you cyclinglady! We'll just keep pushing forward and we'll get things figured out one way or another. You have been most helpful and informative and given me some great resources and things to consider. I really appreciate it! I definitely feel better as I've felt like a crazy mom lately thinking through the test results and everything. Even if it turns out to not be celiac or gluten related, at least I can say we did our due diligence and looked under every rock to find the source of his troubles. Thanks again!  Take care! 
    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,390
    • Most Online
      1,763

    Newest Member
    tomj777
    Joined