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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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My husband and I first heard of celiac disease on Monday and yesterday we got our confirmation (from a blood test) that our daughter has celiac disease. Actually, I am grateful to actually have an explanation for why our daughter is so tiny and not growing. I am quite overwhelmed with how to cook for my family now. Does anyone know of a good cookbook or website with recipes? Also, is there a way of telling if food has gluten by reading the ingredients and package labels? I would appreciate any information you can pass along.

Maya

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You need to read labels every time, without fail. If you see wheat, barley, or rye, do not give it to her. Anything that says "wheat allergens" is a no-no. Of course, you could always just give her meat, veggies, and fruit, with no processed foods or grains. I like Celiac.com for my information, and the Gluten Free Mall for foods. Just do not forget to ALWAYS read the label, as ingredients change. And come back with questions, updates, or just to talk!

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Hi Maya, and welcome.

I am pretty new to this also but am getting the hang of cooking for my family without gluten. Actually, I think the breakfast-lunch meal is harder to figure out, but dinners have been pretty good (actually, my husband says we've never eaten better!) and both my daughters, who are big pasta eaters, aren't missing it too much. You can get a couple of decent regular cookbooks that have good recipes that don't feature a lot of additives, breadcrumbs, flour, or pasta . Here are 4 meals I made last week, and no one even noticed they were "gluten-free," including the other family we had over.

Pot roast with gravy (I just used cornstarch instead of flour to thicken and some red wine), mashed potatoes, and salad.

Chicken cutlets with cornflake crumb coating (use organic cornflakes from a health food store, not a commercial brand like Kellogg's, which uses gluten ingredients, and always check the label -- I just put them in a large baggie and ground them up with a rolling pin, then dipped the cutlets in egg and then crumbs), sweet potatoes, spinach salad with tomatoes and mushrooms.

Grilled pork chops with vinegar glaze, twice-baked potatoes, green beans with lemon juice.

Roast chicken with garlic and rosemary, rice cooked in gluten-free chicken broth, stir-fried zucchini and tomatoes.

If your daughter is young, some of this food may not appeal to her, but by experimenting you'll find lots of things she'll like, and you can cook things more plainly as well.

Also, there are two really good gluten-free breads that you can order through www.kinnikinnick.com -- I was very surprised and pleased to find that they are a decent substitute (I just don't eat them that often because they're expensive). They have an excellent pancake and waffle mix as well.

Two other good sites for products are www.gluten free.com and www.glutenfreemall.com.

You can get some gluten-free cookbooks by Bette Hagman and I think even Amazon and Barnes & Noble carry them now. Keep reading the messages posted on this site, they've been very helpful to me. The beginning is hard, but you'll figure it out and your daughter will recover, which is the most important thing.

Good luck.

Ellen

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A book you might find helpful is Kids with celiac disease by Dana Korn you should be able to find it at Borders

There are several gluten free foods out there.. cereals and such most health food stores carry them, and alot of regular supermarket stores as well. Our local Acme just started carrying Amy's gluten free pizza!!

So consult with the manager of you local grocery store on that.

Here is a link to a list of gluten free foods found in regular markets.. but as always consult with that safe/forbidden ingrediant list..

http://homepage.mac.com/sholland/celiac/GFfoodlist903.pdf

A note Kellogs Corn Pops are no longer gluten free they started adding wheat in them in January.(they might be on that list)

Hope this helps!

Denise

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Thank you so much for all the replies. It's nice to know that I am not alone in this! I think I am starting to get used to all this, but I am so nervous all the time about what to feed Kayla, what will we do when she goes to daycare, etc.

A couple questions I still have are:

1. Do you buy the $5 bread or do you bake bread yourselves?

2. How diligent do I have to be about contamination with wheat?

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For those of you in Michigan I just found that Meijers carries BOB Mill gluten-free Bread mix. And it was a lot cheaper then at the health food store. I do know my sons doctor was insistent that I feed my son from brand new jars of everything from butter to jelly and anything in between to avoid any wheat contamination. I am also new to this whole diet but after a few tears in the middle of the grocery store I think I can do this. By the was does anyone know about red 40 and weather those with celiac can have it the reason I am asking is Trix cereal has no wheat and no gluten in it.

Thanks

Heather

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The big problem with most cereals from the large companies, is not necessarily gluten, but cross contamination from their manufacturing proceedures. Many times they do not clean the belts and other equipment between batches, so you have major contamination. Personally I really like Corn Crunch-Ems and Rice Crunch-Ems with a little sliced fruit and I've never had a problem with them. Shirley

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    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
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      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
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