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Did I Get My Celiac From One Of My Parents
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Hello all

I found out that i have celiac Disease and i have been trying so hard to stay gluten-free but its so hard. What i'm trying to find out is; Did i get this from one of my Parents . And also were can i look for a list of food that are allowed to eat

thank you and hope someone can help me out :)

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Hello all

I found out that i have celiac Disease and i have been trying so hard to stay gluten-free but its so hard. What i'm trying to find out is; Did i get this from one of my Parents . And also were can i look for a list of food that are allowed to eat

thank you and hope someone can help me out  :)

<{POST_SNAPBACK}>

Yes, you got the gene from one or both.

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Yes, it is genetic so you got the gene from one or both parents. That does not mean they have it though. They may have the gene but not have had the celiac triggered. They should be tested though.

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Yes, it is genetic so you got the gene from one or both parents. That does not mean they have it though. They may have the gene but not have had the celiac triggered. They should be tested though.

<{POST_SNAPBACK}>

Thank you very much for the info

I was also wonder what age i should get my kids tested at ?

and i just found out that i'm 10 weeks pregnant should i been doing something different in this pregnancy, i was not gluten-free with the my 2 boys but didn't know i was celiac disease at the time ?

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Thank you very much for the info

I was also wonder what age i should get my kids tested at ?

and i just found out that i'm 10 weeks  pregnant should i been doing something different in this pregnancy, i was not gluten-free with the my 2 boys but didn't know i was celiac disease at the time ?

<{POST_SNAPBACK}>

Hi,

Just going gluten-free is all you need to do for your pregnancy. Testing seems to be most accurate in the over age 3 group, less accurate between 2-3 yrs and even less accurate under age 2. So if your 2 boys are over 3, I would test them. If under 3, judge for yourself whether you see symptoms that warrant it.

Merika

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    • Just wanted to add, that when my friends or family want to eat at a restaurant that I am not sure about, I bring some snacks and then order a drink.  It is all about the company, not the food.  
    • Based on the information you have posted today, the most likely probable reason for your being ill is that you are getting glutened!  Here is a biggie....does your hubby brush his teeth prior to kissing you?  Seriously, it can happen, but going out to eat a lot.....that can be just as bad!  We eat at restaurants that have been approved by celiacs (websites).  Just because that offer a gluten free menu does not mean that they understand about cross contamination.  
    • I got glutened last summer.  Heck, I do not even know what glutened me, but I suspect two products that my gluten-free hubby never consumed (he is my canary).  My symptoms were so different from when I was diagnosed (just had anemia then).  My GI thought I had SIBO or something else, but I asked for a celiac panel.  Yep, I had been Glutened!  Took me three months to recover and another three to regain lost weight.  Yeah, I picked up another health issue on the way (hives, rashes, swelling, itching, ab pain, vomiting, and fainting.)   I did not eat out for one year!  Only this summer, I did.  Was it worth the risk?  You bet!  Three weeks in Europe.  Fortunately,  7 days was on a cruise and Celebrity did a great job.  Italy was so celiac-savvy and I did my research and found places recommended by other celiacs in Spain, France and Poland.  If not, we bought cold food at the market and had a picnic.   I am home.  Will I eat out?  Probably not.  I have a busy Fall ahead of me (High School....football, marching band, volunteer positions, house projects, and work).  I can not afford to be sick.   Ah, I will eat out this Thanksgiving break.  My favorite restaurant is 100% gluten free in Tucson, AZ.   Maybe I will discover another gluten-free restaurant closer to home! 
    • I do est out occasionally - but not indiscriminately.  I am careful to choose places that under stand gluten free.  And places that the food is naturally gluten-free, helps, too.  Celiacs can't just eat something that should be gluten-free and hope it is.  We have to use some common sense and ask questions.  
    • You are right that the next step is an endoscopy, which still is the "gold standard" in diagnosing celiac disease.   However, for various reasons the endoscopy is not done because financial contraints  or long wait times (up to a year!), or too ill to proceed.   You have two positives.  You only need one positive to move forward.    The TTg tests  do not need to be positive for a diagnosis (which requires a positive on an antibodies test which you had and an endoscopy).  My TTg tests were negative and I only had a positive on the DGP IGA, yet biopsies revealed a Marsh Stage IIIB (moderate to severe damage. http://www.cureceliacdisease.org/screening/ Unless your PCP is a celiac expert (unlikely), I would insist on a GI consult.   Please find one who is celiac-savvy.   keep eating gluten daily until all testing is complete (biopsies done).  You never know if lab results are going to get lost.  Besides any celiac testing requires the patient to be on a gluten diet.  In the meantime, keep on researching.  Only YOU can be your best health advocate!  
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