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Going To Start Trying Soon!
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Hi Everyone. I'm so happy I found this forum! :)

I'm 27 and have been married to my husband for 8 months (we've been together for 5 years though). I was diagnosed with Celiac 4 months after our wedding (in September). I'm so happy I finally discovered why I was withering away and always in the bathroom... but I'm definitely still recovering. I stopped taking birth control back in July and finally got my period in September (first 'real' one since going off birth control, and exactly two weeks after going gluten free). My husband and I really want to start trying in the next few months to have a baby, but I'm still terrified that I'm not completely healed. My OBGYN said everything looks good with my reproductive organs, but I want to make sure my vitamin levels and antibody levels are in check. I'm seeing my primary doctor next week (although he specializes in GI he knows little about celiac unfortunately). I think I've been getting CC'ed a lot lately so I'm a little discouraged about that. I actually just read in a previous forum the prenatal vitamins I've been taking (Rainbow Light Prenatal One) contain trace amounts of gluten, although labeled 'gluten-free'! Maybe that's why I've still been getting sick? Crazy. Anyways, I just wanted to reach out and see if anyone had any tips to prepare my body for a (potential) pregnancy. Vitamins you recommend? Best foods to eat? Tips for fertility? I'm open to anything! :P

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Congratulations on your marriage and your diagnosis!

As far as CC goes, keep reading, especially this forum! I think it takes a few months to get everything lined out. Make sure you've replaced your cutting boards, rolling pins, toaster, etc. and that your kitchen has been cleaned with respect to places flour may have settled over the years. Consider everything guilty until proven innocent with respect to gluten content. I would say to only use products you're sure of, especially when pregnant or trying to become so, and don't forget about skin care products (shampoos, lotions, makeup, etc.) If it is on your skin, it can get into your mouth. Also, don't lick envelopes! :-)

Keep in mind that you might have another sensitivity. I had to eliminate dairy also. Many others have had to give up soy and/or other foods. Keeping a journal of everything you eat/drink might help you pinpoint something.

I take New Chapter vitamins (Perfect Prenatal, Wholemega Prenatal, and Bone Strength) and Nature Made vitamin D3. These are all gluten free, but they DO contain soy.

Good luck and keep us posted!

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Also, don't lick envelopes!

While there are lots of things to worry about, the envelope story is a celiac urban myth. In all the time I've been a celiac, nobody has ever found an envelope with gluten in it.

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While there are lots of things to worry about, the envelope story is a celiac urban myth. In all the time I've been a celiac, nobody has ever found an envelope with gluten in it.

Wow, thanks, Peter! We can always use one less thing to worry about! :)

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Thanks for the tips! This week has been rough (either CC'ed or developing other food sensitivities).. so I definitely think we need to wait until I can get it under control. Wanting a baby is pretty good motivation though to be extra careful and take good care of yourself! I'm going back to the basics and slowly incorporating different foods/products back in to see what the issue is. I will keep everyone posted. =)

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You and I are in the same boat =) we are going to start trying...again in a couple months. Been gluten free since November and for the first time in 3 years I ovulated this months without meds so so far so good.

Good luck!!!!

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That's great upwith! Keep me posted! I think we're going to start trying around May, depending on if I can get my body healthy again. Fingers crossed. :)

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We didn't prevent this month lol but will be trying another cycle of fertility meds in march? My endocrinologist still insists I have pcos and that celiacs is not the problem. I think he's miss informed but I'm fine doing the meds since they cant really hurt and if it improves our chance more than yay.

Fingers crossed and baby dust to you!

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I actually just read in a previous forum the prenatal vitamins I've been taking (Rainbow Light Prenatal One) contain trace amounts of gluten, although labeled 'gluten-free'! Maybe that's why I've still been getting sick? Crazy. Anyways, I just wanted to reach out and see if anyone had any tips to prepare my body for a (potential) pregnancy. Vitamins you recommend? Best foods to eat? Tips for fertility? I'm open to anything! :P

Where did you read that? Many of the women on here have/are taking the Rainbow Light successfully. I am fairly sensetive and have been taking them without any gluten reaction.

As for tips, just eat a healthy, well-rounded, gluten-free diet. Make your house gluten free as well. Chuck all potential CC out of your life. I went gluten free back in Sept. My husband and I made a nearly gluten free kitchen and I have been FANATIC about even the most minute crumbs (just ask him--I can drive him crazy with it at times). I was SO sick and NEVER want to go back to that! I had been off of bc for four months at that time, with still not having a period. One month gluten free, my period returned (coincedence, I think not!). My doctor warned me that I still would likely not be ovulating, but encouraged me to get some OTC OPK just so that we would have a fuller picture of not ovulating in order to move forward with (potential) fertility treatments and gave us six months TOPS to be pregnant before she wanted to pursue further avenues (I'm 35 and my husband is 40). Well, lo and behold, I WAS ovulating on that first cycle! Imagine my surprise when I saw that :) on my OPK one not-so-random morning (right on track for 'normal' time frame, when I was NEVER regular before). Second cycle I was pregnant and am now 10 weeks along as of today. And everyone keeps being shocked at how early the tadpole keeps hitting milestones. When we had our first ultrasound at 5 1/2 weeks, the U/S tech warned us not to get worried as it was likely way too early to really see much of anything. Well, we actually SAW the heartbeat that day. And at my second prenatal appointment this past week, as we were wrapping up, my doctor said, "We'll bring you back in two weeks to hear the heartbeat for the first time." To which my husband laughed and replied, "She's been doing that for weeks now at home." He had gotten me a home dopplar for Christmas and I'd been listening to the baby's heartbeat since seven weeks (almost unheard of to hear it that early). So the doctor pulled out her dopplar from her pocket and, to her surprise, immediately found a very strong heartbeat.

Anyway, good luck when you start trying! Just maintain a good gluten-free diet and you should be fine!

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That's great new jswog!! I too find it remarkable that my period returned after just two weeks of going gluten free. It's still a bit wacky though (about 37 days apart).. but hopefully I'll get more regular soon. I think I just need to put on a few more pounds perhaps.

I have become slightly fanatical as well about gluten. Two weeks ago I officially banned it completely from the house. I also cut out dairy and my morning coffee. I have definitely noticed a difference!

Regarding the Rainbow Light vitamins, it was posted by someone else in this forum. I have no concrete facts to back that up. I just bought some New Chapter Perfect Prenatal vitamins today so I'm crossing my fingers those sit well with me. B)

Congrats again & thanks for the tips!!

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Hi all. Beware - Rainbow Light Complete Prenatal vitamins are NOT totally gluten free. After being on the vitamins for only 4 days I began to react. I called them to ask if anyone else has complained to find out that there is gluten in them. The woman stated they are within the limits set by the FDA that allows up to 20 ppm. Therefore, they aren't wrong for labeling gluten free.

What a disappointment.

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I have had no issues with the Natures Bounty Prenatal tablets. They are labeled as having no: artificial flavor, preservatives, sugar, milk, lactose, soy, gluten, wheat, yeast, shellfish and sodium free. Not pregnant yet, but trying.

I also agree with others that say to throw away your non food items for gluten. I ended up having to throw out all my makeup and start over. Even my favorite Burt's beeswax Chapstick isn't safe. Same thing with my soap and shampoo. Who would have thought (vital wheat gluten) was a hair care product.

Dove soap, carmex have been good replacements for me. No sense in possibly compromising your kiddo.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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