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Possible Affects
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I was diagonosed with celiac disease since I was a child. For about a year I had eaten a bit of gluten to see the after affects of it for myself and to really understand my symptoms. Im wondering how much damage I could have possibly done for myself. Im starting to feel chest pains below my heart and im wondering if I have developed osteioporosis. Is that possible? Is my recovery time counted as a child and within months or an adult within years?

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Some of us get a pain just under our left ribcage, which I assume is the beginning of the small intestine where the lining can be damaged. I've always considered it to be an inflammatory response to eating gluten, since I get it within a short time after accidentally ingesting it. It usually goes away in a few weeks' time. As for recovery time, that varies with each person, but I would hope that you intend to return to a 100% gluten-free diet.

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It depends on how old you are and how much your body has reacted.

My son SHOULD have been diagnosed as a child but he was 16 before we figured it out.

He recovered in 6 months.

But we don't know about his insides...just that he felt way way better and could function normally again.

You wanted to do the test and you did it.

So there's no sense in worrying yourself to death about it now.

You could go to the Dr. and check your vitamin levels to see if you are deficient in anything.

You could request a bone scan to be sure your bones are in good shape.

They can do an EKG on your heart in 2 minutes to tell you if there is anything wrong with your heart.

Instead of worrying - just get a few tests done to see where you stand healthwise.

Could do a Celiac Panel again to see if you are making antibodies...and what the numbers are.

But if it is negative, don't assume you can eat gluten because you were diagnosed with it before.

The good news is that since you WERE diagnosed as a child, you have lived most of your life gluten free.

The very serious secondary diseases I think happen to those of us who went undiagnosed for all of our lives.

You could also get an endoscopy done and see what kind of damage you have.

If everything else is good, I would assume you would heal in a few months but it could take up to 2 years to fully recover depending on what damage you have.

You really should ask about vitamin levels though so you can start supplementing if you need to.

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I was diagnosed when I was 8 but only ever had mild reactions to wheat. By the time I was 12 I was completely off my previously strict diet. I am now 20 and have in recent months have had severe reactions like I'd never had previously. I'm yet to actually go get tests done to check the damage done to my body but trust me it is definitely better to stick to your diet. I'm feeling much better since I'm back on a very strict gluten-free diet again.

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    • Are you vegan or vegetarian?   I am concerned about your lack of protein and fats in your diet.  These diets can work when you are also gluten free, but as a celiac you can be malnourished.  It is hard to heal when you are slowly starving yourself.   No offense, but some newly diagnosed celiacs end up with food disorders.  Perhaps working with a dietician can help.   What actually are your blood glucose levels?  Did you know that just as Hashimoto's is common with celiacs, so is type 1 diabetes?   Ask your doctor for antibodies testing for Type 1 diabetes (TD1), if your blood glucose levels are not in the normal  range.  You can develop TD1 (LADA) at anytime.   For adults there is a "honeymoon" period which can last for up to five years.  Be on the watch for other AI issues (besides TD1) too.   It is so important to monitor your health after a celiac disease diagnosis!  
    • He was not IGA deficient.  I'm still hoping we can convince the base GI to approve his referral.   Thanks for that thread about TTG Igg.  That's exactly what I was wondering. 
    • Star Anise Foods  rice paper and spring rolls are gluten free they have brown and white rice versions. I have not had issues with these in the past when I used to use them. Should be able to find them on amazon.
    • Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling.  Nerve damage is often associated with diabetes.  You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs.  Carbs and meats have a different affect on blood glucose.  Carbs tend to spike blood glucose while meats even it out. There are a lot of negative changes that can happen with high blood glucose.  It is wise to try and get it under control ASAP.  My brother has lost most of his vision in one eye now from high blood glucose.  And he has the tingling symptoms you described.  The tingling can progress to pain in time.  My brother chose to ignore his diabetes and is paying the price for it.  He is doing better at it now but the damage is done. Yes, B-12 deficiency can cause those kind of nerve symptoms.  But if you have high blood sugar that is the more common cause.   Diabetes is not a rare condition.
    • I have been living in Ho Chi Minh City, Vietnam, for two years, and finding gluten-free food is proving more difficult than I thought, even if I am cooking my own food. Wheat flour, called "bot mi" in Vietnamese, seems to creep into a lot of stuff nowadays. What's more, manufacturers do not feel it is important to list bot mi in the ingredients on a food's packaging unless it is a principle ingredient in the food. In other words, soy sauces or wraps with just a tiny bit of wheat flour added to add a touch of thickness or pliability are not guaranteed to list the ingredient. For some genetic reason, Vietnamese people are not nearly as susceptible to food allergies as Westerners - it probably has something to do with exposure to less hygenic foodstuffs having built up an immunity over hundreds of years - so it is not really considered important to split hairs in that department over here. Anyway, I love rice paper but have often gotten glutened by it when I have it. Can any celiac who could tell if a product had gluten by more than just the ingredient list on the back let me know a definitively gluten-free rice paper brand? I know that very few rice paper brands actually list wheat flour in the ingredients, but I don't 100% trust the ingredients list for products made by Vietnamese companies. Call me paranoid. By the way, I have a neurological condition that irreversably breaks down my immune system when I ingest gluten, so I don't want to experiment with trial by fire here.
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