Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Thyroid, B12, Celiac Connection...i Have A Hunch...
0

4 posts in this topic

So, my celiac son, who is 8, had his micronutrient levels tested in August, everything was ok except ferritin I was told. He continued to complain constantly about pain and numbness in his feet, was having panic attacks regularly, and suffered from severe depression and anxiety. He is also very hyperactive, complains about his eyes hurting and stinging all the time and is CONSTANTLY hungry. He has been gluten free for 10 months. He was put on Zoloft and that eased the depression and anxiety a little bit, but caused new symptoms. His doctor (who is fantastic) really seemed to think it could be a B vitamin issue, even though the tests indicated otherwise. I started him on a liquid B supplement and within a few days noticed huge improvements. Now, a month later, his depression has gone from an 8 to a 2, no panic attacks in a month, very little anxiety, and he doesn't complain about his feet and legs hurting at all. So we are definitely on to something here!

He still complains about his eyes constantly, also that his heart is pounding. Hyperactivity is the same, and he is still always hungry. I have been doing some research on thyroid issues because of my own symptoms, and noticed that alot of his issues seem to match up with hyperthyroidism. I also found ONE mention of hyperthyroidism affecting B12 test results (but it didnt say HOW it effects them- falsely high or low? It wasn't very clear.) Haven't been able to find any other mention of this- does anyone know for sure?

Anyway, due to the high incidence of thyroid issues in Celiac patients, I am going to get his thyroid tested. I know I need to request T4 and T3 levels, not just TSH- but am unsure about the "antibodies" tests I should ask for to rule out an autoimmune thyroid issue. Can anyone tell me?

Funny how the longer you deal with Celiac, the more pieces of the puzzle that seem to fall into place. I have a pretty strong feeling that there is a thyroid issue at work here as well- not that I WANT that, but KNOWING what is wrong at least gives me the power to try and fix it!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I would suggest free T4 and total T4, free T3 and total T3, thyroid peroxidase (TPO) antibodies test for sure. Perhaps TSH receptor antibody as well. Your doctor might also consider a thyroid ultrasound since this can give a good visual of what is going on in there... Best of luck...

0

Share this post


Link to post
Share on other sites

The test for graves is called TSI, for thyroid stimulating immunoglobulin. I just had it done (negative, whew). He probably needs TPO and anti-thyroglobulin as well to rule out Hashimoto's.

0

Share this post


Link to post
Share on other sites

Actually got in to see doc today, he was so supportive and agreed it was a valid possibility. So nice to not be treated like an over-reacting mother! Anyway, he did TSH, free T3 and free T4, TPO, and Tpag- he said total T3 and 4 would be redundant and that they don't use those anymore. I don't know if he is right or not, but he was being pretty cooperative, so I didn't argue! He also did another celiac panel to re-check antibodies, total iron studies and B12. he said thyroid issues could cause an inaccurate B12 reading. My insurance company will probably kick and scream about all those tests, but if the other docs he saw would have been on the ball, he would have had them done before anyway! I will post an update when I get the results. Thanks for your help!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,098
    • Total Posts
      920,345
  • Topics

  • Posts

    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
    • Well, a different doc is checking for wheat allergy not the one who ran the celiac test. Interesting about the lyme and ttg iga, I didn't know that.  So much to muddy the waters with her.  She's been treated for lyme for many years but they keep coming back with other tick borne illnesses that may be infecting her.  But since  the testing is so poor and nothing is solid in her testing, I am needing to look at every avenue I can to try to help her.  It's just not adding up. As a young child she had sensory processing disorder, than PANDAS (reaction to strep), then Lyme.  Was gluten free for many years until we added it back in about 4 years ago.  Then 3 months ago started failing fast with psych symptoms of dissociation, anxiety, fears, unwanted laughter, joint pain, random pain, feeling ill after every meal, severe pain after wheat and dairy combo followed by diarrhea.  I hope we get a good GI who will at the very least be willing to rule out celiac as we are running out of ideas.   I hope after all her testing she will be willing to go gluten-free again regardless of what we find, to see if it will help her.                 
    • Great point.  EoE!   http://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,131
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined