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Lower Back Pain
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i have been having excruciating lower back pain ever since i have been 8 or 9. it has been unexplained and jst ignored by my docs and now that i am slightly suspecting celiac i was wondering if it could be related.

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i have been having excruciating lower back pain ever since i have been 8 or 9.  it has been unexplained and jst ignored by my docs and now that i am slightly suspecting celiac i was wondering if it could be related.

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do you know if you have food intolerances such as wheat, rye, baley and oats which is celiacs or to presevatives theses are the top reasons i get lower back pain, going gluten free has helped me tremendously and getting rid of all preservatives especially bht, sodiun nitrite and sodium nitrate, edta, monosodium glutemate.

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Hi Maybird85,

I started having lower back pain when I was around 12 or 13. It got worse and worse as the years went on untill it was excruciating every day. After discovering I was a celiac, I learned that because of malabsorbtion of calcium, that I had a condition called osteomalacia (I think that's how it's spelled). It is basically microscopic malformation of the bones. Even tiny fractuers. It's like osteoperosis. Good news...After going gluten-free it started to get better. :) I have been gluten-free for almost 2 years now, and I can say that my back pain is basically gone. :D I still will feel it if I over excersise, or do too much work, but I think a regular person would feel that too.

I would recommend that you take a good multi vitamin that obviously includes calcium. Up your intake of dairy (unless you are lactose intlerant) eat calcium rich foods like, spinach and broccoli. Also start doing resistance escersises. Lift weights ect. It will hurt at first but will aid in the healing and bone growth.

Good luck, Wendy

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I have just recently been diagnosed with Celiac and along with the typical symptoms, I have had terrible back pain also. I have never had back pain until the Celiac symptoms started. My doctor has keeps telling me that I must have hurt my back doing something. However, I keep telling him that I think it is related to the Celiac because it started at the exact same time the Celiac symptoms started. Sorry to hear you have back pain also, but I'm glad to finally hear that I am not the only one with something like this. The usual stomach problems have imroved since going gluten free, but I hope the back problems will start to improve soon. I'll post back here if I learn anything more. Good luck.

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while there may be a correlation, there isn't a lot of study on the link. besides investigating that link, if you haven't been seen specifically by an orthopaedist, and been evaluated by at least two physical therapists, I would encourage you to do so. I have issues with my sacroilliac joint that by orthopaedist, good doctor though he is, didn't quite pick up on, but the physical therapist he sent me to did. (it's a subtle thing, where one joint "sticks" a bit, causing the movement in the other joint (which is slight even when it works properly) to be strained. definitely not something that would be picked up on by a standard exam or an x-ray.) physical therapists are primarily there to help us *fix* the problems that doctors find, but they've got a wide range of functional experience with the bodies of many people.

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I used to have a chronic, dull pain in my lower back. I don't know if it is celiac related because I used to be very overwight and that was celiac related. Since I went gluten-free and lost the weight the back pain is gone. Seems to me there were some other posts asking the same question so there could be some link.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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