Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New To Celiac, Now Pregnant. Overwhelmed!
0

5 posts in this topic

As some of you may know, I found out that I had celiac disease about a month ago. I had a positive tTg test which was followed by a positive celiac panel (I don't know the specific test names). Funny thing is I had a upper endoscopy scheduled for last friday, I had to cancel last min due to scheduling conflicts. This stressed me out because I wanted to start the gluten free diet but the Dr wanted a formal diagnosis. I rescheduled for this coming friday, but found out yesterday that I was pregnant. I also just found out a few months ago that I have antiphospholipid antibody syndrome. Now I am panicking because I will now be switching to a gluten free diet and dealing with the first months of pregnancy at the same time. I also have a almost 3 year old and almost 1 year old son. I feel overwhelmed and scared. I guess I am just looking for anyone who has been through this!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I feel for you, although I haven't been through it myself. There is a silver lining here though, since so many women with celiac/gluten intolerance have issues with getting pregnant.

That said, going gluten-free is challenging. Try to get as much support as you can within your healthcare system. You may be able to see a nutritionist, for example. Especially when you're pregnant, you'll need to work extra hard to make sure you get enough nutrition in your diet. Luckily, a gluten-free diet can and should include fresh fruits, veggies, and meats, which are the best things we can eat for ourselves as humans anyway. If possible, you may even want to see a therapist in the short term if you feel very overwhelmed. Having two young kids and being pregnant is already pretty intense, and now you're dealing with significant health issues too.

Please join us in the cooking/baking section, if you're inclined. I've learned a lot from other folks on the board about putting together a gluten-free diet, so that at this point it actually feels easy and natural. And I do think we eat better than most Americans. So our kids will all grow up healthy and with healthier eating habits. I read recently that there's evidence now that babies actually pick up taste sensitivities while in the womb and breast feeding. If you're eating lots of good whole foods, your baby will end up liking good, nutritious foods. That's definitely a good thing.

Congrats on your pregnancy!

1

Share this post


Link to post
Share on other sites

As some of you may know, I found out that I had celiac disease about a month ago. I had a positive tTg test which was followed by a positive celiac panel (I don't know the specific test names). Funny thing is I had a upper endoscopy scheduled for last friday, I had to cancel last min due to scheduling conflicts. This stressed me out because I wanted to start the gluten free diet but the Dr wanted a formal diagnosis. I rescheduled for this coming friday, but found out yesterday that I was pregnant. I also just found out a few months ago that I have antiphospholipid antibody syndrome. Now I am panicking because I will now be switching to a gluten free diet and dealing with the first months of pregnancy at the same time. I also have a almost 3 year old and almost 1 year old son. I feel overwhelmed and scared. I guess I am just looking for anyone who has been through this!

right there with you. 9 Weeks pregnant, diagnosed two weeks ago. Two toddlers in the house. Totally overwhelmed and an emotional mess.

0

Share this post


Link to post
Share on other sites

I am in the same boat. Found out last week about the celiac, and I am 16 weeks pregnant with a toddler. We can do it!!

0

Share this post


Link to post
Share on other sites

There must be something in the water :rolleyes: or spring is in the air :D Congrats, all.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,570
  • Topics

  • Posts

    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,177
    • Most Online
      1,763

    Newest Member
    lolobaggins
    Joined