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New To Celiac, Now Pregnant. Overwhelmed!
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As some of you may know, I found out that I had celiac disease about a month ago. I had a positive tTg test which was followed by a positive celiac panel (I don't know the specific test names). Funny thing is I had a upper endoscopy scheduled for last friday, I had to cancel last min due to scheduling conflicts. This stressed me out because I wanted to start the gluten free diet but the Dr wanted a formal diagnosis. I rescheduled for this coming friday, but found out yesterday that I was pregnant. I also just found out a few months ago that I have antiphospholipid antibody syndrome. Now I am panicking because I will now be switching to a gluten free diet and dealing with the first months of pregnancy at the same time. I also have a almost 3 year old and almost 1 year old son. I feel overwhelmed and scared. I guess I am just looking for anyone who has been through this!

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I feel for you, although I haven't been through it myself. There is a silver lining here though, since so many women with celiac/gluten intolerance have issues with getting pregnant.

That said, going gluten-free is challenging. Try to get as much support as you can within your healthcare system. You may be able to see a nutritionist, for example. Especially when you're pregnant, you'll need to work extra hard to make sure you get enough nutrition in your diet. Luckily, a gluten-free diet can and should include fresh fruits, veggies, and meats, which are the best things we can eat for ourselves as humans anyway. If possible, you may even want to see a therapist in the short term if you feel very overwhelmed. Having two young kids and being pregnant is already pretty intense, and now you're dealing with significant health issues too.

Please join us in the cooking/baking section, if you're inclined. I've learned a lot from other folks on the board about putting together a gluten-free diet, so that at this point it actually feels easy and natural. And I do think we eat better than most Americans. So our kids will all grow up healthy and with healthier eating habits. I read recently that there's evidence now that babies actually pick up taste sensitivities while in the womb and breast feeding. If you're eating lots of good whole foods, your baby will end up liking good, nutritious foods. That's definitely a good thing.

Congrats on your pregnancy!

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As some of you may know, I found out that I had celiac disease about a month ago. I had a positive tTg test which was followed by a positive celiac panel (I don't know the specific test names). Funny thing is I had a upper endoscopy scheduled for last friday, I had to cancel last min due to scheduling conflicts. This stressed me out because I wanted to start the gluten free diet but the Dr wanted a formal diagnosis. I rescheduled for this coming friday, but found out yesterday that I was pregnant. I also just found out a few months ago that I have antiphospholipid antibody syndrome. Now I am panicking because I will now be switching to a gluten free diet and dealing with the first months of pregnancy at the same time. I also have a almost 3 year old and almost 1 year old son. I feel overwhelmed and scared. I guess I am just looking for anyone who has been through this!

right there with you. 9 Weeks pregnant, diagnosed two weeks ago. Two toddlers in the house. Totally overwhelmed and an emotional mess.

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I am in the same boat. Found out last week about the celiac, and I am 16 weeks pregnant with a toddler. We can do it!!

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There must be something in the water :rolleyes: or spring is in the air :D Congrats, all.

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
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