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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Positive I Noticed!
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21 posts in this topic

It dawned on me today I am no longer losing CHUNKS of hair everyday like I have for the past 10 years! I also shedded hair like crazy, where my friends always noted how much hair I had on my clothes!

Where I used to pull lose hairs after combing I would get like a 1/2" chunk now I am less than 1/16"!!

Its a huge difference, I may notice a stray hair or two on my shirt during the day...instead of having to go and take off my sweater in the bathroom and de-hair the back of it because there was so much!

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Mine is improving too. Not as much in the brush and it seems healthier. Small victories. :)

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I am so happy for you! :) and you too, Diane!

I am slowly getting some hair to grow back in. I suffered major hair loss and it was very upsetting for me. (my hair was never thick anyway, but this shedding became ridiculous--I was going bald.)

It is always good to hear when a fellow celiac tells me "it comes back!", so thank you so much for posting! Your news is encouraging!!!

Cheers, IH

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Diane and MeeToo, what do you think was the answer for your hair loss?

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Diane and MeeToo, what do you think was the answer for your hair loss?

Hi A!! (IH is waving at you!)

I suspect they will tell us "time and healing" :) and better absorption of nutrients/vitamins-- but let's see if there is any other magic we are missing. I have covered all my bases (testing wise and vit def. wise) and so I know it's nothing else.

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Congrats! I didn't have hair loss as a symptom but I did notice just this morning that my fingernails are no longer flaking and tearing like they used to, they are much much stronger than they used to be and they are growing much faster. So cool!

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Diane and MeeToo, what do you think was the answer for your hair loss?

I don't know...I am guessing just gluten-free. I am at about 9 weeks gluten free. Maybe being gluten-free has helped me raise my vitamin D levels further. I know up until going gluten free I was still having crushing fatigue problems (my low vit D symptom)...which have slowly resolved.

Previously last April I was diagnosed with severe Vit D defiecency and I noticed a difference in increasing my level to a 'normal' level...but I just had less major loss of hair, but I was still losing it just at a slower rate.

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I don't know...I am guessing just gluten-free. I am at about 9 weeks gluten free. Maybe being gluten-free has helped me raise my vitamin D levels further. I know up until going gluten free I was still having crushing fatigue problems (my low vit D symptom)...which have slowly resolved.

Previously last April I was diagnosed with severe Vit D defiecency and I noticed a difference in increasing my level to a 'normal' level...but I just had less major loss of hair, but I was still losing it just at a slower rate.

I am still taking 6000 units of vitamin D per day if you were curious. Its supposed to be my maintenance dose since I was so low, and was back up to normal in July.

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Diane and MeeToo, what do you think was the answer for your hair loss?

I think it is because I am finally absorbing vitamins and nutrients.

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CONGRATS!!! That's so amazing! I really really hope I can post that same thing one day. I've got about 1/4 of my hair left. It's really bad. I'm keeping the faith that it will come back. I've just got to give it time (I'm only 3 weeks gluten-free).

Anyway, like others have said, I just wanted to say CONGRATS and thanks for helping give me hope!!!

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Great news! I noticed last weekend that an area on the top of my head (the crown area, near the back) which has been pretty thin for ages, and which I didn't attribute to Celiac or gluten at all, has started to fill in. I've been gluten-free for about 10 weeks or so, and have sporadically taken some probiotics and vitamins and try to eat some veggies on a regular basis, etc. I also avoid soy.

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I'm still losing about the same amount, BUT in the last week I noticed all these little hairs growing in around my hairline. They are between 1/8-1/2" long! I've been gluten free since the end of October.

On another thread, someone mentioned Biosil and zinc tablets for hair loss and I started taking those about 6 weeks ago. I think that those supplements combined with going gluten free has really helped my hair start to fill in.

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I'm still losing about the same amount, BUT in the last week I noticed all these little hairs growing in around my hairline. They are between 1/8-1/2" long! I've been gluten free since the end of October.

On another thread, someone mentioned Biosil and zinc tablets for hair loss and I started taking those about 6 weeks ago. I think that those supplements combined with going gluten free has really helped my hair start to fill in.

I'm soo happy for you...It's wonderful and give me hope that the hair loss will stop and heal...I've been worried for some time that the hair loss was permanent :(...I had really thick long hair and now (like others) it seems to be thinning and falling out...Congrats...its always nice to hear the possitives :)...thank you for sharing

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My hair came back in thick and curly, and I can grow fingernails now that I have to cut short instead of having them break off. :)

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oh wow! thanks for this info! I am happy to learn that my hair may become healthier again!! And that my lifelong fingernail problems may end, or at least maybe on a gluten-free diet my fingernails and hair may get healthier! There is good news to be found in all of this!

I was diagnosed just a couple of months ago, and am still struggling to get gluten completely out of my diet.

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Hi, I just wanted to say that I too have noticed that I have MUCH less hair in the bottom of the tub after I shower! I also noticed, just this morning that i have new hair growing in around my temple area! It's about 1/2 inch long! Good to see some positive results!

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I'm soo happy for you...It's wonderful and give me hope that the hair loss will stop and heal...I've been worried for some time that the hair loss was permanent :(...I had really thick long hair and now (like others) it seems to be thinning and falling out...Congrats...its always nice to hear the possitives :)...thank you for sharing

Thank you! Seriously, try the Biosil and zinc. Completely without exaggeration, after FIVE days my eye lashes were noticeably longer. Really it was that fast! The head hair has a longer growth cycle so it's taken longer to see results on my scalp. But it's starting to visibly fill now. I didn't even realize my eyebrows had thinned and they have even thickened up. I keep my nails short (to just the tops of my fingers) and they are growing like crazy, too.

((((hugs))) cause I know how it sucks to see all that hair in the drain. But I have faith that yours will come back too! :-)

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Thank you! Seriously, try the Biosil and zinc.

This must be why the online sources of BioSil are sold out.

Seriously, try finding it! Word of mouth from satisfied customers has made it nearly impossible to find.

The celiacs are all buying up the bottles. :lol:

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Thank you! Seriously, try the Biosil and zinc. Completely without exaggeration, after FIVE days my eye lashes were noticeably longer. Really it was that fast! The head hair has a longer growth cycle so it's taken longer to see results on my scalp. But it's starting to visibly fill now. I didn't even realize my eyebrows had thinned and they have even thickened up. I keep my nails short (to just the tops of my fingers) and they are growing like crazy, too.

((((hugs))) cause I know how it sucks to see all that hair in the drain. But I have faith that yours will come back too! :-)

aww...thank you...ill be trying to find some Biosil this weekend.. :) Hugs.... :)

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That is great news! My 3 daughters and I were just diagnosed, and we start our gluten-free diet soon. I was mystified by hair loss in my younger two. My middle daughter, especially, had handfuls come out every time I combed, a few years ago, but that symptom came and went. The 9-year-old has almost waist-length hair, but whenever I comb it after a bath, I end up with a whole handful to throw away. I hope it grows back for them, and for me (perpetually super-thin hair!) I had no idea this was a symptom till all my recent research.

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Although this did not happen to me, I would like to add my congratulations. What an awesome result! I rejoice with you and can feel your happiness. :)

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