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Is It Celiac?

BrittLoves2Run

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BrittLoves2Run Apprentice
BrittLoves2Run
Posted

Hello!

I

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Takala Enthusiast
Takala
Posted

Could be, or also could be gluten intolerance. In that case, the celiac panel blood tests will come back negative. :ph34r:

If your blood tests come back negative, and you are not getting a biopsy, the next time you get one of those "mystery" rashes have them biopsy the skin next to it for DH, which could get you a positive diagnosis of celiac. After testing has been exhausted, try going on a gluten free diet anyway to see what happens, as your symptoms match having a gluten problem.

Don't forget that all your medications will have to be gluten free, also.

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BrittLoves2Run Apprentice
BrittLoves2Run
  • Author
Posted

Could be, or also could be gluten intolerance. In that case, the celiac panel blood tests will come back negative. :ph34r:

If your blood tests come back negative, and you are not getting a biopsy, the next time you get one of those "mystery" rashes have them biopsy the skin next to it for DH, which could get you a positive diagnosis of celiac. After testing has been exhausted, try going on a gluten free diet anyway to see what happens, as your symptoms match having a gluten problem.

Don't forget that all your medications will have to be gluten free, also.

So this might seem like a stupid question, but what is the difference between Celiac and Gluten intolerance? What do you do to deal with Gluten intolerance?

I'm really anxious to get to the doctors tomorrow. I don't want to put myself on a gluten-free diet if it's not necessary as it seems like a HUGE change.. and it's also expensive, but i'd like to do anything I can to start feeling better.

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Aly1 Contributor
Aly1
Posted

Celiac disease is a manifestation of gluten intolerance where the villi of the small intestine are attacked and a variety of symptoms follow. It is auto-immune in nature. Non-celiac gluten intolerance basically means the bad reaction to gluten effects areas other than the small intestine - and it can really effect any area and cause numerous symptoms from headaches to neurological symptoms to...brain fog and inability to think clearly, lol, which is happening to me right now. Anyway I'm sure others can fill in the blanks. The point is - if your celiac panel comes back negative it means one of two things:1) it was a false negative which is possible or 2) you do not have celiac. There is no way to test for non-celiac gluten intolerance - but it is just as severe and can have a major impact on one's health. So, once you have exhausted all testing - do note, you need to be eating a regular gluten diet in order for celiac tests to show anything - you should try going gluten free for a good stretch of time, at least a month or two. If gluten is a problem for you, you will likely start to feel better quickly.

The symptoms you listed could definitely be gluten-related. I hope they are, so you will be able to start healing ASAP. Good luck.

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Aly1 Contributor
Aly1
Posted

Ps. Yes it's hard, but believe me, we wouldn't all be eating that way if it didn't make us feel So Much Better. And that's pretty much priceless!

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Aly1 Contributor
Aly1
Posted

And another note - if gluten does Not turn out to be a problem for you - I get deep aching pain in my bones from eating sugar and variety of other things too lengthy to list here. I also got it from gluten. Point is there are many things that we eat that can cause pain and do harm so gluten may not be the end of your need to explore diet as a possible cause. You've found a great resource here on this forum, the people here are so helpful and can offer guidance every step of the way.

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BrittLoves2Run Apprentice
BrittLoves2Run
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Posted

And another note - if gluten does Not turn out to be a problem for you - I get deep aching pain in my bones from eating sugar and variety of other things too lengthy to list here. I also got it from gluten. Point is there are many things that we eat that can cause pain and do harm so gluten may not be the end of your need to explore diet as a possible cause. You've found a great resource here on this forum, the people here are so helpful and can offer guidance every step of the way.

Thanks for your response! I had my doctor appointment this morning. My doctor seemed very apprehensive about testing me for Celiac. He basically said it's a pain in the butt to diagnose. I get that, but I'm sick! and i'm tired of being sick. So I insisted that we do it anyway. He asked me if my family had any problem with Thyroid problems. I never thought about the correlation. Every woman in my family has an underactive thyroid and my mom has a lot of the same gastro problems as I do. So he did the Celiac panel and a thyroid test. I'll see what comes of it.

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      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
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      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
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