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Looking For A Doctor With Knowledge About Gluten Ataxia In Massachuetts.


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3 replies to this topic

#1 Jeffiner

 
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Posted 18 January 2012 - 08:57 AM

I live in Wareham MA and have had an increasing number of neurological symptoms over the past year. I would love to find a doctor that has a clue if anyone could suggest someone. Thanks :)
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#2 frieze

 
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Posted 19 January 2012 - 12:30 PM

I live in Wareham MA and have had an increasing number of neurological symptoms over the past year. I would love to find a doctor that has a clue if anyone could suggest someone. Thanks :)

I tried to check out MGH and UMMC, didn't get any hits on gluten ataxia. you might be better off emailing Dr H in England. He may know who is "into" it over here. Good luck.
On the other hand, what are you looking for? If you want to rule/out other causes, either of those two institutions would do.
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#3 Skylark

 
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Posted 19 January 2012 - 01:39 PM

You may have to find the best neurologist you can and go to the appointment with articles on gluten ataxia. Sometimes we have to educate our doctors. Most of the tests for gluten ataxia are research tests, not ones available at a lab, so it's largely a matter of ruling out other disorders and trying the diet.
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#4 Kamma

 
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Posted 20 January 2012 - 07:27 PM

I agree with Skylark. After two years of being tested for everything under the sun by a great neurologist, I suggested celiac and he was totally on board and sent me for testing. It helps to read up on the research being done on neurolgical representations of celiac so you can inform the neurologist. Mine was on board cause his sister was diagnosed with celiac after ten years of neurological symptoms. If it wasnt for that, my neurologist would never have heard of it and he was honest enough to tell me so.
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