Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Going To The Doctor...
0

5 posts in this topic

Hi friends. I'm going to a new doctor to get a second opinion. I've been gluten free almost 5 months and am still experiencing gastrointestinal symptoms on a very strict gluten free diet. Some symptoms include extremely fatigued, rapid and irregular BM's and flatulence. This stinks. I'm grateful for any words of wisdom. Thank you.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have you been tested for dairy? soy? Corn?

0

Share this post


Link to post
Share on other sites

Have you been tested for dairy? soy? Corn?

No, ma'am, I haven't. I've been off of dairy, too. I have wondered if it could be corn or eggs...not sure.

0

Share this post


Link to post
Share on other sites

For the fatigue; have you had your iron and ferritin checked? How about your thyroid? Vitamin D? All of these can contribute/cause extreme fatigue.

As for the other symptoms things to consider: gallbladder problems, other food intolerences, SIBO, yeast, possible CC? Just food for thought.

0

Share this post


Link to post
Share on other sites

Mamaw is right--other allergens could be additional culprits.

You should also look into possible additional sources of being trace glutened too. I had to stop using my oven since the self cleaning cycle did not work. I bought a largish dedicated toaster oven to replace it. I also had to stop using lip balm (I use petroleum jelly), change my lipstick, and change out all my soaps and lotions, including what I use to wash my floor with and dishes. I also had to start washing my hands a lot before putting them to my face since one can get trace gluten from shaking people's hands as well as from doorknobs etc. etc.

Finally, after much time, I discovered I am also salicylate sensitive. This is a huge category since salicylates are in a lot of fruits and vegetables as well as nuts, seeds and herbs (including spices). Much like aspirin, it protects the plants from the elements. It can mess with a person's intestines as well as the nervous system, liver and skin. It too damages the villi in the intestines (i.e., besides the gluten). Corn and coconut by the way are high in salicylates, whereas brown rice is safe. Am hoping you don't have this. Though if you do have this condition it is far better to know about it than not. If you decide to investigate this possibility, its best to drink spring water since filtered water usually filters through coconut based charcoal.

Might be best to keep a food diary and note how you feel before and after you eat. Taking your pulse before and after and then a couple of hours after you eat can also give you some good clues. Going on a simplified basic diet can help initially to make your determinations less complicated.

Go luck in your detective work!

Bea

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined