Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

The Case Of The Missing Wheat Bread
0

6 posts in this topic

Hello all, I am new here and needed something creative to get you to read this post! LOL Look forward to talking with you all. ;) Any ideas or help you can recommend would be great.

I decided right before the New Year to go Gluten-Free for 2 weeks on the 1st due to my Ulcerative Colitis flaring up as well as the fact that my 2 year old son is suffering from constant ezcema/hives.

Here is a little about my health history:

2 yrs old - Diagnosed with Asthma

4 yrs old - Severe reaction to Macadamia nuts. Rushed to hospital.

5 yrs - Severe reaction to fish sticks at school.

8 yrs old - Doctor told my mom they thought I might be allergic to milk due my complaints of stomach ache, but I never had any "formal" food allergy testing done.

11 yrs old - On vacation in Oregon. Caught crabs - just touching it I broke out in hives all over.

16 yrs old - Started suffering Depression

23 yrs old - Random patches of Ezcema/Psoriasis start appearing on hands, ankles.

29 yrs old - Started having extremely itchy/rashy legs that would come and go. Anxiety.

30 yrs old - Diagnosed as having Depression, Anxiety and add. Put on adderall so i could focus. Chronic fatigue.First signs of irritable bowel appear.

31 yrs old - Diagnosed Chronic Sinisitis

32 years old - Diagnosed Ulcerative colitis.

So here I am. Im thinking at the very least I have a wheat sensitivity after my gluten-free challenge. I didn't last the full 2 weeks but it was like a mack truck hit me the day after I ingested gluten! I can not even explain what that day was like... I might as well have moved into the bathroom. :D Sorry if tmi...

Positive things about going gluten-free: less gas/bloating/discomfort, less trips to the restroom & more ENERGY!

If that didn't sell me on a gluten-free diet I don't know what will!

Allergies I am confirmed to have: Walnuts, Macadamia Nuts, Fish, Crabs. These are all severe and my throat will start to swell etc. I can however eat Peanuts, Almonds, Cashews, Shrimp. I suspect I may have a potato or oil, egg allergy as well as the wheat problem.

Odd thing is before I even considered the possibility that I had Celiac I wondered if my son had it. He was severely Colic as a baby. He was diagnosed as failure to thrive after only gaining 1 lb. after 2 months. Since then he has always been in the 20% for weight. He had GERD. He had minor cradle cap. We tested him for soy and milk allergies around 4 months which came back negative. At 6 months he tried Oatmeal cereal and threw up after eating it. He had ezcema from 3 months to 11 months old. His ezcema seemed to disappear for awhile - but returned when he was around 17 months. I do not remember feeding him any different during that time frame. He has had severe reactions to eggs and peanuts. I have not been able to pinpoint if wheat or milk is actually causing an issue with him. I will (hopefully) get some answers Monday when he is getting allergy tested. He seemed to be ok with almonds, but I gave him some gluten-free granola last week that has almonds and it seemed like he may have had a reaction. ;(

\

I am getting tested next Thursday so I officially had to start eating gluten again tonight. My stomach is already grumbling away!

I am considering this my 'goodbye to gluten party' and will be eating all the worst foods! I will miss my chicago deep dish pizza, my cheeseburgers...*sigh*

Has anyone here had any of the same problems as me and been diagnosed Celiac? I really hope I can get some answers next week! Does anyone have celiac and an egg allergy?

Thanks!

Erin

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello all, I am new here and needed something creative to get you to read this post! LOL Look forward to talking with you all. ;) Any ideas or help you can recommend would be great.

I decided right before the New Year to go Gluten-Free for 2 weeks on the 1st due to my Ulcerative Colitis flaring up as well as the fact that my 2 year old son is suffering from constant ezcema/hives.

Here is a little about my health history:

2 yrs old - Diagnosed with Asthma

4 yrs old - Severe reaction to Macadamia nuts. Rushed to hospital.

5 yrs - Severe reaction to fish sticks at school.

8 yrs old - Doctor told my mom they thought I might be allergic to milk due my complaints of stomach ache, but I never had any "formal" food allergy testing done.

11 yrs old - On vacation in Oregon. Caught crabs - just touching it I broke out in hives all over.

16 yrs old - Started suffering Depression

23 yrs old - Random patches of Ezcema/Psoriasis start appearing on hands, ankles.

29 yrs old - Started having extremely itchy/rashy legs that would come and go. Anxiety.

30 yrs old - Diagnosed as having Depression, Anxiety and add. Put on adderall so i could focus. Chronic fatigue.First signs of irritable bowel appear.

31 yrs old - Diagnosed Chronic Sinisitis

32 years old - Diagnosed Ulcerative colitis.

So here I am. Im thinking at the very least I have a wheat sensitivity after my gluten-free challenge. I didn't last the full 2 weeks but it was like a mack truck hit me the day after I ingested gluten! I can not even explain what that day was like... I might as well have moved into the bathroom. :D Sorry if tmi...

Positive things about going gluten-free: less gas/bloating/discomfort, less trips to the restroom & more ENERGY!

If that didn't sell me on a gluten-free diet I don't know what will!

Allergies I am confirmed to have: Walnuts, Macadamia Nuts, Fish, Crabs. These are all severe and my throat will start to swell etc. I can however eat Peanuts, Almonds, Cashews, Shrimp. I suspect I may have a potato or oil, egg allergy as well as the wheat problem.

Odd thing is before I even considered the possibility that I had Celiac I wondered if my son had it. He was severely Colic as a baby. He was diagnosed as failure to thrive after only gaining 1 lb. after 2 months. Since then he has always been in the 20% for weight. He had GERD. He had minor cradle cap. We tested him for soy and milk allergies around 4 months which came back negative. At 6 months he tried Oatmeal cereal and threw up after eating it. He had ezcema from 3 months to 11 months old. His ezcema seemed to disappear for awhile - but returned when he was around 17 months. I do not remember feeding him any different during that time frame. He has had severe reactions to eggs and peanuts. I have not been able to pinpoint if wheat or milk is actually causing an issue with him. I will (hopefully) get some answers Monday when he is getting allergy tested. He seemed to be ok with almonds, but I gave him some gluten-free granola last week that has almonds and it seemed like he may have had a reaction. ;(

\

I am getting tested next Thursday so I officially had to start eating gluten again tonight. My stomach is already grumbling away!

I am considering this my 'goodbye to gluten party' and will be eating all the worst foods! I will miss my chicago deep dish pizza, my cheeseburgers...*sigh*

Has anyone here had any of the same problems as me and been diagnosed Celiac? I really hope I can get some answers next week! Does anyone have celiac and an egg allergy?

Thanks!

Erin

Many of your symptoms could point to Celiac. Some of your sons' too? If going on gluten for testing is affecting you I think you have part of your answer? Be aware that some of us have negative blood tests but have Celiac or gluten intollerance in spite of those tests.

Once your testing is done, try a very strict gluten-free diet. You don't need a DX to stay gluten-free if it makes you feel better.

Many Celiacs have other food intolerances/allergies. It's very common. The trick is figuring out what they are. You seem to have a good idea of what "gets" you?

Good luck on your testing. I hope you get the answers you're seeking.

0

Share this post


Link to post
Share on other sites

Err..forgot to answer to the "case of the missing wheat bread"..We ain't gonna go looking for it! LOL :D

0

Share this post


Link to post
Share on other sites

Here I am a little over 24 hours into my 'farewell gluten' party and Im not sure if I can do it. Well I can do it, because I want to know if Celiac is the root of all these health problems of mine. But my poor children are being tortured. ;/

Gluten for punishment!

My 2 year old is literally scratching away like mad at his skin. I made sure no eggs in his food today... So why does he have raised red skin with these little bumps all over? Wheat has got to be part of his issues. Will they diagnosis him Celiac if my test comes back positive? Im thinking about going back to gluten & egg free but I worry my test won't come back as Celiac if I have it. My family is one of those that don't really believe I have something unless I get a diagnosis. But I don't want to torture my 2 yr old all weekend until his testing Monday morning. If they determine my 2 year old has Celiac and I have the house go back to gluten-free after his testing Monday morning will they diagnosis me Celiac even if my test comes back negative?

My 5 month old seems to have eczema appear all over his whole body since we got the ok to start solids. He is the opposite of my 2 yr old - did not have GERD, no failure to thrive, in fact LOVES food. My 2 yr old was not a fan of solids. He has doubled his birth weight and then some. He does have horrible cradle cap we are still battling with! It seemed like his eczema was better when I was not on wheat. He is breastfed no formula feedings. He also is fed organic brown rice cereal once a day (either morning or bedtime)mixed with breastmilk. We will also usually have one fruit or vegetable a day. I have a food journal on baby and we have had questionable reactions to banana, broccoli, strawberry.

Any thoughts/advise?

On another note I have been reading a lot of the other postings here and would never have connected some of my minor symptoms as possibly being celiac - night sweats, trouble swallowing.

Thanks!

0

Share this post


Link to post
Share on other sites

For tests results to come back with an accurate reading you have to be eating gluten regularly. Going off gluten will throw the tests off. They say you shouldn't go gluten-free until all testing is done, which includes an Endoscope, if they want to do one.

If your tests come back negative, it's still a good idea to give the gluten-free diet a try to see if your symptoms improve. You could be one who's blood tests negative, but have Celiac (which is my case) or you may be gluten intolerant, which doesn't show up on tests.

Your son's rash *could* be the skin form of Celiac, which they test for by doing a biopsy of the skin right next to the lesions.

They won't DX your son with Celiac based on your tests, although if you have the gentic test done it may show if you share the "Celiac genes" which would make it more likely that he could have it.

0

Share this post


Link to post
Share on other sites




My 2 year old was tested today for Celiac as well as the following food allergies - corn, wheat, casein, milk, soybean, peanuts, almonds, cashew, macadamia, hazelnut, brazil nuts, walnuts, pecan, cinnamon, oregano, egg whites, bakers yeast, oat and trout.

Doctor says he has the dh rash...

I feel 99% sure he's going to come back celiac and allergic to peanuts, eggs. I will keep you posted on the results! I am on pins & needles and can not wait 7 days. Eek.

My testing is Thursday. Only 3 more days of gluten punishment!

The last 3 things on my gluten party list: Krispy Kreme, Chicago Deep Dish Pizza and a Squeeze Burger. O_o

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,310
  • Topics

  • Posts

    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined