Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Muscle Aches (Thighs And Calves)
0

11 posts in this topic

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I usually find that for me it's from a lack of potassium. If you are ok with orange juice, potatoes and bananas those should help. They always make my muscles feel better especially after being glutened.

0

Share this post


Link to post
Share on other sites

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.

Some ideas:

1. Very early rheumatoid arthritis.

2. A groin pull.

3. Trochanteric bursitis- bursitis of the hip.

4. Early osteoarthritis of the hip.

5. Very remote possibility of lyme.

A rheumy would be able to pin it down a little better. It depends on exactly where you feel the pain.

0

Share this post


Link to post
Share on other sites

I do eat a lot of potatoes. At least once a week but not bananas. Could easily add those.

As for arthritis would I feel that other than in the joints? The ache is not at the joint specifically. Like when it aches in my calves.

Wanted to add that sometimes it is just one leg that aches (more often just the right). I never ache anywhere else.

0

Share this post


Link to post
Share on other sites

If the muscle feels crapped add a potassium supplement, eating abanabs might not be enough. If the muscle feels hard kind of like you have been running, then try adding an Omega 3,6,9 supplement.

0

Share this post


Link to post
Share on other sites




I used to get leg cramps, mainly at night, and was told by my chronic pain doc to increase my magnesium to 900-1800 mg. He also recommended using magnesium glycinate as it is said a far higher percentage is absorbed than plain old magnesium. It took about a month at 900 mg before I felt a difference. But if you try this, be sure to increase magnesium gradually to avoid diarrhea.

0

Share this post


Link to post
Share on other sites

Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up.

I have similar pain that starts at the hip joint and runs down my leg. Achy. Sometimes tingling. Sometimes extending all the way to my toes. Acetaminophen / ibuprofen helps. It makes sleeping on my side difficult, and one side is worse than the other. It comes and goes, and has improved since going gluten-free. I find taking D3 has helped. Recently I added other vitamins/supplements - fish oil, cod liver oil, potassium, calcium, multivitamin. When I take all of those the pain goes away. Maybe like other posters said it's the potassium that helps? When I skip a day or two of taking the vits/supps then the pain creeps back in.

I'm thinking of seeing a rheumotologist (sp?) but am afraid of not finding one that is educated re celiac. I'm reluctant because I can help the symptoms and it doesn't really interfere with my life. It's mainly a nuisance and a frustration at this point, and I usually grin and bear it. I'm not sure what to do unless/until it gets worse.

I'm sorry you have this problem, but it's nice to know I'm not alone...! :rolleyes:

0

Share this post


Link to post
Share on other sites

I have a twin sister - both of us have suffered from back pain for years and just figured it was they way we were. She started getting the hip pain/thigh pain that you are describing and went to an arthritis specialist out of desperation about a year ago. He tested her for arthritis and came up neg. and he just started testing her for everything under the sun to figure out the source of her pain (no one had ever done anything but dismiss our pain before this). Sure enough, celiac was the answer - this is how we found out. After going gluten-free, the pain gradually has disappeared but when I do get glutened, now I also get the thigh pain (it is one of my first symptoms!). While it may be something else, I wanted you to know that thigh/leg/knee/back/neck/muscular pain is my glutened reaction and I have been for many other things. Ibprofen (I don't think I spelled that right) helps a little, but I just have to wait - sometimes up to 4 weeks - for the inflammation to subside.

0

Share this post


Link to post
Share on other sites

Thank you all for your continued suggestions. It is helpful. It is so hard to describe the ache. It isn't a cramp or knot or tightness or burning or even pain. Just a dull, persistent ache deep in the thigh. If you asked me to, I couldn't even pinpoint for you exactly where it aches, just that it does, and that more often than not it seems to start at the crease where my leg meets my pelvis. It doesn't hurt up at the hip bone, nor the groin.

I've wondered about restless leg, though it doesn't wake me up at night or keep me from falling asleep.

I've upped my potassium intake this week and will consider if I need to add any other supplements to the mix.

0

Share this post


Link to post
Share on other sites

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

0

Share this post


Link to post
Share on other sites

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

I have IT band syndrome as well and it causes all sorts of problems with my hips and legs regularly. OUCH!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,579
  • Topics

  • Posts

    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
    • Bravo for being strong enough to bring this topic up.  Depression, anxiety, and other mental or neurological issues are common in celiacs and those with NCGI.  Science is finally catching up to what many of us have already known to be true.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I have suffered from anxiety and still have some neuropathies.  At first I blamed menopause (that alone can make you crazy), but my symptoms tend kick in after a Gluten exposure and improve as I heal.   You are not crazy!  Gluten can cause so many problems.  What other disease requires that the patient be in charge of "medicating" and caring for themselves?  Most of us after a diagnosis get a "Well, just avoid gluten.  Lucky you that there are so many restaurants that offer a gluten free menu!", speech from our doctors.  We never get time off from thinking about food, our next meal and will it be safe?  Our relationship with food changes dramatically and it can be exhausting.   We do need more resources and support from medical, but for now, at least this forum is helpful!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined