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Help Please? 13 Year Old Son Sneaking Wheat!
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Not sure if gluten does this to your son, but for me it caused severe cystic acne. I had it for almost 25 years. Two rounds of Accutane couldn't make it go away permanently. Couldn't handle most antibiotics. Allergic to some topicals. Anyway, after being off gluten for 2 months, and my cystic acne was gone! Did a 4-day gluten challenge, it came back in FULL force. Disappeared again once those sores healed. Dermatologist was amazed.

So avoiding acne may be a good motivator! Especially if he gets break outs after eating gluten.

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I think he needs to understand what is going on inside of HIS body. Teenager-hood tends to bring out the "I'm invincible" attitude, especially when there is an opportunity to prove something. I would suggest (if feasible) you try showing him pictures of the damage to the villi in his small intestine... assuming he had a biopsy. I think things need to become more real for him — this is not a disease he can dismiss as pretend. Gluten does real damage to his body which will only get worse. (That's what would have worked with me — not trying to scare him here!)

Thirteen is a tricky age. You did a great job figuring out what was plaguing his body, now he needs to embrace the changes that will lead him to good health. He is in control of his own body now — sadly, we all only get one. Learning about all of this now will give him all the more wisdom later on, too. :)

Poor guy, it's so tough. :( Keep at it, you're doing great!

~Laura

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My kids really enjoy being able to go buy stuff like the other kids do. We have worked it a couple of different ways, depending on the circumstances. You may want to see if you can work with the canteen to ensure that he has options there so that he can go get extra food if he wants. We also tend to pack lots and lots of different snacks with my kids so that they always have something to eat should they get extra hungry in the day. I cannot imagine how much food a teenage boy could go through!

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This is a quote from Max Lucado about chidren to parents....

"You've been given a book with no title--read it!

A CompactDisc with no cover--listen to it!

An island with no owner-- explore it!

Resist the urge to label before you study.

Attend carefully to the unique childhood of your child."

Open up the communication to see what is going on. What is the underlaying reason? Tell him again how much you love him. How special he is, just the way that he is.

I also suggest the Lizlovely gluten free cookies. (I order from the website. They are not cheap!) What a nice concept they are sold under!!? Two HUGE cookies per package. One for you and one to share. Not even a gluten eater can resist! I would hang on your every word for a cookie, I swear! Makes a conversation like a special bonding experience! (I keep them on hand when My friends need a venting time and they end up spilling their guts and feeling pampered.)

I great way for him to fit in and make more friends by sharing gluten free with his peers.

Good luck!

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My 11 year old daughter just diagnosed with Celiac ( blood only ) has told her friends and teachers everything, from blood work to doctor appts. to getting the biopsy done next week. She's very open with everyone. I have her looking up gluten-free recipes online, grocery shopping together and even comparing prices of the "old" food to the gluten-free food. I even discussed with her the problems she may encounter if she eats gluten. She is well aware of the consequences and complications. She's a social butterfly and is always going places and to have a "tummyache" and "headache" would be devastating to her social career...ha ha! So, she better stick to her diet or else no play time!

She does pack her lunch and I have packed enough gluten-free cookies, and candies to share with her friends at the lunch table. I was amazed to find out that most of her friends tried and even liked the food. They have all learned about this and it's important to teach her friends what's happening. Her true friends will support her!

Now, in a few years she may rebel, but for now I'm pretty rough on her about eating what she supposed to eat.

Good Luck!

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I Just thought of an idea! Make the best gluten-free pizza's and serve with the best gluten-free cookies and have all his friends over for a party. Educate his friends and make a list of all the gluten-free foods that he can have so they are aware. My 15 year old son would think this is ridiculous, but I guess it's the parent in me. Sounds fun!

Good Luck!

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I Just thought of an idea! Make the best gluten-free pizza's and serve with the best gluten-free cookies and have all his friends over for a party. Educate his friends and make a list of all the gluten-free foods that he can have so they are aware. My 15 year old son would think this is ridiculous, but I guess it's the parent in me. Sounds fun!

Good Luck!

My daughter's friends have for the most part been very reluctant to eat any gluten free foods. They just think it is weird. They only tried the gluten-free brownies at her birthday party after we had an accident with the real cake. The cake was still edible. The frosting just got a little messed up. One girl took a small bite of a brownie then asked me how I took the gluten out. Heh.

But overall they don't even want to eat any food at our house. Even if it's a regular food like a Popsicle. They are just fearful of our food.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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