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Help Please? 13 Year Old Son Sneaking Wheat!
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32 posts in this topic

Not sure if gluten does this to your son, but for me it caused severe cystic acne. I had it for almost 25 years. Two rounds of Accutane couldn't make it go away permanently. Couldn't handle most antibiotics. Allergic to some topicals. Anyway, after being off gluten for 2 months, and my cystic acne was gone! Did a 4-day gluten challenge, it came back in FULL force. Disappeared again once those sores healed. Dermatologist was amazed.

So avoiding acne may be a good motivator! Especially if he gets break outs after eating gluten.

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I think he needs to understand what is going on inside of HIS body. Teenager-hood tends to bring out the "I'm invincible" attitude, especially when there is an opportunity to prove something. I would suggest (if feasible) you try showing him pictures of the damage to the villi in his small intestine... assuming he had a biopsy. I think things need to become more real for him — this is not a disease he can dismiss as pretend. Gluten does real damage to his body which will only get worse. (That's what would have worked with me — not trying to scare him here!)

Thirteen is a tricky age. You did a great job figuring out what was plaguing his body, now he needs to embrace the changes that will lead him to good health. He is in control of his own body now — sadly, we all only get one. Learning about all of this now will give him all the more wisdom later on, too. :)

Poor guy, it's so tough. :( Keep at it, you're doing great!

~Laura

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My kids really enjoy being able to go buy stuff like the other kids do. We have worked it a couple of different ways, depending on the circumstances. You may want to see if you can work with the canteen to ensure that he has options there so that he can go get extra food if he wants. We also tend to pack lots and lots of different snacks with my kids so that they always have something to eat should they get extra hungry in the day. I cannot imagine how much food a teenage boy could go through!

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This is a quote from Max Lucado about chidren to parents....

"You've been given a book with no title--read it!

A CompactDisc with no cover--listen to it!

An island with no owner-- explore it!

Resist the urge to label before you study.

Attend carefully to the unique childhood of your child."

Open up the communication to see what is going on. What is the underlaying reason? Tell him again how much you love him. How special he is, just the way that he is.

I also suggest the Lizlovely gluten free cookies. (I order from the website. They are not cheap!) What a nice concept they are sold under!!? Two HUGE cookies per package. One for you and one to share. Not even a gluten eater can resist! I would hang on your every word for a cookie, I swear! Makes a conversation like a special bonding experience! (I keep them on hand when My friends need a venting time and they end up spilling their guts and feeling pampered.)

I great way for him to fit in and make more friends by sharing gluten free with his peers.

Good luck!

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My 11 year old daughter just diagnosed with Celiac ( blood only ) has told her friends and teachers everything, from blood work to doctor appts. to getting the biopsy done next week. She's very open with everyone. I have her looking up gluten-free recipes online, grocery shopping together and even comparing prices of the "old" food to the gluten-free food. I even discussed with her the problems she may encounter if she eats gluten. She is well aware of the consequences and complications. She's a social butterfly and is always going places and to have a "tummyache" and "headache" would be devastating to her social career...ha ha! So, she better stick to her diet or else no play time!

She does pack her lunch and I have packed enough gluten-free cookies, and candies to share with her friends at the lunch table. I was amazed to find out that most of her friends tried and even liked the food. They have all learned about this and it's important to teach her friends what's happening. Her true friends will support her!

Now, in a few years she may rebel, but for now I'm pretty rough on her about eating what she supposed to eat.

Good Luck!

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I Just thought of an idea! Make the best gluten-free pizza's and serve with the best gluten-free cookies and have all his friends over for a party. Educate his friends and make a list of all the gluten-free foods that he can have so they are aware. My 15 year old son would think this is ridiculous, but I guess it's the parent in me. Sounds fun!

Good Luck!

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I Just thought of an idea! Make the best gluten-free pizza's and serve with the best gluten-free cookies and have all his friends over for a party. Educate his friends and make a list of all the gluten-free foods that he can have so they are aware. My 15 year old son would think this is ridiculous, but I guess it's the parent in me. Sounds fun!

Good Luck!

My daughter's friends have for the most part been very reluctant to eat any gluten free foods. They just think it is weird. They only tried the gluten-free brownies at her birthday party after we had an accident with the real cake. The cake was still edible. The frosting just got a little messed up. One girl took a small bite of a brownie then asked me how I took the gluten out. Heh.

But overall they don't even want to eat any food at our house. Even if it's a regular food like a Popsicle. They are just fearful of our food.

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    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Pork Fried Rice  (Gluten Free, Dairy Free) Prep time: About 15 minutes Cook time: About 10 minutes Makes: 3-4 servings   Ingredients: 4 Pork Chops,  1/2 teaspoon salt 1/4-1/2 teaspoons black pepper 1/4-1/2 teaspoon red pepper flakes (optional) 1 Tablespoon Coconut Oil 1/2 large or 1 small onion 2 large carrots 2 cloves garlic, minced 1/4 green cabbage, very finely sliced 1-2 heads of broccoli, roasted and salted(optional) 2-3 eggs 2-3 cups cooked white rice  2 Tablespoons gluten-free Tamari or Coconut Aminos Sriracha (optional)   Instructions: 1. Cut pork chops into small bite sized pieces.  2. Next add a tablespoon of coconut oil to a large wok and heat on medium-high heat for a about a minute.   3. Add your chopped pork chops to the wok and season with the salt, black pepper.  Cook for about 6-8 minutes or until lightly browned. 4. While your pork chops are cooking, dice your onion, mince your garlic cloves, chop your carrots and finely slice your cabbage. 5. Once your pork is lightly browned, add all your veggies and stir fry over medium-high heat fro about 5 minutes. 6. Make a hole in the middle of your veggies and add your eggs.  Scramble your eggs with a big metal spatula until they are cooked and then mix everything together. 7. Add your cooked rice and about 2 Tablespoons of Tamari. Mix everything together and cook for another 3-4 minutes or just enough to warm up the rice.
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
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