Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How To Cope After Negative Blood Results
0

37 posts in this topic

What is SCD??

At various points he has been dairy free, fruit free, haven't done grains. And now he is Lactose free - ie L/F. He has probiotics.

He hasn't had a colonoscopy- think they were waiting to see if it all resolved on a gluten-free diet!

0

Share this post


Link to post
Share on other sites


Ads by Google:

The SCD diet is very scrict and gets a little hard to follow but the results are worth it.

My daughter being almost 4 has adjusted so well I couldn't be more proud. I run an in home daycare and though I try and cut out the sugar treats to my daycare kids I can't fully restric it when their parents bring them things such as fruit snacks, my poor little girl has to watch other kids eat what was once one of her fav treats. I think it hurts me more than it hurts her that she can't eat a lot of foods but she is so strong and says

0

Share this post


Link to post
Share on other sites




I like the SCD; however, my biggest issue with it is that the site and book seem outdated. The other big issue I have is their pushing of the homemade yogurt even if you have a bad reaction to milk. I believe in the book she mentions to go for it unless you are anaphylactic. Many of us have allergic reactions to milk that are not anaphylactic but are also not simple lactose intolerance. One theory they use is that you are depriving the bacteria of food; however, many of the foods they recommend are high in sugars. What's worse is that many are high in fructose, a gi issue for many.

Still, I do think it is worth a trial. I am eating paleo and having good success with that. I do avoid certain foods that SCD says to avoid.

Like with everything, you have to find what works for you and that may be different than what works for me and everybody else.

1

Share this post


Link to post
Share on other sites

I agree it is very outdated, we bought the book and view the website as our guide but we do not by any means follow it strictly. No we don't eat any of the illegal foods but we haven't made the home made yogurt or cottage cheese as my daughter does have anaphylactic reactions to dairy. I have found a few new recipes in the book such as the muffins that turned out amazing! I feel it's been a good starting point for us. With all of this being so new I have been overwhelmed now that im digesting it all I will be doing more research on other diets such as the GAPS and paleo diets.

My daughter is going to be 4 next month and has had stomach issues since 2 weeks old. My husband and I have discovered all of her allergies/intolerances on our own doctors honestly haven't done jack for us aside from telling us she has 5 ft of poo backed up in her.

With her being so restricted and her birthday only 3 weeks away I'm stressing about what to do for her birthday cake/cupcakes.

0

Share this post


Link to post
Share on other sites

With her being so restricted and her birthday only 3 weeks away I'm stressing about what to do for her birthday cake/cupcakes.

I am not extremely familiar with SCD so I'm just throwing this out there. Is there any cookie recipe that you can make? We made a cookie cake for my youngest because we couldn't figure out a safe cake to make. The one we made was a grain free vegan chocolate chip cookie made with honey from Elana's Pantry and instead of putting the chocolate chips into the dough I put them on top in the shape of Mickey Mouse's head since she was having a Mickey and Minnie party.

P.S. I hope that your daughter has a wonderful birthday and that you will both be healthy and happy.

0

Share this post


Link to post
Share on other sites

Alex11602- Their are a few cookie recipes in yhe book that ok going to make this weened to see if she likes them. Do you haopen to have a libk of the recipe you made? Sounds like my daughter can have everything aside the chocolate chips as sugar is a no no right now. But honey is okay!

Thank you I am very excited for her party! They grow up soo fast :/

0

Share this post


Link to post
Share on other sites

Goodness looks like I need more coffee this AM, you said where you got the recipe lol

Going to look at her website now!

Thank you!

0

Share this post


Link to post
Share on other sites

Alex11602- Their are a few cookie recipes in yhe book that ok going to make this weened to see if she likes them. Do you haopen to have a libk of the recipe you made? Sounds like my daughter can have everything aside the chocolate chips as sugar is a no no right now. But honey is okay!

Thank you I am very excited for her party! They grow up soo fast :/

Chocolate chip cookies

I hope it will work for you. I just looked at the recipe again and it calls for agave nectar and I had changed it to an equal amount of honey and I used canola oil instead of grapeseed. And I hear you on the sugar thing...honey is the only one I can handle.

0

Share this post


Link to post
Share on other sites

Doctors (and the medical tests they use) don't know everything. It was just a very short 60 years ago that the polio vaccine was developed. Heck, bloodletting was still in use in the 20th century! Listen to your body...it knows...

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,105
    • Total Posts
      920,383
  • Topics

  • Posts

    • Just wanted to add, that when my friends or family want to eat at a restaurant that I am not sure about, I bring some snacks and then order a drink.  It is all about the company, not the food.  
    • Based on the information you have posted today, the most likely probable reason for your being ill is that you are getting glutened!  Here is a biggie....does your hubby brush his teeth prior to kissing you?  Seriously, it can happen, but going out to eat a lot.....that can be just as bad!  We eat at restaurants that have been approved by celiacs (websites).  Just because that offer a gluten free menu does not mean that they understand about cross contamination.  
    • I got glutened last summer.  Heck, I do not even know what glutened me, but I suspect two products that my gluten-free hubby never consumed (he is my canary).  My symptoms were so different from when I was diagnosed (just had anemia then).  My GI thought I had SIBO or something else, but I asked for a celiac panel.  Yep, I had been Glutened!  Took me three months to recover and another three to regain lost weight.  Yeah, I picked up another health issue on the way (hives, rashes, swelling, itching, ab pain, vomiting, and fainting.)   I did not eat out for one year!  Only this summer, I did.  Was it worth the risk?  You bet!  Three weeks in Europe.  Fortunately,  7 days was on a cruise and Celebrity did a great job.  Italy was so celiac-savvy and I did my research and found places recommended by other celiacs in Spain, France and Poland.  If not, we bought cold food at the market and had a picnic.   I am home.  Will I eat out?  Probably not.  I have a busy Fall ahead of me (High School....football, marching band, volunteer positions, house projects, and work).  I can not afford to be sick.   Ah, I will eat out this Thanksgiving break.  My favorite restaurant is 100% gluten free in Tucson, AZ.   Maybe I will discover another gluten-free restaurant closer to home! 
    • I do est out occasionally - but not indiscriminately.  I am careful to choose places that under stand gluten free.  And places that the food is naturally gluten-free, helps, too.  Celiacs can't just eat something that should be gluten-free and hope it is.  We have to use some common sense and ask questions.  
    • You are right that the next step is an endoscopy, which still is the "gold standard" in diagnosing celiac disease.   However, for various reasons the endoscopy is not done because financial contraints  or long wait times (up to a year!), or too ill to proceed.   You have two positives.  You only need one positive to move forward.    The TTg tests  do not need to be positive for a diagnosis (which requires a positive on an antibodies test which you had and an endoscopy).  My TTg tests were negative and I only had a positive on the DGP IGA, yet biopsies revealed a Marsh Stage IIIB (moderate to severe damage. http://www.cureceliacdisease.org/screening/ Unless your PCP is a celiac expert (unlikely), I would insist on a GI consult.   Please find one who is celiac-savvy.   keep eating gluten daily until all testing is complete (biopsies done).  You never know if lab results are going to get lost.  Besides any celiac testing requires the patient to be on a gluten diet.  In the meantime, keep on researching.  Only YOU can be your best health advocate!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,142
    • Most Online
      1,763

    Newest Member
    adoreyou
    Joined