Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How To Cope After Negative Blood Results
0

37 posts in this topic

What is SCD??

At various points he has been dairy free, fruit free, haven't done grains. And now he is Lactose free - ie L/F. He has probiotics.

He hasn't had a colonoscopy- think they were waiting to see if it all resolved on a gluten-free diet!

0

Share this post


Link to post
Share on other sites


Ads by Google:

The SCD diet is very scrict and gets a little hard to follow but the results are worth it.

My daughter being almost 4 has adjusted so well I couldn't be more proud. I run an in home daycare and though I try and cut out the sugar treats to my daycare kids I can't fully restric it when their parents bring them things such as fruit snacks, my poor little girl has to watch other kids eat what was once one of her fav treats. I think it hurts me more than it hurts her that she can't eat a lot of foods but she is so strong and says

0

Share this post


Link to post
Share on other sites




I like the SCD; however, my biggest issue with it is that the site and book seem outdated. The other big issue I have is their pushing of the homemade yogurt even if you have a bad reaction to milk. I believe in the book she mentions to go for it unless you are anaphylactic. Many of us have allergic reactions to milk that are not anaphylactic but are also not simple lactose intolerance. One theory they use is that you are depriving the bacteria of food; however, many of the foods they recommend are high in sugars. What's worse is that many are high in fructose, a gi issue for many.

Still, I do think it is worth a trial. I am eating paleo and having good success with that. I do avoid certain foods that SCD says to avoid.

Like with everything, you have to find what works for you and that may be different than what works for me and everybody else.

1

Share this post


Link to post
Share on other sites

I agree it is very outdated, we bought the book and view the website as our guide but we do not by any means follow it strictly. No we don't eat any of the illegal foods but we haven't made the home made yogurt or cottage cheese as my daughter does have anaphylactic reactions to dairy. I have found a few new recipes in the book such as the muffins that turned out amazing! I feel it's been a good starting point for us. With all of this being so new I have been overwhelmed now that im digesting it all I will be doing more research on other diets such as the GAPS and paleo diets.

My daughter is going to be 4 next month and has had stomach issues since 2 weeks old. My husband and I have discovered all of her allergies/intolerances on our own doctors honestly haven't done jack for us aside from telling us she has 5 ft of poo backed up in her.

With her being so restricted and her birthday only 3 weeks away I'm stressing about what to do for her birthday cake/cupcakes.

0

Share this post


Link to post
Share on other sites

With her being so restricted and her birthday only 3 weeks away I'm stressing about what to do for her birthday cake/cupcakes.

I am not extremely familiar with SCD so I'm just throwing this out there. Is there any cookie recipe that you can make? We made a cookie cake for my youngest because we couldn't figure out a safe cake to make. The one we made was a grain free vegan chocolate chip cookie made with honey from Elana's Pantry and instead of putting the chocolate chips into the dough I put them on top in the shape of Mickey Mouse's head since she was having a Mickey and Minnie party.

P.S. I hope that your daughter has a wonderful birthday and that you will both be healthy and happy.

0

Share this post


Link to post
Share on other sites

Alex11602- Their are a few cookie recipes in yhe book that ok going to make this weened to see if she likes them. Do you haopen to have a libk of the recipe you made? Sounds like my daughter can have everything aside the chocolate chips as sugar is a no no right now. But honey is okay!

Thank you I am very excited for her party! They grow up soo fast :/

0

Share this post


Link to post
Share on other sites

Goodness looks like I need more coffee this AM, you said where you got the recipe lol

Going to look at her website now!

Thank you!

0

Share this post


Link to post
Share on other sites

Alex11602- Their are a few cookie recipes in yhe book that ok going to make this weened to see if she likes them. Do you haopen to have a libk of the recipe you made? Sounds like my daughter can have everything aside the chocolate chips as sugar is a no no right now. But honey is okay!

Thank you I am very excited for her party! They grow up soo fast :/

Chocolate chip cookies

I hope it will work for you. I just looked at the recipe again and it calls for agave nectar and I had changed it to an equal amount of honey and I used canola oil instead of grapeseed. And I hear you on the sugar thing...honey is the only one I can handle.

0

Share this post


Link to post
Share on other sites

Doctors (and the medical tests they use) don't know everything. It was just a very short 60 years ago that the polio vaccine was developed. Heck, bloodletting was still in use in the 20th century! Listen to your body...it knows...

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,534
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined