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Symptoms & Questions


sora

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sora Community Regular

I'll start this by saying the only thing I know for sure is that I am allergic to wheat. And this is going to be long.

I have to wait until end of June for testing and to get any official diagnosis.

I have an appointment next week with my Doctor and was hoping for some suggestions as to what to go over with her. (She is very good).

Since being on this board I am seeing a lot of the same problems in my past to what I see here with many others. I can not eat gluten so will not have the celiac test.

Symptons I have had and some I still have.

Migraines entire life

Eye irritation, blurry vision

foot cramps, toes

numb fingers, toes

Diagnosed Carpel Tunnel

Swollen fingers at the slightest use, right index finger always swollen

sore finger joints, right hand mostly

Very bad teeth problems at a very early age

low blood pressure

skinny with big pot belly

early menopause After 2nd child at 38

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, left side of head (no rashes)

Never seem to be comfortable, either cold or too hot, heat flashes

sleep apnea, restless leg, constant waking

sometimes when laying down I feel like my head weighs 1000 pounds and my pillow feels like cast iron. :ph34r:

also had a lot of things that I put down to aging like memory loss, dry skin etc.

Last 5 or so years less and less tolerant of high fiber foods.

This one is curious, sometimes, not often, if I try to swallow too large a bite of food (doesn't have to be too big) It get partway down and it feels like a chunk of glass. Very sharp and will bring tears to my eyes. This has only happened about three or four times a year. I mentioned this to my sister once and she said "Oh, that runs in the family, we have a narrow esophagus." I passed it off at the time as it didn't happen often. Then my father died from esophagus cancer and last year my brother had the same thing and had a surgery and so far so good. I do not have close relations with my family but I am trying to find out more info on this.

I have been gluten-free for 3 months now and have new symptoms. off and on acid reflux, lots of belly rumbling but I am putting this down to being new and not completely having it all sorted out yet re vitamins, learning intolerances etc.

Any thoughts anyone? Thanks.

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Metoo Enthusiast

I'll start this by saying the only thing I know for sure is that I am allergic to wheat. And this is going to be long.

I have to wait until end of June for testing and to get any official diagnosis.

I have an appointment next week with my Doctor and was hoping for some suggestions as to what to go over with her. (She is very good).

Since being on this board I am seeing a lot of the same problems in my past to what I see here with many others. I can not eat gluten so will not have the celiac test.

Symptons I have had and some I still have.

Migraines entire life

Eye irritation, blurry vision

foot cramps, toes

numb fingers, toes

Diagnosed Carpel Tunnel

Swollen fingers at the slightest use, right index finger always swollen

sore finger joints, right hand mostly

Very bad teeth problems at a very early age

low blood pressure

skinny with big pot belly

early menopause After 2nd child at 38

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, left side of head (no rashes)

Never seem to be comfortable, either cold or too hot, heat flashes

sleep apnea, restless leg, constant waking

sometimes when laying down I feel like my head weighs 1000 pounds and my pillow feels like cast iron. :ph34r:

also had a lot of things that I put down to aging like memory loss, dry skin etc.

Last 5 or so years less and less tolerant of high fiber foods.

This one is curious, sometimes, not often, if I try to swallow too large a bite of food (doesn't have to be too big) It get partway down and it feels like a chunk of glass. Very sharp and will bring tears to my eyes. This has only happened about three or four times a year. I mentioned this to my sister once and she said "Oh, that runs in the family, we have a narrow esophagus." I passed it off at the time as it didn't happen often. Then my father died from esophagus cancer and last year my brother had the same thing and had a surgery and so far so good. I do not have close relations with my family but I am trying to find out more info on this.

I have been gluten-free for 3 months now and have new symptoms. off and on acid reflux, lots of belly rumbling but I am putting this down to being new and not completely having it all sorted out yet re vitamins, learning intolerances etc.

Any thoughts anyone? Thanks.

As far as the new symptoms belly rumbling...etc. I am at 3 months gluten free also. I have found I have had to give up eggs in the last month and cut down on raw dairy. I have had new skin trouble, and I have had to be super careful about gluten, vitamins, face moisturizer. So at least to me it seems normal to have new symptoms. Once I have been more dilligent about those things, things seem to calm down again.

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jeanzdyn Apprentice

These are most of my symptoms, the major noticable ones at least:

Migraines in last 5 years

Eye irritation, dryness, itching

foot cramps, toes

numbness in fingers and toes

Swollen finger joints

sore finger joints

burning pain in shoulder joints

burning sensation in back of throat with post nasal drip

Very bad tooth decay starting at an early age

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, upper back(no rashes)

possible sleep apnea, waking too early

gastrointestinal discomfort much of the last 5 months, before frequent distress

dry hair, a lot of breakage

stomach and intestinal rumbling

also had a lot of things that I put down to aging like memory loss, dry skin

For many years I have had intestinal "rumbling", other people have even heard the rumble or gurgle. I used to think that it was either something wrong with my digestive organs or some kind of food allergies.

I was diagnosed with celiac disease about 2 months ago.

I don't know about your newer symptoms, as I have only been gluten-free a short time. Have you talked to your doctor?

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sora Community Regular

These are most of my symptoms, the major noticable ones at least:

Migraines in last 5 years

Eye irritation, dryness, itching

foot cramps, toes

numbness in fingers and toes

Swollen finger joints

sore finger joints

burning pain in shoulder joints

burning sensation in back of throat with post nasal drip

Very bad tooth decay starting at an early age

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, upper back(no rashes)

possible sleep apnea, waking too early

gastrointestinal discomfort much of the last 5 months, before frequent distress

dry hair, a lot of breakage

stomach and intestinal rumbling

also had a lot of things that I put down to aging like memory loss, dry skin

For many years I have had intestinal "rumbling", other people have even heard the rumble or gurgle. I used to think that it was either something wrong with my digestive organs or some kind of food allergies.

I was diagnosed with celiac disease about 2 months ago.

I don't know about your newer symptoms, as I have only been gluten-free a short time. Have you talked to your doctor?

I have another doc appt. next week.

I forgot about my back itch. That has gone since going gluten-free and my head itch/burn has finally eased off since changing shampoo, conditioner and hair gel. My head will itch all over if get CCed or have a wheat reaction but it will go away after a few days.

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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