Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

All Puffed Up; Feeling Sick Again. Depressed.
0

5 posts in this topic

:( I've been gluten-free for almost three weeks now, I keep telling everyone how wonderful the change has been, but now I'm afraid I'm going to lose face. I woke up this morning with a swollen face, huge belly, fatigue/drowsiness, and bulky, painful stools. I don't think I went off the diet; in fact, I've been quite careful. I'm almost certain I didn't make any mistakes. My family is so tired of my being sick, and they seem to like the new me. I almost feel as though it's my own fault, thet I'm reverting to old habits of laziness and hypochondria or something. But I know that it's physical; one look in the mirror and into the toilet tells me that!

Can anyone help with some encouraging words?

Kate

0

Share this post


Link to post
Share on other sites


Ads by Google:
:) You will get better. You're already a little better right? You probably have more energy. Maybe you haven't removed absolutely everything. It takes a long time to totally eliminate everything. Gluten is sneaky. I remember how long it took me to figure out that there's gluten in Rice Dream milk. (It's in the fine print). Maybe you have a problem with dairy. When I ingest dairy, I blow up like I'm 9 months pregnant. Also, dairy gives me horrid gastrointestinal problems just like gluten. I promise you're going to feel better and better by the day as you get rid of more and more gluten, and as you find more and more food you can eat. Hang in there. Sandra
0

Share this post


Link to post
Share on other sites

Hang in there. Symptoms will not go away overnight. I was not normal until 8 months gluten free but I felt alot better after the 3rd month. Everyone is different so just stick with it and your body will work at it's own pace.

Also, have you looked into checking cosmetics, shampoos, lotions, soaps, and other products to make sure they are gluten free as well?

0

Share this post


Link to post
Share on other sites

Yeah, do hang in there and try removing dairy for few weeks. If that doesn't work, try corn next, then rice. I really don't think there are many hypochondriacs in this world. Just a lot of skeptics.

0

Share this post


Link to post
Share on other sites
:( I've been gluten-free for almost three weeks now,  I keep telling everyone how wonderful the change has been, but now I'm afraid I'm going to lose face.  I woke up this morning with a swollen face, huge belly, fatigue/drowsiness, and bulky, painful stools.  I don't think I went off the diet; in fact, I've been quite careful.  I'm almost certain I didn't make any mistakes.  My family is so tired of my being sick, and they seem to like the new me.  I almost feel as though it's my own fault, thet I'm reverting to old habits of laziness and hypochondria or something.  But I know that it's physical; one look in the mirror and into the toilet tells me that!

Can anyone help with some encouraging words?

Kate

<{POST_SNAPBACK}>

Don't give up. Time will change it all and I think the advice of others to consider other allergens in the diet is so right on... Especially corn and dairy.

Still I think the best way to be less frustrated and get quicker results is to go to a holistic doctor and ask for a blood test that shows allergies in the form of IGG and IGE antigens to a whole realm of foods. This can be so much quicker and easier than elimination of trial and error. If you don't have holistic practictioners in your area search the web for this type of testing. There are labs out there that can do a great job. Also just consider getting checked for something called "leaky gut syndrome" I know it sounds to weird but it is becoming a mainstream thought. Look it up on the web for more info too. The smarter you are about autoimmune disease both from your regular MD and naturopathic type studies the sooner you will put the pieces of the puzzle together for yourself. Doctors on their own just don't have enough time even though they mean well. They also many times come with prejudices about their belief and what they have learned. We must remain open to all.... :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,120
    • Total Posts
      919,468
  • Topics

  • Posts

    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
    • I have Celiac, Hashi's thyroid disease, Sjogren's Syndrome and Reynaud's Syndrome.  All have gotten better, inflammation wise, after 11 years gluten free.  I am very strict with my diet, never take chances if I feel the food is not really gluten free and limit the number of times I go out to eat.  I am not saying I never go out but it is normal for my husband and I to not see the inside of a restaurant for 3-4 months at a time and then I only eat at the places that have never glutened me.  I am lucky in that the state I live in has 3 restaurant chains that are run/owned by Celiac's, so they get it right every time. You have not been gluten free for very long, in reality.  It took me three years to completely rid myself of all symptoms related to the disease.  I was 46 at the time of diagnosis.  I know it is hard to accept that healing can take that long but you have to measure it differently.  Looking back, you should feel better than you did a year ago.  As time goes on, healing slowly takes place until you realize that certain problems have disappeared.  It is not as cut and dried as taking an antibiotic for an infection. http://www.drweil.com/drw/u/ART03424/Elevated-Creactive-Protein-CRP.html  Read this article on elevated c reactive protein. It is by Dr. Weil, who is a Harvard trained physician who chose to go the more natural route to healing people.  All his stuff is interesting.  Yes, your elevated level will most likely come down, as you heal better.  Pay attention to it but don't let it freak you out too much! 
    • Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test.  I am pretty sure they say 2 weeks on gluten for the gut endoscopy.  But usually people/doctors don't want to  do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten.  But nobody can tell you for sure.  If you can get you doctor to test you now and in 9 more weeks if you are negative now, that might work.  If the doctor is willing to do 2 tests, that would be great. The best thing would have been to do all celiac disease testing before going gluten-free.  But sometimes it doesn't work out that way. The University of Chicago celiac center has an FAQ that answers some of your questions. http://www.cureceliacdisease.org/faq/i-dont-have-the-money-to-get-tested-for-celiac-disease-but-a-gluten-free-diet-makes-me-feel-better-is-it-okay-to-start-the-diet-without-being-diagnosed/ Welcome to the forum!  
    • Couldn't have said it better!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,159
    • Most Online
      1,763

    Newest Member
    Anns
    Joined