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#16 AVR1962

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Posted 31 January 2012 - 10:30 PM

I think what we on the board try to do is get someone to cite their source. It's up to each individual person that's interested in the topic to go to the source and decide for his or herself if they feel it's valid enough to believe.

EXACTLY my point!
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

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#17 Aly1

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Posted 01 February 2012 - 06:42 AM

I think what we on the board try to do is get someone to cite their source. It's up to each individual person that's interested in the topic to go to the source and decide for his or herself if they feel it's valid enough to believe.


Oh don't take me the wrong way - I definitely see the value in asking people to cite their sources. It's all about how it's asked... some people are sounding a bit militant and I think it might disuade some people from bothering to post for fear they will be called upon to defend every little point. I definitively have held back from posting to certain conversations because I just don't have the energy to spar, and that's the tone that's been set on a couple of posts recently. I assumed that was what AVR 1962 was referring to.
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#18 Jestgar

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Posted 01 February 2012 - 06:48 AM

Oh don't take me the wrong way - I definitely see the value in asking people to cite their sources. It's all about how it's asked... some people are sounding a bit militant and I think it might disuade some people from bothering to post for fear they will be called upon to defend every little point. I definitively have held back from posting to certain conversations because I just don't have the energy to spar, and that's the tone that's been set on a couple of posts recently. I assumed that was what AVR 1962 was referring to.

Well, I see your point, but we are a mixed bag of folks, after all, with different styles. I know that when I've been glutened I have a hard time being anything but straightforward, which could easily seem militant in typing. I try to assume that others are the same, if a post seems just a bit snarky to me. If you see a post that you feel is beyond the normal snarkyness, feel free to either report it, or respond to the person politely explaining how their post came across. Often the person will apologize and say that they didn't mean it that way, or didn't realize how harsh their words sounded. Very few truly obnoxious people stick around for long - most really want to help, and be helped in return.
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#19 IrishHeart

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Posted 01 February 2012 - 06:58 AM

What I am here for is living breathing individual experiences that fill in the blanks where current research is lacking. Official research is icing for me, not a requirement...and if someone tells me that slipping b12 tabs into my bra each morning will give me a boost, I'll be sure to research it myself before proceeding! :)


:) smart chick!
The trick is for the reader to be able to differentiate between what is the "norm" and what is "unusual" in people's experiences.

You are wise enough to know the difference, obviously. :) --(although the real trick, Aly-- is to put the B-12 tabs in between your toes, not in your bra! ;) )

And you are so right---there is still much to be learned about gluten intolerance and celiac. We do rely on each other for knowledge that is lacking.

As many have tried to point out already, not all people reading this site are clear-headed. They are seriously ill. When I first came on, I read a few things that were misleading. (info about fruits and vegs, canola oil and food labeling). I thought I had all kinds of intolerances, was being glutened by things that could not possibly harm me, etc.--based on well-meaning but ill-informed people. How is a newbie supposed to know? Fortunately, other, more experienced posters cleared things up, but I was confused and needlessly alarmed. I am not stupid, but at the time, I was ill and malnourished and desperately trying to get well and would have taken any advice at all.

So when someone questions a post or a statement that seems unfounded, it is not always meant to be critical, it is a request for clarity for the protection of the general membership.

If someone is downright rude or snarky, well, that's a different matter and is unacceptable and that should be addressed. The average person will apologize if they are told their tone is out of line.

But I have also seen many cases where the poster was not at all rude, but the READER misinterpreted the intention of the post. I have also seen people on a gluten challenge for testing purposes be very defensive and emotional while posting and when they admit it, we all say "oh that explains it!" :huh: All is forgiven! :)

The written word is so easily misconstrued.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#20 Aly1

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Posted 01 February 2012 - 07:24 AM

:) smart chick!
The trick is for the reader to be able to differentiate between what is the "norm" and what is "unusual" in people's experiences.

You are wise enough to know the difference, obviously. :) --(although the real trick, Aly-- is to put the B-12 tabs in between your toes, not in your bra! ;) )

And you are so right---there is still much to be learned about gluten intolerance and celiac. We do rely on each other for knowledge that is lacking.

As many have tried to point out already, not all people reading this site are clear-headed. They are seriously ill. When I first came on, I read a few things that were misleading. (info about fruits and vegs, canola oil and food labeling). I thought I had all kinds of intolerances, was being glutened by things that could not possibly harm me, etc.--based on well-meaning but ill-informed people. How is a newbie supposed to know? Fortunately, other, more experienced posters cleared things up, but I was confused and needlessly alarmed. I am not stupid, but at the time, I was ill and malnourished and desperately trying to get well and would have taken any advice at all.

So when someone questions a post or a statement that seems unfounded, it is not always meant to be critical, it is a request for clarity for the protection of the general membership.

If someone is downright rude or snarky, well, that's a different matter and is unacceptable and that should be addressed. The average person will apologize if they are told their tone is out of line.

But I have also seen many cases where the poster was not at all rude, but the READER misinterpreted the intention of the post. I have also seen people on a gluten challenge for testing purposes be very defensive and emotional while posting and when they admit it, we all say "oh that explains it!" :huh: All is forgiven! :)

The written word is so easily misconstrued.



It's so true, sometimes we read things into people's posts that aren't there. Generally I have to say that this board is overwhelmingly positive, friendly and supportive. I think it's a special place that way. I have been on another board that a handful of people turned into a pretty negative place to be. So my view just may be a bit colored by that experience!
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#21 Aly1

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Posted 01 February 2012 - 07:25 AM

Oh and thanks for the heads up that the B12 should be between my toes! I will give that a try. :)
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#22 IrishHeart

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Posted 01 February 2012 - 07:35 AM

Oh and thanks for the heads up that the B12 should be between my toes! I will give that a try. :)



:lol: you bet.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#23 Bubba's Mom

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Posted 01 February 2012 - 09:34 AM

I've noticed a couple of posts too, that seemed to be worded a bit harshly..and like Aly,in some of them I read the posts but didn't put my 2 cents worth in. I don't think AVR is just imagining it?
I debated about mentioning one in particular..but here goes, because one stood out to me. The thread on alcohol is one of them. She posted a link about how alcohol *could* interfere with some digestive/absorption issues. The study was mainly about alcoholics, but several points in it could apply to a damaged intestine, whether by alcohol or another substance? Just something to ponder?
I bit my tongue on that topic.
There are a couple of other topics as well.

I find this board to be a fabulous fountain of information. I appreciate the wealth of info here, along with the anecdotal posts of things that have helped others in their journey back to health. I'm deeply grateful for these posts.

If someone makes an outragious claim I'm glad that the level heads here debunk it. BUT if someone runs across some info or a theory and wants to add it for discussion or consideration, or they have found something that helps them in their healing, or have found little things that they felt delayed their healing I find that useful too.

We are all on a similar, yet different journey because our bodies, symptoms, and the amount of healing we need to do is so varied. Some of the helpful info here isn't easily found by a newly DXed, confused and frightened person, who's just gone into overwhelm.

I know the written word can be taken differently than intended. We can't hear the person's "tone" or read their facial expressions, or body language when reading the written word. I know sometimes we try to "condense" the point we are trying to make and that might come across as terse when it's not meant to?

So IMO we are all here to find answers and give answers. We are all a wonderful bunch..doncha think?
((group hug))

I'm also SO glad that I don't have to keep the B12 in my bra. It fell out..and landed between my toes! LOL :D
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#24 Skylark

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Posted 01 February 2012 - 11:00 AM

If it was my reaction to a 15-year old review article that set this off (which I suspected from the moment I saw the post), you might notice I apologized in the thread.

I thought you had to crush the B12 and sprinkle it into your bra as powder? :D
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#25 Jestgar

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Posted 01 February 2012 - 11:11 AM

I thought you had to crush the B12 and sprinkle it into your bra as powder? :D

You people!!! :angry: :angry: :angry: :angry:

If you were to bother to educate yourselves and read all the science I have read but can't be bothered to look up right now, you'd realize that NONE of your B12 remedies will work UNLESS you expose the tablets to the full moon as close to the spring equinox as possible AND you can only purchase them from the site that charges you twice as much, but guarantees that they've been chanted over to remove residual evil from the manufacturing process (touching metal and all that).

No wonder none of you are getting any better. <_<
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#26 Korwyn

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Posted 01 February 2012 - 01:59 PM

You people!!! :angry: :angry: :angry: :angry:

If you were to bother to educate yourselves and read all the science I have read but can't be bothered to look up right now, you'd realize that NONE of your B12 remedies will work UNLESS you expose the tablets to the full moon as close to the spring equinox as possible AND you can only purchase them from the site that charges you twice as much, but guarantees that they've been chanted over to remove residual evil from the manufacturing process (touching metal and all that).

No wonder none of you are getting any better. <_<


I thought there was a goat sacrifice involved..... :blink:
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#27 beebs

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Posted 01 February 2012 - 02:24 PM

I think people are people, sometimes people are grumpy, sometimes they take things the wrong way etc. I'm not sure there is a really nice way of saying someone is wrong? Obviously they think they are right. and most people get defensive when they are called into questions I think. I just leave it - even if someone is glaringly wrong about something I'll let others say something because I can't be bothered arguing over things. Having said that - this is by far one of the the nicest forums I have ever been on. You want to see mean, bitchy and critical? Log onto mothers forums - I swear - they are something else :lol:
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#28 Aly1

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Posted 01 February 2012 - 03:50 PM

I think people are people, sometimes people are grumpy, sometimes they take things the wrong way etc. I'm not sure there is a really nice way of saying someone is wrong? Obviously they think they are right. and most people get defensive when they are called into questions I think. I just leave it - even if someone is glaringly wrong about something I'll let others say something because I can't be bothered arguing over things. Having said that - this is by far one of the the nicest forums I have ever been on. You want to see mean, bitchy and critical? Log onto mothers forums - I swear - they are something else :lol:


Yes Beebs, it was mommy forums I was referring to in my earlier post! Hormones...!
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#29 beebs

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Posted 01 February 2012 - 03:52 PM

The worst hey? I ended up getting so stressed on one I had to leave because it was making me anxious!!! haha~
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#30 Aly1

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Posted 01 February 2012 - 03:54 PM

I thought you had to crush the B12 and sprinkle it into your bra as powder? :D


I tried that. My boobs got bigger but I was still feeling lousy.
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