I think people are people, sometimes people are grumpy, sometimes they take things the wrong way etc. I'm not sure there is a really nice way of saying someone is wrong? Obviously they think they are right. and most people get defensive when they are called into questions I think. I just leave it - even if someone is glaringly wrong about something I'll let others say something because I can't be bothered arguing over things. Having said that - this is by far one of the the nicest forums I have ever been on. You want to see mean, bitchy and critical? Log onto mothers forums - I swear - they are something else
Problem with not saying anything is that everyone ends up thinking the can't lick envelopes or drink tea because of imaginary gluten! The Internet is a very weird place.
Little do they know that vitamin B12 manufactured during a full moon that has been put in the trunk of a hollow oak tree for six months and then homeopathically treated with the color blue would let them lick envelopes without fear.
If it was my reaction to a 15-year old review article that set this off (which I suspected from the moment I saw the post), you might notice I apologized in the thread.
I thought you had to crush the B12 and sprinkle it into your bra as powder?
My husband has volunteered to do this for me. What a guy!
I don't think a single forum exists out there with *no* drama - and if it does, it only has a single member. I run a forum, I get how difficult it can be to maintain the peace. I think this one has seemed quite nice and welcoming thus far, but I'm used to boards full of catty bored women. People need to do their best to type as though they were speaking to one face to face... beyond that? Taking the good and leaving the bad is my best advice.
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I'm Melissa. I am 26, diagnosed in August 2008. I'm a photographer and a blogger, too. :)
Little do they know that vitamin B12 manufactured during a full moon that has been put in the trunk of a hollow oak tree for six months and then homeopathically treated with the color blue would let them lick envelopes without fear.
OK guys! I want to see some valid research on this B12 stuff! Please include your pics of aliens or the Yeti.
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day." ― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.”
When I took a sublingual B12 ( it must not have had the full moon Rx) an alien took ahold of my body and threatened to feed me to the Yeti. I pleaded and said "no, no, not the Yeti," and he said "Oh, all right, I'll just give you a face full of acne". Do you think it was a glutenized alien that he was able to summon forth acne like that? I'm sorry, I have no pics for documentation, either of the alien or the acne and fortunately didn't get as far as the Yeti.
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Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
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Caffeine free 1973 Lactose free 1990 (Mis)diagnosed IBS, fibromyalgia '80's and '90's Diagnosed psoriatic arthritis 2004 Self-diagnosed gluten intolerant, gluten-free Nov. 2007 Soy free March 2008 Nightshade free Feb 2009 Citric acid free June 2009 Potato starch free July 2009 (Totally) corn free Nov. 2009 Legume free March 2010 Now tolerant of lactose
If I didn't know better, I would say there was a full moon rising in these recent days.
I used to make fly by pass and post a response to a questions when I checked my computer. Now, I have to think, analyze and think again, to insure it's dissection won't be too painful. And yet, I still don't get it right. Now that's not right, I'm sorry to say. It saddens me, terribly.
Sometimes words expressed, are hiding the brokenness we have all felt at times in our lives. We should respect that more when we choose to respond and lighten up a bit. IMHO.
People need to do their best to type as though they were speaking to one face to face... beyond that? Taking the good and leaving the bad is my best advice.
Well said.
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Janet
Experience is what you get when you didn't get what you wanted.
I don't think a single forum exists out there with *no* drama - and if it does, it only has a single member. I run a forum, I get how difficult it can be to maintain the peace. I think this one has seemed quite nice and welcoming thus far, but I'm used to boards full of catty bored women. People need to do their best to type as though they were speaking to one face to face... beyond that? Taking the good and leaving the bad is my best advice.
catty bored women
sounds like the drivel they call "daytime TV"
Hurrah!! Another voice of reason for the fold! Welcome, kiddo!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love." Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Now, I have to think, analyze and think again, to insure it's dissection won't be too painful. And yet, I still don't get it right. Now that's not right, I'm sorry to say. It saddens me, terribly. Sometimes words expressed, are hiding the brokenness we have all felt at times in our lives. We should respect that more when we choose to respond and lighten up a bit. IMHO. [/quote]
Beautifully said, Lisa.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love." Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Hurrah!! Another voice of reason for the fold! Welcome, kiddo!
haha! Yes, so true. The internet has allowed a new world to open up - those daytime tv shows have lost some of their viewership to things like mommy forums and scrapbooking message boards.
Thanks! Glad to be here.
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I'm Melissa. I am 26, diagnosed in August 2008. I'm a photographer and a blogger, too. :)
Peter Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. Type 1 (autoimmune) diabetes diagnosed in March 1986 Markham, Ontario (borders on Toronto)
One other point I forgot to make: The whole thing about backing every little thing up with official research. Research in the area of GI is really far behind what many of us on here already know. If we only followed published research, then those of us with NCGI would not have "existed" before 2009, and largely still don't if you look at the medical community at large. So while I always appreciate having research to back things up, for me I think there is a grayer area where people's personal experience is really valuable. If all I wanted was PubMed docs I could get that elsewhere. What I am here for is living breathing individual experiences that fill in the blanks where current research is lacking. Official research is icing for me, not a requirement...and if someone tells me that slipping b12 tabs into my bra each morning will give me a boost, I'll be sure to research it myself before proceeding!
I sooooo agreee!!!! BRAVO! Also....You know GUYS....theres allways the negitive button. I overstepped once when I was first diagnosed...but the moderators sure put me if my place! I was sooo offended by what someone had done that I said something...and was told that it was a miss understanding.But being still glutened and irritable and very emotoonal ...I remember it felt like such a harsh slap in the face ..especialy that (-) mark glaring at me! I felt so hurt (the gluten again) I allmost didn't come back! But I realized I was being over emotional and appologized to the poster and the board in general!I remembered feeling like EVERYONE was AGAINST me! It was Just me though....noone else even cared! It's easy to get to emotoanal...selfcentered..and whatnot when your sick...it's part of our disease...we have embalances...no one day is the same! and we should allways take that into acount..you never know where people are mentaly when they write things...they probably have no IDEA how there coming off! Look at KARANG...LOL she comes off harsh sometimes ..but extreamly caring and sweet at other times...once I got to know her better...I realized she just has a very sharp wit(Dry sence of hummor) But is actually a very nice person! But like I said...Its easy to take offense (and misspell..LOL)...But if your REALLY ERKED...USE THE NEGITIVE BUTTON!!! ( p.s. Heart you KARANG...don't take this the wrong way...your just a good examle because you come across harsh sometimes..LOL..and your not the ONLY moderater either...but once you get to know a persons personality better, it's not so harsh!)
Favorite quotes- "I know you think you understand what you thought I said, But I'm not sure you realize that what you heard is not what I meant!!!"-anonyamous
"you can lead a donkey to the river...but if you want him to drink... you have to throw him in" -(21 yr.old son)
The Internet is a very weird place.
