Got My Results...strange And Unbelievable!
Posted 30 January 2012 - 12:07 PM
Posted 30 January 2012 - 12:42 PM
So I had my testing (colonoscopy & EDG) done 2 weeks ago and was told in recovery that I had erosive gastritis and 4 polyps removed. They were to call me in a week with the biopsy results. Today I called them and said I never received a call with my results. A nurse gets on the phone and reads me my results. The polyps were pre-cancer as opposed to benign. And oh by the way your colon shows changes so you need to stop your excessive use of laxatives. What??? I've never used laxatives! Why would my colon show changes and what does that mean? She stutters and says "well I don't know". Have you ever heard of such a thing? I did tell the nurse that I've been gluten free for 2 weeks and the stomach pains have almost stopped. Seems like more of no one knowing what the problem is......
Get copies of everything - the op or procedure report and the pathology reports. Read them yourself. What did they say to do about the polyps? My hub was told a repeat colonoscopy in 1 year. You should insist on a follow- up with the GI right away. To say your colon looks like its been abused has to mean something if you aren't doing anything. What were the results from the endoscopy. Make sure they really biopsied.
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Posted 30 January 2012 - 01:29 PM
Also, be sure to get copies of the reports. Keep a file of your medical info/test results. Sometimes we are told things by an untrained person who happens to answer the phone, that aren't true or are half true?
I had colo-rectal cancer and had to have a colonoscopy 1 year after surgery for a recheck. Thank goodness they found your polyps before they were cancerous.
They should tell you when to have a recheck. Don't freak out about it. That sort of cancer is slow growing, so if they keep an eye on things it's nothing to be fearful of.
Stay with the gluten free. It sounds like it's helping you?
Posted 30 January 2012 - 03:20 PM
Posted 30 January 2012 - 03:39 PM
First they take out my gallbladder telling me that was my problem. Then they say I have lupus.. No wait , maybe not. Then hastimoto, then osteopenia. Now this... Who knows what the real issue is at this point but the ten year rash on my hand is healing gluten free so if nothing else, that helped! Thanks so much !! I'm glad I found this website , it's been so helpful!
All the things I have put in bold are indications that you are celiac, including the false diagnosis of possible lupus.
If you have osteopenia it is a good indication that you are not absorbing nutrients from your foods, and that those levels (vitamins and minerals, including iron/ferritin) need to be checked. Osteopenia is a sign you are low in Vitamin D. Did you learn this through a bone scan and did they give you supplements for it? The sooner you get a copy of all your lab results and pathology the better, and please tell us what they say.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 30 January 2012 - 04:57 PM
Posted 31 January 2012 - 07:33 AM
You sound like so many of us here with the 20 years of no diagnosis/misdiagnosis. My Dr. had me pegged as a hypochondriac and kept telling me there was nothing wrong with me.
I will definitely get the report. I do feel better gluten free so regardless I think that's the new eating. And I think I'm going to get a second opinion. I only hope they can read the results without another colonoscopy . The nurse said I would not need another for 3 yrs. but then she's the one who told me to stop my excessive laxative use! So frustrated that I've had issues for 20 yrs and I just keep getting the run around. First they take out my gallbladder telling me that was my problem. Then they say I have lupus.. No wait , maybe not. Then hastimoto, then osteopenia. Now this... Who knows what the real issue is at this point but the ten year rash on my hand is healing gluten free so if nothing else, that helped! Thanks so much !! I'm glad I found this website , it's been so helpful!
A LOT of your other issues go right along with Celiac disease. Most Dr.s don't even think to check for Celiac. Many still think of it as a rare disease.
Stay the course of gluten-free and your future health should improve.
Best wishes to you...
Posted 01 February 2012 - 04:43 PM
Posted 02 February 2012 - 03:57 PM
Posted 02 February 2012 - 04:50 PM
Posted 02 February 2012 - 05:42 PM
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