Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Other Allergies And False Tests?
0

4 posts in this topic

I have been reading if your endomysial antibody test was postive then you almost 100% have celiacs. I guess I am confused why they even biopsy then! When my 11 yr old was biopsied, they also found eosinophilic esophagus which is caused by a food allergy. We had no clue. When tested, she was postive for all beans, all peas, apples, rice, oats, tree nuts, mustard, and pork. (These show no outward reaction!) So in addition to gluten, we have cut all of those out, too! Her biopsy showed "inflamation and ulcers" in the same place as the "simplification of the villi". My question is ....."I have read here that other allergies can cause high TTG level (she was 7)but can food allergies cause positive andomysial antibodies, too. We have a 2nd opinion next week since the doctor told me it was not typical and "in my opinion she has celiacs". Ok, so we will get another one just to make sure. But I have gone gluten free for the past month for her. Not risking it. Anyone know anything about other allergies, too?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have been reading if your endomysial antibody test was postive then you almost 100% have celiacs. I guess I am confused why they even biopsy then! When my 11 yr old was biopsied, they also found eosinophilic esophagus which is caused by a food allergy. We had no clue. When tested, she was postive for all beans, all peas, apples, rice, oats, tree nuts, mustard, and pork. (These show no outward reaction!) So in addition to gluten, we have cut all of those out, too! Her biopsy showed "inflamation and ulcers" in the same place as the "simplification of the villi". My question is ....."I have read here that other allergies can cause high TTG level (she was 7)but can food allergies cause positive andomysial antibodies, too. We have a 2nd opinion next week since the doctor told me it was not typical and "in my opinion she has celiacs". Ok, so we will get another one just to make sure. But I have gone gluten free for the past month for her. Not risking it. Anyone know anything about other allergies, too?

The endomysial antibodies are specific ONLY to celiac. She has celiac. They confirm by biopsy because it is at this point the only 'official' way to diagnos it, as well as to survery damage so they have a comparison for later.

There is a link between EE and celiac, it was recently in the news. I brief google search brought up this: http://www.ncbi.nlm.nih.gov/pubmed/19841598

1

Share this post


Link to post
Share on other sites

What Meetoo said!

Also, there are a growing number of doctors calling to relax the endoscopy requirement for people who have positive EMA or DGP tests and respond to the diet because the tests are so specific for celiac. A biopsy is useful because it lets your doctor see what's going on and establish a baseline. Plus as you saw, sometimes they catch other issues.

I have never read of allergies causing TTG at a legitimate medical site. It doesn't make scientific sense either, since TTG is autoimmune. TTG can appear alone (without EMA or gluten-related antibodies) in other autoimmune diseases and in inflammatory bowel disease.

Celiac is permanent and she will never be able to eat gluten, but once your daughter is feeling better she may be able to tolerate foods that she is allergic to now.

0

Share this post


Link to post
Share on other sites

We have a laundry list of food allergies and Celiac. I have never been told/read/heard that allergies can elevate TTG's. I asked Dr. Fasano this question in person and he said no as well.

The connection with EoE and Celiac is interesting. I will keep that in mind if we ever decide to scope again!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,908
    • Total Posts
      919,593
  • Topics

  • Posts

    • Are M&Ms Gluten Free?
      Hi. Thanks for the reply. I read "wheat" on the packaging of the regular / plain M&Ms package. Not on the mini's package. I've never seen a package of mini-M&Ms. I've only seen them as ice cream toppings. I'll buy a pack and photograph what I read. Maybe this would be helpful? Thanks again, Olivia 
    • how long does it take to show signs of being glutened?
      My two year old son has been diagnosed with celiac for almost three months. So far, I think we have done well keeping him completely gluten free. Our biggest worry is cross contamination because he is so young and constantly putting his hands in his mouth. My question is, how long does it take to show signs that he was glutened? He complained of a stomachache yesterday before bed (I wasn't sure at the time if it was just a bedtime stalling technique) and also had two very messy diapers today. I've been racking my brain trying to figure out if he could have gotten glutened somehow, or maybe it's just a normal stomach issue for any kid. It would help if I knew the average time it took for symptoms to show up after someone has been glutened. Thanks!
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      Wasn't this some gossip rag nonsense from a few weeks back?  I think it's been proven false.  But, even so, why is celebrity gossip from unreliable sources here?  And I can't leave a comment on the actual article, because he approves and often edits the comment.
    • Recovery?
      Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies.  More than a couple weeks may be too long tho. As far as recovery, it varies from person to person.  The condition associated with celiac that you are thinking of is probably gluten ataxia.  Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles.  Generally it seems people consider nervous system healing / recovery to be a fairly slow process.  Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him.  I doubt it would hurt though.  The B-vitamins including B-12 are supposed to be very important for nervous system health.  Vitamin d is also important but make sure you take a supplement that is tested and reliable.  Check out https://labdoor.com/  for their review/test results.  Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms
      http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia
      http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage.  If a person has been off gluten for a while though, the tests are not much use.  The antibodies in the bloodstream start to drop off and may not be detectable anymore.  They usually say to eat gluten for around 12 weeks in that case before trying testing again.  I can understand why he wouldn't want to do that though considering his symptoms.  I am not sure it would be a good idea. Welcome to the forum and congrats on finding  away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.             
    • Genetic Results
      I have been looking for an explanation to what exactly I have, as my doctor just said that I have the genes that cause Celiac. They never went any further than that.... The wikipedia link makes some sense, but at the same time it does not. It almost seems like I have 1 full DQ2, and half of a DQ2?   Test: DQ Alpha 1 - 02:01,03 Test : DQ Beta 1 - 02:02,03:02 DQ Serologic Equivalent: 2,8 Method: Molecular typing of HLA antigens performed using reverse SSOP and/or SSP methods, reported as serological equivalents and low to medium resolution molecular values
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined