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Im Starting To Get P/o


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29 replies to this topic

#16 ndw3363

 
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Posted 02 February 2012 - 07:46 AM

Not sure if anyone mentioned this, but you may ask to have your stomach acid levels checked. This was happening to me ALL the time. And since you seem to feel better when you only have a salad or something else very low protein, it could be that your acid levels are too low (a very common problem for those with celiac). Once I started taking a HCl supplement with meals (I eat mostly protein and veggies anyway, so I take it with every meal), I noticed an amazing difference. I'm not sure why most traditional doctors tell everyone that it must be HIGH stomach acid causing their symptoms - they will tell you to take prilosec or whatever without even doing any testing. For some, that is the problem. But for others, like me, it was the opposite. The symptoms are almost identical. I did a google search on low stomach acid vs. high stomach acid - came across some great information. Hope you feel better soon!
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#17 Skylark

 
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Posted 02 February 2012 - 08:23 AM

AHA! Onions. Another piece to the puzzle? :o

My mom who has the fructose malabsorption reacts terribly to onions. They have a fructose polymer called fructans in them.
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#18 heidi g.

 
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Posted 02 February 2012 - 08:47 AM

I don't do too good with onions either. I'm on prilosec for too much stomach acid and I been addicted to pepto Bismol and it backs me up terribly and it feels horrible. I think it's alot of things. What about leaky gut? Could that be an issue with me as well? Alot of the time probiitics send me running to the bathroom and I usually thought that it's just cleaning me out until I read that to be a symptom of leaky gut as well. I actually have alot of those symptoms but I don't know how to fix it. I have to wait for new insurance to go back to the doctor.
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#19 Aly1

 
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Posted 02 February 2012 - 09:36 AM

AHA! Onions. Another piece to the puzzle? :o


Yes! You'd think at this stage it wouldn't surprise me but it's always the foods you least suspect, isn't it. I have to research what's related to onions and make sure there aren't other things lurking...
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#20 Aly1

 
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Posted 02 February 2012 - 09:40 AM

Hmmm, I don't know anything about leaky gut. Anyone else?
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#21 Korwyn

 
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Posted 03 February 2012 - 10:57 AM

I don't do too good with onions either. I'm on prilosec for too much stomach acid and I been addicted to pepto Bismol and it backs me up terribly and it feels horrible. I think it's alot of things. What about leaky gut? Could that be an issue with me as well? Alot of the time probiitics send me running to the bathroom and I usually thought that it's just cleaning me out until I read that to be a symptom of leaky gut as well. I actually have alot of those symptoms but I don't know how to fix it. I have to wait for new insurance to go back to the doctor.



Heidi,

Somebody above mentioned checking into LOW stomach acid. I would seriously check into this. I was on prilosec, nexium, tums, etc. for years. And even after going gluten-free/CF/SF it didn't completely clear up. Turns on my problem has been low stomach acid. And I had big clues years before but I'd never heard of such a thing. Now I take HCL with digestive enzymes with my meals, and I haven't had to touch pepto, tums, or any of the other things in over two years.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#22 Avalon451

 
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Posted 03 February 2012 - 12:19 PM

Hi, so sorry you're not feeling better! I've read so much, though, about people starting the gluten-free diet and then finding out that other things are reacting badly for them. Some people can't handle the gluten-free replacement foods like bread, pasta and bagels-- it's just too much starchy weirdness for your body to recognize that it's different from wheat.

One explanation I've seen, is that your body is so inflamed and wrecked up, that you just need a break from everything it has become sensitive to, to give it a chance to heal. The one really good "elimination" diet is also called "rare foods" or "caveman" diet, and it says basically you are better off eating things your body is not used to ( and therefore has not developed a sensitivity to) for 1-3 months. That way it has time to settle down and heal. Then you keep a food diary and add the foods back in, one at a time, and watch for your reactions to it. That way you can tell exactly what it is that bothers you, other than gluten.

It sucks to have such a limited diet for 3 months, but on the other hand, it's ONLY 3 months, compared to misery for the rest of your life.

Also, once your body has calmed down, often you can start tolerating things again that used to bother you before. You might be able to handle corn, dairy, etc. after a year or two.

Here's a link to that elimination diet article: http://www.drcranton...nation_diet.htm

Hope you feel better soon!
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Avalon

16 y.o. DD diagnosed with DH and celiac (positive blood and biopsies), January 2012
14 y.o. and 9 y.o. DDs, positive blood tests Jan. 2012, no biopsies; assumed celiac
Me, 47 y.o., lifetime of symptoms, negative blood and biopsy, assumed NCGI
DH 51, negative blood but went gluten-free with us anyway.
My husband is our best supporter!

#23 heidi g.

 
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Posted 03 February 2012 - 01:02 PM

Thanks Avalon
that's a great piece of advice. I will definitely try that! And the low stomach acid I will ask my doctor. Its confusing because I have acid and a sore throat when u wake up sometimes. Wouldn't that mean I have too much acid?
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#24 Korwyn

 
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Posted 03 February 2012 - 01:19 PM

Its confusing because I have acid and a sore throat when u wake up sometimes. Wouldn't that mean I have too much acid?


Not necessarily. Here is a link to one article. According to some other things I've read scattered around, low HCL can cause a condition where the sphincter at the top of the stomach can loosen up, causing the regurgitation of stomach acid. At one point I had started waking up sometimes choking on my own stomach acid after I would inhale it while sleeping. Terrified me every time. However, what I would suggest would be to try some enzymes (stopping the prilosec during the trial obviously) and see how you feel. If it appears to help, next time you visit a doctor, bring this up along with your experiment and ask to be tested for Hypochlorhydria. I have a specific brand that I've found works well for me, and if you like I'll post the link. I prefer this specific brand because I've never experienced any cross-contamination issues for gluten, and it also contains some other digestive enzymes.

On a related note though, don't take more than the recommended supplement amount as too much stomach acid can (obviously) cause damage.

"According to Jonathan Wright, MD, another cause of heartburn can be too little stomach acid. This may seem to be a paradox, but based on the clinical experience of a few doctors such as Dr. Wright, supplementing with betaine HCl (a compound that contains hydrochloric acid) often relieves the symptoms of heartburn and improves digestion, at least in people who have hypochlorhydria (low stomach acid). The amount of betaine HCl used varies with the size of the meal and with the amount of protein ingested. Typical amounts recommended by doctors range from 600 to 2,400 mg per meal. Use of betaine HCl should be monitored by a healthcare practitioner and should be considered only for indigestion sufferers who have been diagnosed with hypochlorhydria." (http://www.evitamins...and-supplements)

"Hypochlorhydria arises when the stomach is unable to produce hydrochloric acid (stomach acid). It is a greatly overlooked cause of problems - to the extent that in the UK at least nobody is testing or looking for it. It is especially common in those with ME/CFS/FM, and is known to be associated with childhood asthma." Dr. Sarah Myhill, MD. (http://www.prohealth...cfm?libid=13388)
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#25 heidi g.

 
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Posted 03 February 2012 - 06:19 PM

Did your stomach ever have spasms? I've woken up with my stomach lurching like I'm throwing up but I'm not. Or I have woken up swallowing a little bit of vomit. Its horrible
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#26 sreese68

 
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Posted 03 February 2012 - 06:47 PM

If you suspect fructose, you may want to cut out brown rice, brown rice pasta, and baked goods with brown rice flour. Even though it doesn't have fructose or fructans in it, a lot of people with fructose malabsorption can't eat it. It gives me terrible stomach pain that starts two days after I eat it. (I get C, so it takes a couple of days for my GI tract to show the symptoms of a food reaction.)
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Sharon
gluten-free March 2011
Failed gluten challenge May 2011
Diagnosed celiac 5/25/11

#27 Korwyn

 
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Posted 03 February 2012 - 09:16 PM

Did your stomach ever have spasms? I've woken up with my stomach lurching like I'm throwing up but I'm not. Or I have woken up swallowing a little bit of vomit. Its horrible


Not my stomach. I was having intestinal spasms though. I wasn't swallowing I was breathing it in. I would wake up from a sound sleep choking and unable to breathe from stomach contents I was breathing in.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#28 Di2011

 
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Posted 03 February 2012 - 09:38 PM

Thanks guys. I been making homemade chicken and rice soup and I seem to feel better the next day. But anything other than rice and steamed vegetables and salad seem to make me feel horrible. I know I can't tolerate soy and dairy that well or eggs. Can people be intolerant to sugar? Candy and sweets make me feel really bad too.


Sugar is bad.
Stick to the simple homemade chicken/lamb/beef & veg soups etc until you need.
After 10 months I still can not do "bagels" or other processed foods, even chocolate.
Be patient and persistent.
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#29 heidi g.

 
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Posted 05 February 2012 - 01:37 PM

Ok thanks guys. It makes me feel better to know that I have can try and fix it with your suggestions rather than just sitting her and suffering without a clue. I think stress has alot to do with it too.
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#30 heidi g.

 
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Posted 05 February 2012 - 01:41 PM

I really think it's corn because I just went to the movie theatre and ate some of their popcorn and now I feel extremely sick to my stomach and bloated in my intestines. I just get up and clean or do something to try and take my mind off it :/ horrible. But bright side, i found a premade, frozen gluten free pizza at whole foods i can't wait to buy when i feel better!
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