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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Pregnant And Eating Gluten
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8 posts in this topic

I am either gluten intolerant or have Celiac's. basically the doctor could not give me a definitive answer. regardless, gluten makes me lethargic at times...that being said I am almost 5 months pregnant and have found myself eating gluten a lot more than I normally would. I feel that it isnt effecting me as it did before...so stupidly, I grab gluten stuff when I am out and about.

I am now terrified that my baby is going to have birth defects. I think I was under the impression that the placenta would protect him/her, but now am worried that I am not absorbing all the prenatal vitamins since I am eating gluten. I am freaking out and could really use a non-judgmental response. I have two other children who are healthy and thriving so I am just confused too. Thanks very much.

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this is a tuff one.. only because once u go 100% gluten free- your body seems to be more hypervigilant and then your reactions from eating it *COULD* become more extreme. ??? but at the same time- if you are gluten intolerant or have Celiac-> then, continuing to eat gluten could harm your baby. Not because it will go thru the placenta and hurt the baby, but because it will harm u- and make u unable to absorb vitamins & nutrients... at least that's how i understand it... if eating gluten, when you are intolerant, can affect your fertility.. then it's not very safe to eat while pregnant... that being said- im sure many have had healthy pregnancies while never ever knowing they had gluten intolerance and never abstaining... there's a huge spectrum.

im a little out of the loop, so i hope someone else will reply here... good luck!

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u should at least cut most of it out... it's not healthy for u... hope u get more helpful replies

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If there is a chance you are celiac, you need to get off gluten 100%. It will ease your mind, and you can be sure you are absorbing vitamins.

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Birth defects? Not likely. Screamy, colicky baby with ear infections, reflux and funky rashes? Quite likely. Don't worry that you have done permanent damage, the majority of us were un dx celiacs eating gluten thru pregnancy. But do yourself and your little one a big favor and go gluten free from here on out. You will both feel better!

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My mother had undiagnosed celiac when she was pregnant with me....and I was born with Ricketts due to my mother's malabsorption of Vitamin D and calcium. Would it have been better for her to have eaten gluten free? Most definitely!

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"Birth defects? Not likely. Screamy, colicky baby with ear infections, reflux and funky rashes? Quite likely. Don't worry that you have done permanent damage, the majority of us were un dx celiacs eating gluten thru pregnancy. But do yourself and your little one a big favor and go gluten free from here on out. You will both feel better! "

Yup, that ties in with my experience. Add in a severe lactose intolerance with one child too, and I couldn't manage to breast feed her (she was so tiny and I was a hopeless, exhausted first time Mum). Both my children were unusually small babies (just six pounds nothing each time), even though I am average size at 5'4", weighing 125 lbs before pregnancy and gaining about 25lbs during pregnancy. Second baby had sleep problems and recurrent ear infections.

Be extra vigilant for iron deficiency during pregnancy, even after you go gluten free.

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Birth defects? Not likely. Screamy, colicky baby with ear infections, reflux and funky rashes? Quite likely. Don't worry that you have done permanent damage, the majority of us were un dx celiacs eating gluten thru pregnancy. But do yourself and your little one a big favor and go gluten free from here on out. You will both feel better!

This was my youngest son except he didn't have the ear infections but recurrent rhinosinusitus with the rest of it. By eliminiting the things in my diet I knew bothered him(rice, oats, dairy, tree nuts) is what eventually lead me to find out I had celiac(I was gluten light without even knowing it). Weird how things come full circle, because my son was diagnosed with celiac when he was almost six. I am convinced now that all his trouble was gluten related even as a baby.

I had both my boys before I knew I had celiac. They were born healthy at 8 lb 4 oz and 8 lbs 8 oz. You just need to try and eliminate it the best you can. Your health is dependent on you taking in the vitamins and minerals. You want to feel your best after he/she is born so you have the energy to take care of them and your other children.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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