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We Need To Start A Thread On Stupid Stuff Doctors Say!
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This was years ago, but the only thing off during the testing at a yearly physical was extremely low cholesterol levels. Despite that my doctor asked me if I was a vegetarian and my answer was no, and that I had never been, his treatment recommendation was "Eat more steak." and he sent me on my way.

For years I complained that I had abdominal pain. I can't tell you how many times I've been tested for the same three STDs without the doctors telling me that they are going to run the tests, if I've been tested before, or if I've done anything to acquire an STD. Most of the time, I find out that they've run the test when I get the bill for the lab work! Of course, that is better than the doctor who insisted that I must have been raped.

I have dozens more, but they are all pretty depressing and I don't want to revisit them. I have yet to find a doctor that I respect.

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My Doc humiliated me, talked to me like I was a child, and told me Celiac is an allergy to wheat. (and he's the one that diagnosed me) I feel like I did or said something wrong. Sorry, I just need to have a little pity party right now:(

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My Doc humiliated me, talked to me like I was a child, and told me Celiac is an allergy to wheat. (and he's the one that diagnosed me) I feel like I did or said something wrong. Sorry, I just need to have a little pity party right now:(

 

I started seeing doctors when I was 15 years old for severe and debilitating joint and muscle pain (among a myriad of other gloriously awful symptoms), it was ruining my life before I even really had one!  I was tested over and over again for RA (despite the several negative tests before each one, doc thought, well, let's try ONE more time...), one doctor told me at 16, it's just growing pains, you'll grow out of it.  At 18 a doctor told me, well, you're abnormally flexible (I was a gymnast for years before I hit puberty and it all went downhill from there lol) and that's the price I had to pay for that "gift".  At 20 a doctor I hadn't seen before put down her notes, looked right at me and said, "I'm not prescribing you any narcotics, so know that before we proceed"...the best part is I wrote on my medical history form, I don't take opiates because I can't stand the effect they have on me...  The last doctor I saw before I gave up and researched, reached out to the gluten-free community and then ultimately went gluten-free on my own, well, the last doctor responded to my multiple requests to be referred to a GI specialist for testing (my insurance required that darn referral) by saying, "you're more likely to die in a plane crash than have celiac, that's definitely not whats happening here.   You just have fibromyalgia and IBS and depression and ADHD, have 6 prescriptions and call me in the morning."  ...well, that last part wasn't a direct quote, but pretty much.  I've pretty much given up on doctors for help diagnosing my issues, I get my anti-depressant/ADHD meds from him every month and call it a day.  Western medicine, by a large majority, is a straight up joke!! I'm coming up on 4 years gluten free and have never felt healthier in my life, so they can take their "clinical" diagnosis and shove it you know where, no one wanted to help me when I needed it so I fixed the problem before they got around to testing me for it.  Absurd!

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My first real experience with a dr (aside from check-ups) was when I broke a finger as a 7 year old and my pediatrician told us it couldn't possibly be broken because I didn't seem to really be in pain, and x-rays "weren't worth it." so I walked around with a broken finger for 6 weeks until we finally went back to see an orthopedist since it still hadn't healed...and I have to say docs have been pretty consistent in disappointing me/meeting my VERY low expectations since then : )

 

I do give a lot of credit to the PCP i went to see who thought to test me for celiac this past after I told her that I was having lots of stomach pains and trying to eat healthy by "eating lots of whole grans," whoops. But minus 1000 points for when the results came back she called to tell me i "tested positive for gluten" and that I should stay away from it for maybe a year and then "I could probably go back to eating gluten again." Thankfully I'm cynical about drs that I asked her to see the actual results, researched the tests online and emailed her back to ask if the tests meant celiac disease, and if so, doesn't that mean for life? She basically answered me back with an "ummm..." and suggested I go see some random GI who could "answer all my questions." I'm trying to get the nerve up to send her a good medical book on celiac with some passages highlighted, and a note on the inside asking her to please not give her patients advice that could kill them, in future... but I know others have had much worse experiences.

 

My slightly uplifting stupid dr story was a few years ago - after going in to an ENT to find out why i was getting constant shooting pains through my nose (not to mention sinus infections, migraines, etc), the very lovely, intelligent dr and had me do a CT that found I had a giant, POINTY bone spur stabbing into the inside of my nose. Unfortunately I moved before I could have him do the surgery to remove it, so I then shopped around 3 different surgeons who all told me that the bone spur couldn't be causing any problems for me, that it was most likely allergies or all in my head or take your pick of condesceding things Drs like to say to 22 year old women.

 

The uplifting part, though, is when I finally did find a doc who was "willing" to humor me and take out the bone spur, and I came back to tell him after how ridiculously better I felt, he looked at me and said, "Huh, maybe I should stop telling all my patients this won't help them." So, progress? Or baby steps, at least? : )

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      When asking if there was a test to see if I was lactose intolerant the physicians assistant's nurse could hardly tell me the response from the physician's assistant with a straight face. She said to tell you to drink a quart of milk and see what happens. :) I immediately said I am not going to do that!

       I haven't actually got much help from the doctors unfortunately.

That sounds like my doctor, he refused to any kind of blood work and told me if it makes me feel better than just do it. Needless to say I'm looking for a new gp. I told my endo that gluten free foods seem to help my blood sugar, and he said that I was sensitive to gluten. My peditrist told me to eat gluten and a month later, no energy, dark rings under my eyes and the neuropathy that had been reversing was back!

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
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