My fav was my first GI visit 12 yrs ago. A quick behind glove test, and then back to his office for the results.
Dr.: "Stop stressing out, and this should go away"
Me : (nearly crying from being so sick) "ok" not knowing better back then
Dr: "you may also want to pick up some Benadryl for those hives and rashes you have on you skin'"
So stress causes celiac and Benadryl solves DH?? wouldn't that be grand. Wish I had known better back then. On a positive note my dr now rocks and the medical community is finally starting to handle is seriously.
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1 votes
We Need To Start A Thread On Stupid Stuff Doctors Say!
Started by mushroom, Feb 04 2012 12:23 AM
259 replies to this topic
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#197
kater
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Posted 11 November 2012 - 07:02 AM
I don't have too many horror stories...I've been lucky with docs. My family's GP is kind of scary though. Apparently he's a great doctor, but I don't know if I believe the hype! He always fights with his receptionist, which probably raises the blood pressure of everyone in the waiting room. When I had my positive blood test, all of the doctors who saw it said, "woah, yeah, you definitely have celiac" (but recommended the biopsy too, of course). Two gastros recommended that my immediate family members get a blood test, just in case. My dad went in and the GP said that he shouldn't get the blood test if he doesn't have symptoms. 'Cause no one with celiac doesn't show symptoms. I wonder if he'll allow the blood test now that I've been officially diagnosed?
#198
bartfull
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Posted 11 November 2012 - 07:23 AM
You know, with celiac being in the news so much lately, you'd think doctors would "brush up" on it. I fear that those who do just go back to the books they studied when they were in medical school rather than getting the LASTEST information.
And that makes me wonder, what OTHER diseases and conditions do doctors not keep up on? No wonder we are taking our lives in our hands every time we visit the doctor!
And that makes me wonder, what OTHER diseases and conditions do doctors not keep up on? No wonder we are taking our lives in our hands every time we visit the doctor!
#199
squirmingitch
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Posted 11 November 2012 - 05:23 PM
You ever get the feeling that most of the doctors out there went to the Frank Burns School of Medicine?
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#200
mushroom
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Mushroom
Posted 11 November 2012 - 05:28 PM
No, I'm with Bartful -- you need to look at the newest books on their bookshelves, except most of them don't seem to have bookshelves any more (except my PCP, and she has the latest stuff 
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#201
Findin my way
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Posted 12 November 2012 - 03:05 PM
A lady on a different, unrelated forum just told me her nephew was diagnosed with 50% Celiac. 
#202
gatita
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Posted 12 November 2012 - 04:58 PM
This thread is scary or hilarious, or both.
I just emailed my doc about a severe allergic reaction during my recent gluten challenge and also mentioned the constant, chronic diarrhea I've had since June. Another doc was filling in for mine, and today she wrote, "It sounds like you're getting better."
(*pulls hair out with both hands*) !!!!
Then she said to check in again when my regular doc is back in December. Sheeeeeesh!!
I just emailed my doc about a severe allergic reaction during my recent gluten challenge and also mentioned the constant, chronic diarrhea I've had since June. Another doc was filling in for mine, and today she wrote, "It sounds like you're getting better."
(*pulls hair out with both hands*) !!!!
Then she said to check in again when my regular doc is back in December. Sheeeeeesh!!
Diagnosed with wheat hates me 4/13
#203
JNBunnie1
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Posted 12 November 2012 - 05:31 PM
A lady on a different, unrelated forum just told me her nephew was diagnosed with 50% Celiac.
HAHAHAHAHAHAAAAA!!!!!!
If you're going through hell, keep going. ~Winston Churchill
#204
mushroom
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Mushroom
Posted 12 November 2012 - 05:47 PM
A lady on a different, unrelated forum just told me her nephew was diagnosed with 50% Celiac.
Did she say what the other 50% was? IBS maybe??
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#205
AandGsmomma
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Posted 12 November 2012 - 09:18 PM
OMG! 50% Celiac and 50% dumb ass doctor prehaps?
#206
IrishHeart
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Posted 13 November 2012 - 06:02 AM
You ever get the feeling that most of the doctors out there went to the Frank Burns School of Medicine?
Yes, but we're showing our ages if we "Get" this reference.
No, I'm with Bartful -- you need to look at the newest books on their bookshelves, except most of them don't seem to have bookshelves any more (except my PCP, and she has the latest stuff
That's an awesome doc. Like my GI--who asks me if I have any new articles for him.
A lady on a different, unrelated forum just told me her nephew was diagnosed with 50% Celiac.
That's a new diagnostic criteria? Holy crappers, we should alert Dr. Fasano!
This thread is scary or hilarious, or both.
Oh, it's all that, kid.
(I have purged the multi-quote hampering ghosts apparently.)
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
Celiac.com - Celiac Disease Board Moderator
#207
GottaSki
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"Migratory flight complete."
Posted 13 November 2012 - 07:05 AM
Wow a quad - high fives all around!
50% made me snort my nettle tea - unfortunately it is more sad than funny.
Here's hoping we find a few more Hawkeyes and TJs rather than Frank Burns out there
50% made me snort my nettle tea - unfortunately it is more sad than funny.
Here's hoping we find a few more Hawkeyes and TJs rather than Frank Burns out there
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe 
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#208
bartfull
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Posted 13 November 2012 - 11:46 AM
50%. That means the kid can have a sandwich made with one slice of Udi's and one slice of Wonderbread? Or maybe it means the kid only has celiac from the waist down? Celiac on Monday's, Wednesday's, Friday's, and from noon to midnight on Saturday's?
#209
gatita
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Posted 13 November 2012 - 01:14 PM
OK nowwww I get the Frank Burns thing... doh!
Diagnosed with wheat hates me 4/13
#210
IrishHeart
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Posted 13 November 2012 - 02:02 PM
50%. That means the kid can have a sandwich made with one slice of Udi's and one slice of Wonderbread? Or maybe it means the kid only has celiac from the waist down? Celiac on Monday's, Wednesday's, Friday's, and from noon to midnight on Saturday's?
Barty made me snort my nettle tea too.OK nowwww I get the Frank Burns thing... doh!
....and....she's got it!!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win.
Celiac.com - Celiac Disease Board Moderator
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