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We Need To Start A Thread On Stupid Stuff Doctors Say!


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#256 eers03

 
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Posted 06 June 2013 - 04:59 AM

I have so many stupid doc stories, arrogant replies that would make you wince and say "what a jerk!" but the worst ones happened before my DX. I was desperate to have some relief from the nerve/joint/bone pain-- so I saw several rheumies and neuros and a pain management doctor with the empathy of a rock. "First do no harm"? Yeah, right! A few from my collection:

(1) March 2008 The rheumy examines me, cannot explain the burning pain, stiffness or tight, weakened muscles at all and when I ask him, "Since there are no medications that are helping, only causing horrible side effects, do you think if I were to use any supplements that reduce inflammation that it would help in any way?"

He replied with a mocking laugh: "Well, sweetheart, if you throw enough sh-t against the wall, eventually something might stick."

dry.gif Hubs wanted to punch his lights out.

(2) June 2008 The PM doctor looks at my spine films, barks "You have the spine of a 22 year old. It's not your spine." (I actually have osteopenia and several degenerating discs--but apparently, he cannot see them? The spine/ortho guys saw them plain as day)

I ask tearfully: "Then why am I unable to walk, sit, stand or lie down, turn my neck or lift things without excruciating pain?"

He says: "You probably have that fibromyalgia, even though I do not believe it even exists". blink.gif

He goes on:" I can't help you. You need to do some yoga or take stress reduction classes. Why are you crying?"

Me: "I am in pain 24/7, I cannot sleep. It hurts just to lay down... and honestly, my father just died."

Him, standing up, signaling we are done now..." Oh, well, you are just grieving. I know, I also have a background in psychology. You need to relax, take some anti-depressants and chill out. I can't help you. I shoot up necks for a living." He left the room.

dry.gif Hubs wanted to punch his lights out.

(3) Nov. 2009 Another rheumy with a major god-complex tells me I need to take methotrexate because he believes I have "undifferentiated spondyloarthropy" even though I do not have the markers for the disease. blink.gif I am so desperate, I consider it. I do have OA, so I thought maybe he knows better. But when I question him about the potential side effects of the drug, stating first "with all due respect...."he gets red-faced and yells at me "Well, that is NOT respectful at all. Are you questioning my 35 years experience? Do you think I would risk my reputation and give you something that would harm you? Do you know who I am???"

dry.gif Hubs wanted to punch his lights out.


(4)Dec. 2009 A woman doctor-PCP comes highly recommended to me-- takes my health history reads it, says the first doc I mentioned is the "best" and the third is a "quack". When I mention the burning pain I have, she says I am just stressed and writes a script for an anti-depressant, tells me to "relax, girlfriend", and come back in six months.

I ask:"but what about all the symptoms I told you about--the fatigue, my hair falling out, the constant abdominal pain, shortness of breath, diarrhea/constipation"?

She snarks back: "Well I can't solve all your problems for you. C'mon, time to go. I have other patients"

dry.gif I wanted to punch her lights out.

(5) Jan. 2010 I see an integrative MD for 9 months. When I ask him repeatedly about my hair failing out, he laughed and said, perhaps I was “jealous and I wanted to be like hubs”—referring to his bald head!" ohmy.gif

About the continuing severe pain, numbness, tingling, burning and gait/ataxia issues, brain fog I had, despite all kinds of therapeutic treatments I paid for at his clinic--acupuncture, massage,supplements? (but balked at chelation treatments)
He said I needed to do volunteer work "to get my mind off the pain." WTF? :angry:

I could not even tie my own shoes or dress myself at the time. Turns out, I had dislocated SI joints, sacroillitis, piriformis syndrome, pelvic floor dysfunction, osteopenia, hypocalcemia, pudendal nerve entrapment, small nerve fiber neuropathy and L1-L2 nerve impingement. unsure.gif

and finally....regarding the IgG food antibodies testing he did while I was already gluten-free because I was trying it to see if it would help?

He insisted to hubs and me--when I asked if it would affect the results he said REPEATEDLY--

"Oh, that will not affect the results of the test whatsoever!!!"
He told me it was perfectly safe to eat gluten--as it was not a high level. Just avoid soy because I had an intolerance to that.
Give it a few months and I would be right as rain.

I did that for another 9 months, going downhill so fast I nearly died.

dry.gif WE both want to punch his lights out and sue him and OWN his fancy clinic.

(6) Jan. 2010 A nurse practitioner in my former GI's office barked at me "It's not gluten! You do not have celiac sprue! you can eat gluten! He went down there last year (he did an endoscopy) and you are fine. You just have GERD! and IBS and probably fibro. Take the anti-depressants. Those are good drugs for fibro and take the Citrucel, carafate, and PPIs.... and take the methotrexate, too. Everyone is trying to help you but you don't take the drugs or listen to our advice. " I threw all the scripts in the wastebasket and never went back.

Well, as it turns out, "he"--the famous GI doc I saw for 12 years and who knew about my 90 lb. decline, labeling me "anorexic"--me, who was overweight for 10 years?--- never did the biopsy when he was "down there"! dry.gif

dry.gif Hubs and I--and my new GI doctor--- want to kill him.

dry.gif

There are a few more:

the Neuro in 2009 who said emphatically, the burning, numbness, poor reflexes, muscle mass loss, ataxia and loss of memory were not a "neurological issue because my EMGs and Brain MRI were okay"...and I should go back to the rheumatologist" blink.gif

and... my very nice Primary Care guy who was so frustrated for all those years he could not help me figure it out but kept sending me here and there--- when I told him what I DID have (3 years later) he turned pale, flipped through my encyclopedia-sized chart like it was suddenly all so very clear and illuminated by the sun and said " OMG! That's it! of course! you need to be gluten free for life!".....

The kicker? His children have celiac, but as he put it "Wow, I did not know how it manifests in adults.".... blink.gifblink.gif

...there are more, but I am pooped from typing so long. tongue.gif

Wow...  This thread blew my mind...  I wasn't referred around too quite as many specialties but had many of the same symptoms and conversations that you mentioned.  During my DX, my PCP was a good guy but just couldn't nail it down, he did finally send me to a GI and uro for some symptoms, the uro symptoms resolved almost totally since going gluten-free.  I also consulted another PCP for a second opinion.  He was the one I could have done without.

 

He told me my liver looked like one similar to someone with metabolic disease.  (Even though my weight was down to 137 lbs, I'm 6'0 tall.)  He couldn't explain my elevated liver enzyme.  Made fun of me for having had a couple CT's and a cardio stress test for the chest pains that I believe now to have been costochondritis. (spelling?)  I felt the pains during my running. He said he was surprised that I wasn't glowing from the radiation.   

 

I was anxious as could be.  I couldn't get comfortable to sit or lay.  Could barely focus to go out and work and was an emotional looking fellow.  I was ridiculous at my worst.  Smelling ammonia in my nose.  Dehydrated.  Vision was altered.  I wasn't well.  Called his office at one point to ask what I should take for shooting pain I was getting from my back.  (I also have had some disc degeneration) and his nurse said... "I spoke to Dr. Jackaround and he said to go see a Chiropractor and take some ibuprofen."  I'm allergic to ibuprofen but thanks for consulting my chart.  Chiropractor huh?  In my weakened state would could POSSIBLY go wrong by having someone start manipulations on my back?????!

 

Anyhow, point is...  It's wild to see that someone was navigating so many of the same things that I did.  Thanks for sharing.


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Diagnosis 11/2012

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#257 IrishHeart

 
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Posted 06 June 2013 - 01:12 PM

(Even though my weight was down to 137 lbs, I'm 6'0 tall.) 

 

 huh??? This did not seem "relevant" to anyone?? damn doctors.... :angry:

 

sorry, hon.. but very glad you found us and I hope you feel better and put some weight on soon.

xx


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#258 Eclara

 
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Posted 10 June 2013 - 10:36 PM

I'm strangely comforted to know I'm not the only one having run-ins with horrible doctors!

 

I did a gluten trial last October and had a (negative) biopsy after 8 weeks of it. I had terrible psychological and physical symptoms that have taken until this past month to start calming down. When I went in two months later to see the gastro who'd recommended the test, considerably worse off than I was before I'd seen her the first time, she gave me this perplexed look and said, "The biopsy was negative, I really don't know what could be causing that! Just keep doing what you're doing." I had just finished telling her that what I was doing was spending all my time in bed because I had such bad muscle pain from the trial I couldn't walk, and eating around 400 calories a day consisting of mostly chicken and bananas because my stomach wouldn't tolerate food anymore.

 

The doctor I saw a few weeks ago was by far the worst I've seen.  He talked fast, he interrupted and spoke over me, and he decided after a few minutes that I had IBS and that was that. As soon as "irritable bowel syndrome" came out of his mouth, it was like he stopped listening to a word I was saying, considering me "diagnosed".

 

Him: "I see that you suffer from depression. Are you taking anything for that?"

Me: "No, I have it under control at this point."

Him: "Oh, well I think you should talk to your primary doctor about getting on anti-depressants. Your symptoms could be related to that and it might help you gain weight."

Me: *stink eye*

 

Me: "What should I do about the gastritis that was on the biopsy? I feel like it's still causing me pain."

Him: "Oh, no. Your gastritis was VERY minimal. It was so minimal they couldn't even see it without a microscope! You can't even see it. You could fill this room with people and they'd all probably have more gastritis than you do. I probably have more gastritis than you do."

Me: "Okay. What should I do about the stomach pain then? I never, ever had upper stomach problems like this before the gluten trial."

Him: "Well, you absolutely don't have celiac but you've changed the way your digestive system works."

Me: "What?"

Him: "Maybe you just can't eat quite as much gluten or other foods as other people can."

Me: "I don't think you understand what I'm trying to tell you. I can't-"

Him: "Well, I really think it's just classic IBS."

 

Him: "I suppose there could be some fructose issues there, but you really aren't eating much of it right now, right?"

Me: "No, because when I try-"

Him: "Right, so I think you should just try anti-spasmodics for the IBS."

 

I gave up trying to get him to listen to me about all of my issues and focused on just the intense pressure and stitch-like pain in my upper stomach I'd had for only a few days.

 

Him: "Well, the CT scan was fine."

Me: "That was in March? I've only had this for four days."

Him: "The endoscopy was normal, too."

Me: "That was in DECEMBER. It's been FOUR DAYS."

Him: "Well, I don't think it's life-threatening. If it gets severe just go to the emergency room."

 

I got the official report back today. He describes me as "resistant" several times.

Needless to say, I will not be going back to see him.

 


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Low IGA, tests not viable- no other blood tests performed

Negative biopsy 12/12/12

Gluten-free 12/13/12

 

Currently unable to tolerate: gluten, grains, dairy, soy, nightshades, all sweeteners except for liquid stevia and coconut nectar, cruciferous vegetables, all fruit except for bananas and berries, eggs, beans, chocolate (noooo).

 


#259 Adalaide

 
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Posted 11 June 2013 - 01:32 PM

Welcome to the club! My chart says I'm uncooperative. This happened when he couldn't diagnose me but was insistent that I accept and fill a prescription that he was sure would help. A name brand prescription. In the time I had been in the waiting room two drug reps had been into his office. I know why he was pushing the drugs, and it wasn't for my benefit. Pass, thanks.


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#260 IrishHeart

 
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Posted 11 June 2013 - 02:38 PM

I was

 

"uncooperative"(unwilling to take all the drugs they gave me)  and

 

 "anorexic"..

me? a former fatty butt who had lost 90 lbs, w/o trying.

 

I can still hear the shrill cry of the gastro's NP who told me "they are giving you all these meds to help you,

but you won't do it! why not...??..These are GOOD DRUGS!!"

 

oh hush up, you nutjob "nurse practitioner"  :P

 

I take NO drugs and I am better than I was 5 years ago.


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#261 surviormom

 
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Posted 24 June 2013 - 12:01 PM

I have to add this.  Just happened today.  I went 89 days before my period came, sorry guys.  in the meantime, GP wanted to check my blood.  OK, I thought he was checking thoroughly, vitamins, hormones, a full T scale etc.  NOT.  He did a basic, with diabetes, and cholesterol checks in there.  An Estradiol, TSH and D.  Says I look good, must just be perimenopause.  I asked well what about the Progesterone level?  Oh we did not need that.  Really I asked why, isn't that needed to keep balance?  No we ran what was needed and you are in great shape, you just need to lose some weight and check back if the pain gets to be too much.  

 

UH it already is TOO much.  I have complained for 7 years about this, 3rd doctor to attempt to explain just how terrible this situation is.  I have last years test that my old dr. ran again it is not a full scan, but its better than what this one did.  TSH dropped from .903 to .583  yeah that sounds normal to me. :blink:

 

DOCTORS!!!!!!!!!!!! :angry:


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Gluten Free 2012 - Dairy Free 2012 - Acid Reflux Diet 2013

Chronic Gastritis 2013 - Peptic Duodenitis 2013 - Hiatal Hernia 2013 - C-Diff 2013 - Endometriosis 2013 - Uterine Fibroids 2013

Patellar Tendonitis 2013 - Arthritis 2014 - NCGI 2014 - Erosive Esophagitis 2014 - Barretts 2014


I have a long list of physical ailments that were being grouped into age/gender by doctors.

Began Gluten Free and Casein Free after an Allergy Test trying to find answers to health problems that the doctors just were not answering well enough. Looking back through history, I have a lifetime of allergies and gastro issues.


Learn from yesterday, Live for today, and Hope for tomorrow. The important thing is not to stop questioning.

Albert Einstein

#262 squirmingitch

 
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Posted 26 June 2013 - 05:58 PM

My hubs had bladder cancer & every year he has to have a cystoscopy to check for any recur. Now, this Urologist is really, really good at urology; he really is. Okay, so last year we did not know my hubs had celiac disease. We tell the doc he does now. There is always an antibiotic prescribed after a cysto to make sure no infection happens from the procedure. We are telling the doc we need to make sure whatever he prescribes is gluten free. He says, "Well, it only has a little gluten in it. It's really just used as a binding agent".  He knew that the figures on celiac disease are 1 in 133 ppl but does NOT know that a little bit of gluten is NOT okay. A little bit of gluten???? And you want me to take 2 pills of a little bit of gluten per day for 7 days. Now, how much is a little bit times 14? :angry:  :angry:  :angry:

 

IMHO we have a big problem with all these specialists. They only know their specialty. Nothing else. Just their specialty. Now, we all know that symptoms of anything can cross specialty lines left & right & then back again. So how in hell are we supposed to get correct dx's when 90% of our symptoms are not THAT docs specialty?????


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#263 GottaSki

 
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Posted 26 June 2013 - 06:30 PM

My hubs had bladder cancer & every year he has to have a cystoscopy to check for any recur. Now, this Urologist is really, really good at urology; he really is. Okay, so last year we did not know my hubs had celiac disease. We tell the doc he does now. There is always an antibiotic prescribed after a cysto to make sure no infection happens from the procedure. We are telling the doc we need to make sure whatever he prescribes is gluten free. He says, "Well, it only has a little gluten in it. It's really just used as a binding agent".  He knew that the figures on celiac disease are 1 in 133 ppl but does NOT know that a little bit of gluten is NOT okay. A little bit of gluten???? And you want me to take 2 pills of a little bit of gluten per day for 7 days. Now, how much is a little bit times 14? :angry:  :angry:  :angry:

 

IMHO we have a big problem with all these specialists. They only know their specialty. Nothing else. Just their specialty. Now, we all know that symptoms of anything can cross specialty lines left & right & then back again. So how in hell are we supposed to get correct dx's when 90% of our symptoms are not THAT docs specialty?????

 

Exactly :(


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#264 Adalaide

 
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Posted 28 June 2013 - 04:55 PM

Now that it has been all day and I had a nap and don't want to strangle anyone at the moment, I can share what happened with the moronic doctor I fired today.

 

I've been having a problem with my vision that is almost certainly medical in nature, not an actual vision problem.

 

So I go off to the doctor last week, and today was just follow up from blood work. I saw an NP resident, who had great enthusiasm and I really liked the guy. It was the doctor I had a problem with. 

 

The one thing he told me that made me want to slap him for being so dumb was about my reaction to penicillin. I get a rash from penicillin. He tried to tell me that that isn't an allergic reaction, it is a side effect. :blink: (Thanks, I'll keep the note in my chart so I don't end up in an ER one day with some moron giving me an antibiotic that makes me scratch myself until I bleed.)

 

So after one attempt to get him to see the light, which fails because, I carry on with the real reason I'm there. Eventually I ask something that prompts him to go get the doctor. The doctor promptly comes in and tells me I'm grasping at straws. Well since no one seems inclined to help me and my vision is on the line at this point of course I am, how bout helping rather then telling me I'm grasping at straws and tell me what could possibly be wrong with me.

 

"It's anxiety."

 

There it was. Just like so many of us have dealt with. It is all in my head. I'm crazy. I'm making myself sick because I'm so off my rocker. He wanted off my rocker, he got it. I started with a simple "we're done here" and I'm not really sure if one of them said something that tipped me or I just couldn't contain myself at that point. I went off like, um, a crazy person to be honest. :ph34r: I actually yelled right at his face. About how I'm not crazy. Cause that's sane, yelling at your doctor right?

 

He told me to find a new provider. As if I would have ever gone the hell back to him after he told me its all in my head. :huh: I didn't leave without my medical records. After all that there is a note in there that insinuates that the fact that I waited over an hour for him to type up today's notes is crazy. It also says "left without preparing plan of care and follow." No shit Sherlock, you just told me to find a new provider. What sort of follow up was I supposed to make plans for?

 

I really really really hate doctors. So much. Did I ever mention one almost killed my daughter when she was two months old through sheer stupidity and negligence? I hate them all. And I need a competent one to save my sight. sigh......................


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#265 bartfull

 
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Posted 29 June 2013 - 07:32 AM

I heard on "The People's Pharmacy" on NPR this morning that 22 people die in this country EVERY DAY due to medical mistakes. TWENTY-TWO people EVERY DAY! And one of the reasons is that everyone in the medical profession from doctors to nurses to medical technicians have to take a VOW to never say ANYTHING negative about any doctor, even if they know he/she is incompetent and has caused deaths or other harm to patients.

 

We need to get up a petition or something and see if we can get a law passed to change that.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#266 kareng

 
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Posted 29 June 2013 - 07:42 AM

I heard on "The People's Pharmacy" on NPR this morning that 22 people die in this country EVERY DAY due to medical mistakes. TWENTY-TWO people EVERY DAY! And one of the reasons is that everyone in the medical profession from doctors to nurses to medical technicians have to take a VOW to never say ANYTHING negative about any doctor, even if they know he/she is incompetent and has caused deaths or other harm to patients.

We need to get up a petition or something and see if we can get a law passed to change that.

They don't take a " vow" to not say anything bad about other practitioners. There are internal hospital ways to handle things. For instance, we took away a surgeon's privileges to do anything more complicated than a tonsillectomy. He was good at the simple procedures but not the harder stuff. Every death in a hospital is reviewed by several people. Believe me, if people in the hospital saw a nurse or a doctor doing the wrong thing , it would be reported and taken care of.

There are laws that keep a medical professional from discussing someone's medical experience with other people. There are laws against slander/ libel that keep people from saying bad stuff about another person.
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LTES

 
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#267 CarolinaKip

 
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Posted 28 July 2013 - 10:02 AM

To make a long story short, I went to my local ER last night (had to explain Celiac disease to all) ask ER doc would he please check to see if med was gluten free? He was very smug and told me "I've never know gluten to be in meds"! I said "yes it can be"! He came back acting like a jerk and said "the pharmacist even crossed their eyes at gluten free" "I guess I come to work and learn something new" "Your med is gluten free"! I came home and looked it up on glutenfreedrugs.com to make sure. I've been having a few medical test done and I've had to explain Celiac to everyone, but one. Sigh....my sister eats gluten free to help her Lupus, while in the hospital in a major city, her diet was marked gluten free. She sent me a picture of the paper that said her soup was gluten free and checked by a manager. It was alphabet soup with noodles. The manager said it was listed in their computer as gluten free. Thankfully, they can take that off the gluten-free menu.


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How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver


Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10

#268 IrishHeart

 
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Posted 28 July 2013 - 10:18 AM

To make a long story short, I went to my local ER last night (had to explain Celiac disease to all) ask ER doc would he please check to see if med was gluten free? He was very smug and told me "I've never know gluten to be in meds"! I said "yes it can be"! He came back acting like a jerk and said "the pharmacist even crossed their eyes at gluten free" "I guess I come to work and learn something new" "Your med is gluten free"! I came home and looked it up on glutenfreedrugs.com to make sure. I've been having a few medical test done and I've had to explain Celiac to everyone, but one. Sigh....my sister eats gluten free to help her Lupus, while in the hospital in a major city, her diet was marked gluten free. She sent me a picture of the paper that said her soup was gluten free and checked by a manager. It was alphabet soup with noodles. The manager said it was listed in their computer as gluten free. Thankfully, they can take that off the gluten-free menu.

 

C-Kip,

I hate to tell you what I would have spelled out with those alphabet noodles.

But I think you can imagine. 

 

:ph34r:


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#269 CarolinaKip

 
CarolinaKip

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Posted 29 July 2013 - 07:51 AM

C-Kip,

I hate to tell you what I would have spelled out with those alphabet noodles.

But I think you can imagine. 

 

:ph34r:

 

Probably the same thing I would!  LOL

 

This is how I feel lately, 

 

I had to fight for my Celiac DX and I still continue to fight for my health everyday. I hope in this fight, I may bring some type of knowledge and awareness of what Celiac disease is to someone for the good. <off soap box> ;)


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How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver


Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10

#270 IrishHeart

 
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Posted 29 July 2013 - 09:57 AM

Probably the same thing I would!  LOL

 

This is how I feel lately, 

 

I had to fight for my Celiac DX and I still continue to fight for my health everyday. I hope in this fight, I may bring some type of knowledge and awareness of what Celiac disease is to someone for the good. <off soap box> ;)

 

 

amen ...and dear girl, perhaps our mutual soap box is a bit crowded, but we manage to share the space and spread the word ;) and I'll continue to do so for as long as I have breath. P.S. Hope you are enjoying your well-deserved summer vacation..


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





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