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We Need To Start A Thread On Stupid Stuff Doctors Say!


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#31 GFSAHmom

 
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Posted 23 February 2012 - 08:10 PM

1st visit to the Pediatric GI for my 2.5yr old son.
Us: How is Glute Free Food?
Doc: It's horrible. I'd have to kill myself if i couldn't have regular pasta.

I'm glad my son was too little to pay any attention to him.
He's still a good doctor though....just alittle ODD! ;)
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2yr old son with Celiac (Diagnosed january 6 2012)
Blood work was >139 (normal <20)
Symptoms: Weightloss, tired, chronic constipation, white stool, NO appetite, failure to THRIVE.
Problems started 1 week before his 2nd Birthday when he first got sick with CROUP.
He is now on GLUTEN FREE diet and gaining weight, has energy, no constipation and THRIVING!

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#32 Marilyn R

 
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Posted 24 February 2012 - 04:52 PM

Yesterday at my office visit, my D.O. was reviewing my blood work ordered by a neurologist in the same medical group about four months ago.

She said she didn't know how to interpret the results, but it looked like I could be positive for Lyme Disease. She said "I never order blood tests I don't know how to interpret", then proceeded to tell me that her 12 year old daughter had lyme disease, with the rash, six years ago when they lived in the Northeast, but DD had been treated and was fine. Doc said she would call the Neurologist to discuss interpretation of the Lyme Disease panel and call me if I needed to do anything.

I bet any mother on this forum who had a child with Lyme Disease would know how to read the blood draw results.

I received a call from her office today. They said I needed to pick up a prescription they'd called into my pharmacy for antibiotics and referred me to an infectious disease specialist. I told both the Neurologist (in the visit when she announced she was ordering the test 4 months ago) and the D.O. who reviewed the results that I didn't have any signs or symptoms of Lyme Disease, hadn't lived in an area known for Deer Ticks for over 35 years.

I did a quick internet search and it turns out if you have high levels of antibodies or an autoimmune disease or are older, false positive Lyme Disease blood work isn't uncommon. I don't know if it's a charm, but I represent all three categories.

I didn't pick up the prescription.

In the same visit, she told me that something I bought in a Health Food Store couldn't hurt me. She said if it was sold in a Health Food Store, it was benign, couldn't hurt me, otherwise it wouldn't be allowed by the FDA to be sold in a Health Food Store. I don't know how, but I stifled myself. I'm fed up with doctors! In this neck of the woods, they're bull-headed and uninformed, and talking to them is like talking to a wall.

:angry:
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#33 Bubba's Mom

 
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Posted 25 February 2012 - 05:37 AM

Yesterday at my office visit, my D.O. was reviewing my blood work ordered by a neurologist in the same medical group about four months ago.

She said she didn't know how to interpret the results, but it looked like I could be positive for Lyme Disease. She said "I never order blood tests I don't know how to interpret", then proceeded to tell me that her 12 year old daughter had lyme disease, with the rash, six years ago when they lived in the Northeast, but DD had been treated and was fine. Doc said she would call the Neurologist to discuss interpretation of the Lyme Disease panel and call me if I needed to do anything.

I bet any mother on this forum who had a child with Lyme Disease would know how to read the blood draw results.

I received a call from her office today. They said I needed to pick up a prescription they'd called into my pharmacy for antibiotics and referred me to an infectious disease specialist. I told both the Neurologist (in the visit when she announced she was ordering the test 4 months ago) and the D.O. who reviewed the results that I didn't have any signs or symptoms of Lyme Disease, hadn't lived in an area known for Deer Ticks for over 35 years.

I did a quick internet search and it turns out if you have high levels of antibodies or an autoimmune disease or are older, false positive Lyme Disease blood work isn't uncommon. I don't know if it's a charm, but I represent all three categories.

I didn't pick up the prescription.

In the same visit, she told me that something I bought in a Health Food Store couldn't hurt me. She said if it was sold in a Health Food Store, it was benign, couldn't hurt me, otherwise it wouldn't be allowed by the FDA to be sold in a Health Food Store. I don't know how, but I stifled myself. I'm fed up with doctors! In this neck of the woods, they're bull-headed and uninformed, and talking to them is like talking to a wall.

:angry:

Shocking! :o
A Dr. that doesn't order blood tests she doesn't know how to read...AND her own Daughter had it? I wonder what else slips through the cracks with this Dr.?

It sounds like the Dr. that ordered the test considered the variables and that's why they didn't contact you and tell you about it? I hope that was the case..and not just laziness?
How do these Dr.s stay in business? So many people just blindly follow whatever the Dr. says..and if Dr.s are so clueless that way of doing things is downright scary!
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#34 love2travel

 
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Posted 25 February 2012 - 12:24 PM

Where the heck do you find these doctors?? In Canada our wait times are atrocious (i.e. I had to wait 18 months to see an orthopedic surgeon) but I have not heard of this celiac stupidity here. I would guess it does happen but man, have I been lucky. My family doctor is very aware and knowledgable, not to mention incredibly good looking. :lol: But that means that my heart rate increases when he enters the room which is, of course, an entirely different issue. :P
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#35 Marilyn R

 
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Posted 25 February 2012 - 12:40 PM

Shocking! :o
A Dr. that doesn't order blood tests she doesn't know how to read...AND her own Daughter had it? I wonder what else slips through the cracks with this Dr.?

It sounds like the Dr. that ordered the test considered the variables and that's why they didn't contact you and tell you about it? I hope that was the case..and not just laziness?
How do these Dr.s stay in business? So many people just blindly follow whatever the Dr. says..and if Dr.s are so clueless that way of doing things is downright scary!


This office is paperless, so everything's on the computer. The D.O. clicked on lab results and saw that I had a low Vitamin D level. She asked me if I was taking supplemental Vitamin D. That result was from a year ago, so I asked her if she'd ordered a Vitamin D blood draw, and she admitted she had not, and that's what tells me in a nutshell she's not a good doctor.

I told her when my Vitamin D level is low, my hair falls out and I feel crappy. I supplemented with D-3 drops for several months and then started feeling bad, I thought from too much Vitamin D, but I still take 500 IU every day. She told me I needed to take Vitamin D supplements, and I asked her how she could know that. I'll probably get discharged from her practice.

The bad thing is, when you get these calls from your doctor's office, you get anxious. I'm pretty sure I don't have Lyme Disease, but earlier in this process I would have filled the prescription and gone on to the next specialist, next test. All of a sudden I feel cooked. I'm over it. I've been poked, prodded, scoped, had so many blood tests, I think I'm done. I'll get my mammo and annual OB/GYN visit, but I think uninformed doctors cause more damage than value.
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#36 Marilyn R

 
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Posted 25 February 2012 - 01:03 PM

I love the term "celiac stupidity!" Way to go Luv! Thanks for the laugh, needed it!
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#37 IrishHeart

 
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Posted 25 February 2012 - 01:09 PM

My family doctor is very aware and knowledgable, not to mention incredibly good looking. :lol:



well, some eye candy might take some of the irritation out of our frustrating doctor visits down here... B)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#38 love2travel

 
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Posted 25 February 2012 - 01:12 PM

well, some eye candy might take some of the irritation out of our frustrating doctor visits down here... B)

:lol: Irish, I know people who say they could not go to my doctor because he is TOO hot. But the great thing is he has no clue. I just don't like seeing him for, well, you know. :huh:

Maybe he has a brother in the U.S. for your sake. ;)
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#39 IrishHeart

 
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Posted 25 February 2012 - 01:20 PM

:lol: Irish, I know people who say they could not go to my doctor because he is TOO hot. But the great thing is he has no clue. I just don't like seeing him for, well, you know. :huh:

Maybe he has a brother in the U.S. for your sake. ;)


I'm good now. I found a young one who knows what celiac IS. Talks WITH me, not AT me and always makes me feel like I am his only patient. RETURNS MY CALLS HIMSELF! (gasp!)

But he is young enough to be my son. Which is fine, as I am not breaking in any new ones.

I saw maybe 30 doctors? in 3 years--- and I'm done doc-shopping. :lol:
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#40 Bubba's Mom

 
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Posted 25 February 2012 - 03:03 PM

This office is paperless, so everything's on the computer. The D.O. clicked on lab results and saw that I had a low Vitamin D level. She asked me if I was taking supplemental Vitamin D. That result was from a year ago, so I asked her if she'd ordered a Vitamin D blood draw, and she admitted she had not, and that's what tells me in a nutshell she's not a good doctor.

I told her when my Vitamin D level is low, my hair falls out and I feel crappy. I supplemented with D-3 drops for several months and then started feeling bad, I thought from too much Vitamin D, but I still take 500 IU every day. She told me I needed to take Vitamin D supplements, and I asked her how she could know that. I'll probably get discharged from her practice.

The bad thing is, when you get these calls from your doctor's office, you get anxious. I'm pretty sure I don't have Lyme Disease, but earlier in this process I would have filled the prescription and gone on to the next specialist, next test. All of a sudden I feel cooked. I'm over it. I've been poked, prodded, scoped, had so many blood tests, I think I'm done. I'll get my mammo and annual OB/GYN visit, but I think uninformed doctors cause more damage than value.

I hear you on the Dr. shopping! I've been to 6 different ones since my DX in late June. Two of them were Residents who said I was "too old" to have Celiac. Two GI's locally, and one at Mayo. I went to a PCP that someone from the GI's office said was good, but when I went to him I found out he's 93, and told me Celiac was a very rare condition.
Currently I have my own medical records and looking...

The Mayo Dr. told me to take the steroid capsule apart and divide the beads into 2 doses and take it with applesauce, twice daily. Then take one whole capsule at night. A 30 day supply..she wrote as 30 capsules. :blink:
She gave me a 90 day supply Rx to get the med by mail. When it came..it says take one capsule three times a day. 90 day supply = 180 capsules. I had to call her to see what the heck I was supposed to do! :o

I don't think I'd want a gorgeous Dr.? Just one who is knowledgable, compassionate and a good listener. Too bad there isn't a site like the dating sites to find the right match? :rolleyes:
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#41 mushroom

 
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Posted 25 February 2012 - 03:04 PM

:lol: Irish, I know people who say they could not go to my doctor because he is TOO hot. But the great thing is he has no clue. I just don't like seeing him for, well, you know. :huh:


This guy popped in to visit when I was in hospital once for surgery. My roommate said, "Wow!! Who was that?" and I told her it was my doc. He was really hot too, but he knew it :rolleyes: The nurses all fell all over themselves whenever he was around :blink: I enjoyed my office visits :D
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
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Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#42 IrishHeart

 
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Posted 25 February 2012 - 03:21 PM

This guy popped in to visit when I was in hospital once for surgery. My roommate said, "Wow!! Who was that?" and I told her it was my doc. He was really hot too, but he knew it :rolleyes: The nurses all fell all over themselves whenever he was around :blink: I enjoyed my office visits :D


You're a Cougar, Shroomie. roar, girlfriend. ;)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#43 stanleymonkey

 
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Posted 25 February 2012 - 03:30 PM

the stupidest thing we always seem to hear is the word virus
me- my 2 yr old has been having diarrhea on and off for a while, now its green water and mucus
doc - its probably a virus
me- what to I do
doc - keep her hydrated
me- what if it doesn't clear up
doc-its a virus it will
me- she's lost a lot is weight and hasn't eaten for days
doc-a virus will do that
repeat this conversation every few weeks at the emergency department for about 6 months
get an appointment with GI department head
I tell them all her symptoms, weight loss, fatigue, rashes, bloating diarrhea and constipation, lack of appetite or eating me out of house and home!, dental enamel defects, fontanelle still not closed at 2 yrs old and 9 months, joint pain, easy bruising, reflux, muscle loss, muscle pain, thin hair
the verdict VIRUS!!!! Has probably damaged nerves in her bowel,
a friend of mine is training to be a nurse and has noticed how often the v words is used
go back to this idiot on Friday if he says virus I may have to punch him out
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#44 Bubba's Mom

 
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Posted 25 February 2012 - 03:45 PM

Ridiculous! :angry: I hope you don't strangle him?
I also hope thy help your little darlin'.
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#45 revenant

 
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Posted 26 February 2012 - 01:59 AM

Great thread idea Mushroom!!

I went in to see my GP because I wanted to get my B12 levels tested as I was having neuropathy... The doctor said "There's no point in doing that, there's tons of B12 in bananas!" and because of that wouldn't refer me.

Not to mention I went to a different GP and wanted to see my B12 levels from the last time I had a blood test, and he said there was no point! I went in again, and he happened to have my papers so I asked to see them. Still he said "There's no point, it's in range!" but handed it over to me anyways. The range is 150-900 and I was 175! After I started taking B12 my neuropathy went away... -_-


I went in with my mother to see my GP for a reason I don't remember and she asked about a celiac blood test. I told my doctor that I hadn't eaten gluten in 6 months, there was no way I was going to get a positive because it measures the antibodies against gluten, and he replied "that's not true, it will show up positive if you're a celiac no matter what you're eating!" My mom forced me to have the test, my doctor was very firm that I should have no problem with gluten, I switched doctors.

I used to have Dermatitis (a rash on my knees, back, chest, shoulders) and I went to see a dermatologist. At that time I asked him if it could possibly be some kind of allergic reaction and he said "Oh, nooo way it definitely could not be something as little as that". By the way, he didn't tell me it was dermatitis, he didn't know what it was, but now that it's gone I can see clearly that it was.
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