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We Need To Start A Thread On Stupid Stuff Doctors Say!


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#76 Marilyn R

 
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Posted 08 March 2012 - 05:15 PM

Wow, I guess they don't export all the dumb doctors to the US. At least the one in Japan was decent enough to apologize to you


The dermatologist I've seen for the last three years had his receptionist call me tonight to apologize. She said that they had revamped the method and inserviced everyone in the office on how to route medical records, and proceeded to explain what happened, and how dear Dr. had never seen the biopsy report which diagnosed me with Discoid Lupus.

I was so p.o. I said "Donna, him not seeing the pathology report is not all that relevant to me. What I'm upset about is that I have an AI disease involving the skin with other AI diseases, and it is not an uncommon disease. He was my SKIN specialist!"

The main purpose of posting this, besides venting, is to give the heads up to anybody reading that if you get a spot on your face or earlobes (most common sites) that turns red and sort of white crusty on the edges, you must go to a good dermatologist. (I've got three spots now. Two of them don't itch, one is mind numbingly itchy.)

I was walking into a nephrology practice today and saw someone older than me with a scar on her face. I said hello, and asked how she was doing. She said, "I'm sick, that's why I'm here." She had the red mark smack in the middle of her nose where one of mine is, and it was crusty white on the edges. I asked her if she had Lupus and she said she did. Once you see it, you'll know. That's why I'm so upset with the old derm.

I would have preferred the deep bow. :D But I know I have to let it go to get better. Resentment and anger are never good feelings, it's time for me to move on. :)
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

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#77 mushroom

 
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Posted 08 March 2012 - 06:16 PM

Arrrgh! :ph34r:


In all fairness to Charlie, she is employed by the two docs who own the practice (and more popular than either of them ;) ) and has no control over what procedures they set up. I actually like her and make the system work by knowing its limitations (hence my duplicate file and constant follow-up / taking the initiative :) ) Besides, I would have to drive for an hour to see another doc so it works for me in a crazy kind of way because she will normally order whatever I request (within the limits of the NZ health system :( )
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Self-diagnosed gluten intolerant, gluten-free Nov. 2007
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Citric acid free June 2009
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#78 mommida

 
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Posted 08 March 2012 - 09:04 PM

A deep bow would just take the sport out of sticking my foot up his or her arse! ;)
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#79 JaneWhoLovesRain

 
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Posted 10 March 2012 - 04:58 AM

I both love and hate reading all these. Love, because I see I'm not the only one who visits stupid doctors. And really and truly hate because it angers me so much that there are so many stupid doctors "practicing" out there and there are poor, unfortunate patients who place doctors next to God and believe everything they say.

I haven't been officially diagnosed with celiac and have not yet talked with a doctor about it, but have suffered from severe vertigo attacks for several years and from trying to get a diagnosis for this have come across my share of doctors who have said stupid things.

Last winter I had a bad case of influenza, fever of 102ish for several days, terrible headache, terrible body aches, terrible fatigue, chest cough, sore throat, cold symptoms, could barely get off the couch, etc. This was not a "typical cold," it was definitely worse. On day 5 I had one of my severe vertigo attacks (vertigo so bad I can't move if my life dependeds on it, lasts 4+ hours, etc.). If I can I try to ride these out at home but coupled with my flu symptoms I wanted to get to the ER asap so I could get some valium IV in me. I called 911 and they took me to the ER.

My main reason for being there was my vertigo but went over all my symptoms with the doctor and asked him if he thoguht I had the flu. No, he said, you don't have any symptoms of the flu. Huh?? I asked, I've had a fever of 102 for 5 days, a terrible cough, terrible headache, fatigue like I've never had before, etc. What symptoms of the flu don't I have? He responded, "you aren't vomiting." This same doctor was ready to discharge me half an hour later when I still wasn't able to move an inch without the vertigo increasing 10 fold. He said I was all better and there was no need to keep me there any longer.

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).
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Gluten free since 2010 when it was suggested that my vertigo/dizzy problems may be from gluten. Tested negative for DH in April of 2012. However I'm not convinced I don't have DH as pictures and description pretty much match what I have.
11/2012 tested positve for 1 of the 2 celiac genes

#80 IrishHeart

 
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Posted 10 March 2012 - 05:46 AM

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).


O M G!!! --I thought my stories were absurd, but this one calls for the ever-popular WTF???? :blink: "allowed to look at??"....what a bunch of BS.....O M G.....Sorry, Jane. (hug)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#81 frieze

 
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Posted 10 March 2012 - 06:34 AM

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

This is so they can charge for 2 visits...
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#82 Bubba's Mom

 
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Posted 10 March 2012 - 06:45 AM

I both love and hate reading all these. Love, because I see I'm not the only one who visits stupid doctors. And really and truly hate because it angers me so much that there are so many stupid doctors "practicing" out there and there are poor, unfortunate patients who place doctors next to God and believe everything they say.

I haven't been officially diagnosed with celiac and have not yet talked with a doctor about it, but have suffered from severe vertigo attacks for several years and from trying to get a diagnosis for this have come across my share of doctors who have said stupid things.

Last winter I had a bad case of influenza, fever of 102ish for several days, terrible headache, terrible body aches, terrible fatigue, chest cough, sore throat, cold symptoms, could barely get off the couch, etc. This was not a "typical cold," it was definitely worse. On day 5 I had one of my severe vertigo attacks (vertigo so bad I can't move if my life dependeds on it, lasts 4+ hours, etc.). If I can I try to ride these out at home but coupled with my flu symptoms I wanted to get to the ER asap so I could get some valium IV in me. I called 911 and they took me to the ER.

My main reason for being there was my vertigo but went over all my symptoms with the doctor and asked him if he thoguht I had the flu. No, he said, you don't have any symptoms of the flu. Huh?? I asked, I've had a fever of 102 for 5 days, a terrible cough, terrible headache, fatigue like I've never had before, etc. What symptoms of the flu don't I have? He responded, "you aren't vomiting." This same doctor was ready to discharge me half an hour later when I still wasn't able to move an inch without the vertigo increasing 10 fold. He said I was all better and there was no need to keep me there any longer.

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

Shocking! :o
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#83 alex11602

 
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Posted 10 March 2012 - 07:32 AM

Some of these are horrible, it's ridiculous.

I think most of my bad doctor stories relate to my youngest daughter, starting when I was pregnant with her. With both my girls I had amniotic leakage and preterm labor (with the first one it was at 27 weeks so they monitored and put me on bed rest) with my youngest it was at 21 weeks the doctor sent me back to work and told me that every woman leaks alot of amniotic fluid every night. The same doctor sent me home when I was having contractions every 3 minutes when I was 28 weeks. The doctors also said that it didn't matter to the baby that I couldn't get my blood sugar under control with diet. News for them...it made a big difference, my daughter had a blood sugar reading of 31 when she was born.

When she was finally brought back to me after the doctors got her sugar stabilized she wouldn't eat, threw up everything. Her first day of life she took in only 6 oz of formula since the nurses told me that I couldn't try and breastfeed her anymore since she wouldn't latch. My favorite part is with all this they still discharged her 30 hours after she was born to free up the beds.

We kept bringing her to the doctor for weight checks because she was still having trouble eating (never could tolerate milk based formula, but they had me keep giving it to her), was anemic (hemoglobin was 7.4) despite being formula fed and not gaining weight. They never looked for a cause or anything. This was her measurements up until we went gluten free.

At birth she was 8 lbs 8 oz, 20 1/2 in long
2 weeks...8 lbs 1 oz, 20 1/2 in long
1 month...8 lbs 7 oz, 20 1/2 in long
2 months...9 lbs 3 oz, 20 1/2 in long
4 months...9 lbs 3 oz, 20 1/2 in long
6 months...9 lbs 5 oz, 20 1/2 in long
9 months...12 lbs 10 oz, 22 in long
12 months...12 lbs 10 oz, 22 in long
15 months...17 lbs 5 oz, 23 in long

At ten months old we called the doctor because she ate a chunk of her wooden crib while I was getting ready for work (a six inch wide, one inch deep chunk) and the doctor didn't even want to see her, said they thought she would be fine. All this time she also had anywhere from 5-9 watery diapers a day (it got worse after eating the crib) and first it was infant D, then it was toddler D but never was it anything to worry about. At a year old we tried to give her fat free milk mixed with formula and she had an explosion in her diaper 15 minutes later so the doctor told us to give her soy milk.

By the time she was 15 months old she was sleeping 21 hours a day and when she was up only ate a tiny bit and wouldn't play. I went looking for answers myself and came across this website so I called the doctor and asked them if Celiac was a possibility and they told me that was most likely the problem and to go gluten free right away, no testing because we had no insurance. She was so incredibly sick that we went gluten free right away and things were going fairly well with no watery diapers until one day her poop looked like coffee grounds, I took her to the hospital and they confirmed that it was intestinal blood, but they sent her home without doing anything because we had no insurance. We figured out by eliminating foods that soy causes intestinal bleeding for her and also other foods that bothered her belly.

Now she is doing well healthwise, she is just an anxious child and is afraid of alot of things.
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#84 alex11602

 
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Posted 10 March 2012 - 07:35 AM

Oh forgot about my favorite one for my oldest daughter...whole milk caused her alot of phlegm and she would gag, but it took us awhile to figure that out. We took her to a doctor who asked if we had pets and we told him that we had a dog. He told us she was allergic to the dog and to get rid of it so I said that it was my moms dog and we lived with her so he then proceeded to tell us to move out of her house. Like it would have been that easy!
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#85 love2travel

 
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Posted 10 March 2012 - 08:28 AM

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

This is so they can charge for 2 visits...

U N B E L I E V A B L E ! ! ! This makes me speechless and furious and so very sad for you. :angry: :(

When I see my doctor I take a whole list with me and we go through it carefully. He always asks, "Is there anything else you'd like to know or have questions about?" He really takes his time. In a way it can be annoying because that means very long waits in the waiting room but I would far rather have that.

These stories absolutely sicken me.
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#86 JoyfulGF

 
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Posted 10 March 2012 - 10:16 AM

I was seeing an endocrinologist last summer who was determined to DX me with PCOS(this was before I was DX with Celiac). I just knew that's not what it was. She kept asking me if I had hair growth on my chest and I kept telling her "No" and she also said my PCP didn't know what he was doing(and I trust him over her) when he did bloodwork . So, when she examines me, she checks my belly and then listens to my heart, then (how I know she didn't believe me when I told her I didn't have chest hair) she did a quick check of my chest by pulling at my shirt and looking down at my chest! Like I didn't notice that! Guuur I was really upset with her and then when we got the bill, $200 just for us to go talk to her! I called and canceled the following appt and requested my blood work. When I went to the office to get the blood results, the receptionist asked if I wanted the reschedule the canceled appt. I said "No, I'm going to see my PCP about these results."
She gave me the look of death, like I just shot her most beloved pet. That was the last time I went there and I will not be going back.

My PCP worked with me and listened when I suggested Celiac. He didn't find anything else wrong. No PCOS, and no thyroid problems.
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Married my best friend May '08
Fertility problems since fall of 08
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Highest weight:178
Down to: 155 Yay!
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#87 Bubba's Mom

 
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Posted 10 March 2012 - 12:36 PM

Some of these are horrible, it's ridiculous.

I think most of my bad doctor stories relate to my youngest daughter, starting when I was pregnant with her. With both my girls I had amniotic leakage and preterm labor (with the first one it was at 27 weeks so they monitored and put me on bed rest) with my youngest it was at 21 weeks the doctor sent me back to work and told me that every woman leaks alot of amniotic fluid every night. The same doctor sent me home when I was having contractions every 3 minutes when I was 28 weeks. The doctors also said that it didn't matter to the baby that I couldn't get my blood sugar under control with diet. News for them...it made a big difference, my daughter had a blood sugar reading of 31 when she was born.

When she was finally brought back to me after the doctors got her sugar stabilized she wouldn't eat, threw up everything. Her first day of life she took in only 6 oz of formula since the nurses told me that I couldn't try and breastfeed her anymore since she wouldn't latch. My favorite part is with all this they still discharged her 30 hours after she was born to free up the beds.

We kept bringing her to the doctor for weight checks because she was still having trouble eating (never could tolerate milk based formula, but they had me keep giving it to her), was anemic (hemoglobin was 7.4) despite being formula fed and not gaining weight. They never looked for a cause or anything. This was her measurements up until we went gluten free.

At birth she was 8 lbs 8 oz, 20 1/2 in long
2 weeks...8 lbs 1 oz, 20 1/2 in long
1 month...8 lbs 7 oz, 20 1/2 in long
2 months...9 lbs 3 oz, 20 1/2 in long
4 months...9 lbs 3 oz, 20 1/2 in long
6 months...9 lbs 5 oz, 20 1/2 in long
9 months...12 lbs 10 oz, 22 in long
12 months...12 lbs 10 oz, 22 in long
15 months...17 lbs 5 oz, 23 in long

At ten months old we called the doctor because she ate a chunk of her wooden crib while I was getting ready for work (a six inch wide, one inch deep chunk) and the doctor didn't even want to see her, said they thought she would be fine. All this time she also had anywhere from 5-9 watery diapers a day (it got worse after eating the crib) and first it was infant D, then it was toddler D but never was it anything to worry about. At a year old we tried to give her fat free milk mixed with formula and she had an explosion in her diaper 15 minutes later so the doctor told us to give her soy milk.

By the time she was 15 months old she was sleeping 21 hours a day and when she was up only ate a tiny bit and wouldn't play. I went looking for answers myself and came across this website so I called the doctor and asked them if Celiac was a possibility and they told me that was most likely the problem and to go gluten free right away, no testing because we had no insurance. She was so incredibly sick that we went gluten free right away and things were going fairly well with no watery diapers until one day her poop looked like coffee grounds, I took her to the hospital and they confirmed that it was intestinal blood, but they sent her home without doing anything because we had no insurance. We figured out by eliminating foods that soy causes intestinal bleeding for her and also other foods that bothered her belly.

Now she is doing well healthwise, she is just an anxious child and is afraid of alot of things.

Your daughter's story breaks my heart. :( I don't understand why they didn't look for a reason why she wasn't growing. Isn't that their job...the reason why we take our babies to the Dr.s? Not doing tests because of insurance when a child is bleeding internally is insane!
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#88 Bubba's Mom

 
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Posted 10 March 2012 - 12:37 PM

I was seeing an endocrinologist last summer who was determined to DX me with PCOS(this was before I was DX with Celiac). I just knew that's not what it was. She kept asking me if I had hair growth on my chest and I kept telling her "No" and she also said my PCP didn't know what he was doing(and I trust him over her) when he did bloodwork . So, when she examines me, she checks my belly and then listens to my heart, then (how I know she didn't believe me when I told her I didn't have chest hair) she did a quick check of my chest by pulling at my shirt and looking down at my chest! Like I didn't notice that! Guuur I was really upset with her and then when we got the bill, $200 just for us to go talk to her! I called and canceled the following appt and requested my blood work. When I went to the office to get the blood results, the receptionist asked if I wanted the reschedule the canceled appt. I said "No, I'm going to see my PCP about these results."
She gave me the look of death, like I just shot her most beloved pet. That was the last time I went there and I will not be going back.

My PCP worked with me and listened when I suggested Celiac. He didn't find anything else wrong. No PCOS, and no thyroid problems.

Errr..what if you had chest hair..but shaved it..or plucked the hairs? LOL It's kind of ridiculous when a Dr. makes up their mind about a DX then tries to manipulate the facts to fit their theory!
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#89 Celtic Queen

 
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Posted 16 March 2012 - 11:08 AM

Turns out I also had a couple gallstones and constant gallbladder attacks for years, but at least four doctors kept saying I was "too young for those, so we will run tests for something else". Strange that I had every symptom of gallstones but doctors just waved that idea out the door.


The "you're too young for this" comments drive me crazy. A friend of mine's 15 year old son is sick with Stage 4 Pancreatic Cancer. Usually only 60 year old men get this disease. But he still has it. So, what are the doctors going to say to him? "You can't have chemo because you're too young to get this disease." Luckily he has excellent, non-stupid doctors and is getting treatment at St. Jude Children's Hospital.

My stupid doctor story is from before I was diagnosed Celiac. I went through a period in my 20s where I passed out a lot. They couldn't figure out why exactly, so I kept getting shuffled from one specialist to another. One time I was sent to a Neurologist. He walked in the room, took one look at me and said, "You have migraines. That's why you're passing out." I told him, "I have never had a migraine in my life." He kept insisting that I had migraines. Now one of my best friends does suffer from them, so I've seen how bad they can be. I've had headaches, but never one as serious as a migraine. He still wouldn't listen to me. This went on for about 10 minutes. He gave me a prescription for migraine medicine and I went ahead and took it to prove to him that it wouldn't work. Sure enough, I passed out again about a week later. I was never so happy to pass out in my life :D

Another one, again not Celiac related but still stupid, concerns my son. When he was two, he fractured his leg. After he had his cast taken off, he kept complaining about his leg hurting. So I called his orthopedic doctor and made an appointment. They took an x-ray. After the x-ray, he was sitting in my lap while we were waiting for the doctor. Mr. Big Shot Doctor walked in the room, said, "The X-ray looks fine." and walked out. My child never left my lap. The doctor didn't ask to see him walk, ask us any questions about the pain, or lay a hand on him. :angry: We immediately went to another doc, who said his leg was still healing and she promptly send him to physical therapy. Like Irish I wrote a polite, yet very pointed letter to the doctor and never heard a word back. I was so angry. You don't mess with a mama lion's cub B)
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Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#90 maximoo

 
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Posted 17 March 2012 - 01:55 AM

jane, your long suffering unexplained bouts of dizziness reminds me of a Mystery DX episode I recently saw. Look up "disembarkment syndrome" If its not ur condition I hope that you get pointed in the right direction at least. Good Luck!
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