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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A.D.D.
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Here is something interesting. I used to be an avid reader, but last year, during my second vegetarian phase, I lost all desire to read. This along with mild depression. This happened the first time I went vegan too. It had to be increased consumption of bread and pasta to make up for lack of meat. Now being gluten free for a month, I am back to enjoying reading, and feel much better emotionally and mentally. I'm NOT going back. Also, my A.D.D. symptoms have improved. Anyone else?

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Since you're back to reading now, I'd like to suggest a great book that includes a discussion on gluten associated with ADHD and ADD. It discusses the myriad neurological problems that can be caused by gluten, and it's the best book I've ever read on nutrition. It's called, "Primal Body, Primal Mind," by Nora Gedgaudas, and you can buy it quite cheaply through (Company Name Removed - They Spammed This Forum and are Banned). It sounds as though you've ceased eating a vegan/vegetarian diet, which is good, because the author points out that neurological damage is oftentimes the result of such a diet.

By the way, I noticed that you posted four times on the same subject, so some people might think they represent one posting that appeared multiple times. If you decide to add information to your original post, you can click on "edit" just below your posting, and the system allows you to go back into your original text so that you can revise or add to it. I know you're new at this....so I just thought I'd mention it. Welcome to the Forum! You'll find many knowledgeable people here.

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Thanks. Multiple postings prob A.D.D. symptom. Its a lot better but not gone. I think the gluten intolerance might make you more susceptible to diseases or magnify the symptoms if you already have them. Thanks for helping this rookie out! I especially want to help kids so they dont have to go through what I did-just think-eating gluten can be the cause of some mental and emotional things, especially when your hormones and systems are just developing.

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I agree with you wholeheartedly! Sadly, I oftentimes see young people (some as young as five) who suddenly develop neurological and emotional problems. The education system seems ill prepared to recognize what may be causing the sudden, strange behavior, and these young people end up in special schools or expelled. I believe that educators need to be informed of food intolerances and their effects on behavior.

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This is so interesting! I'm ADD and have experienced the same thing! I've only been gluten-free for one week now so I can't say I've seen any improvement in that...

When I went vegan and vegetarian I got SO sick. I thought I wasn't eating right and now getting enough nutrients, but I now find it was because I was taken in a lot more of the gluten-containing foods like wheat. I'm really looking forward to getting good at being gluten-free and then going vegan again.

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This is my first post on the forum. I am happy to say that within a week of going gluten free my ADD symptoms disappeared. I'd been dealing with many of the ADD issues since childhood, and into my 40's. I always struggled with names, faces, reading fiction, impulsive behavior, etc. I had a substantial personality change after dropping the gluten, all positive changes too.

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How do you think we should inform educators of this? I'm all ears.

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It seems it will take many yrs before the education systems will embrace gluten intolerance as a possible cause of ADD and resulting learning disabilities. As a former high school teacher myself, I must admit that I was skeptical of the ADD diagnosis as a cause of behavior and poor student performance. However, I always knew that I too had all the classic ADD symptoms myself.

But at age 44 I discovered that I was gluten intolerant--- within one week of being gluten-free, I felt a miraculous transformation. Not only gut-wise, but suddenly (for first time in my life) I had no ADD symptoms. Imagine the improved lives of thousands (possibly millions) of school age kids once gluten free is understood as a possible cure--- perhaps better behavior, higher test scores, greater success, happier lives!

But it's very complicated. For instance- imagine the challenge of making a public school cafeteria gluten free!?

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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