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Who's In Their 20's?

GlutenFreeStudent

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LRgirl Explorer
LRgirl
Posted

Hi,

I'm 26 and from Maryland. It has been hard adjusting to my gluten intolerance as well as other allergies. You'll find this to be a very helpful and supportive board.

Traci

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Guest zipy
Guest zipy
Posted

Hi there! I'm 25 and was dxed about 1 month ago. I'm a grad. student at ASU and it's hard to be gluten-free. All the parties, socials, gatherings...free pizza by the Greek rush ....it's not much fun to be on the outside of all the "fun" and normal stuff. I was thinking about seeing if there is gluten-free student support group on campus, or maybe looking in to starting one? I mean, what do students stuck in the dorms eat when they buy a meal plan? Hang in there...I'm making all my own foods from scratch and it is a pain and does take a lot of time...but they taste good! I chewed my husband out the other day for eating my home-made gluten-free granola bars when we have a pantry full of the store bought ones...he said he liked mine better! Lol!

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happygirl Collaborator
happygirl
Posted

It's nice to know that there are others out there that are young and living gluten free (or trying the best we can!). I've never met anyone with celiac disease so it makes me feel better to know that there are others like me :)

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VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I just turned 30 a few months ago (ok, 7 seven months ago).

I have been diagnosed since 1997.

The first couple of years were difficult, but they got easier.

You should always be reading about celiac disease and always be reading about food. I have plenty of cookbooks and food-educational sources at home. The more knowledge the better.

This site is great, better than any Doctor I have ever seen. Welcome!

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Ken Guzzardo Newbie
Ken Guzzardo
Posted

Hey everyone, my name is Ken and I'm 24 years old. I was diagnosed in October, and had been getting sick for about 5 years previously. I'm new to all this posting stuff, but I wanted to hear from more people my age that have this disease. GFSTUDENT, if you allow your body some time to heal; there's a good chance that you will be able to tolerate more foods in the future. Eating a very restrictive diet for a limited time is a small price to pay if it buys you years of health in the future. As someone else posted (I forget who), dealing with eating out with friends is a difficult situation for me. My friends will laugh when I bring my cooler of food on the golf course, as they're all toating their coolers of beer, but oh well. A quick note to everyone.. I recently returned from Disney World, which was the first vacation I have taken since being on the diet, and I would definitely recommend it to anyone. As long as you make all the reservations with advance notice and alert them to your restrictions, they were more than accomodating. Each head chef came over to talk to me, which made the trip a lot less stressful for me (and therefore my girlfriend). I'm living outside of Philly, so anyone in the area email me or post back... i haven't met anyone aside from 50 year olds with this, so it will be nice to talk to someone more my age.

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emeraldskies Rookie
emeraldskies
Posted

I'm 27 and was diagnosed with celiac disease slightly over a year ago, but I've had signs of it since infancy.

I'm in my twenties, too. I think people our age are more open to the idea of food causing illness, compared to my grandparents' generation. I think it's because there's more awareness now that not everything can be solved with a "suck it up, get over it, and move on" --type attitude. You know, the mentality that says, "if I don't see gushing blood, you're just fine." Has anyone else noticed this? In my experience, when I tell someone 30 years older than me what celiac disease is, I'm much more likely to get a skeptical reaction than if I tell someone my own age.

<{POST_SNAPBACK}>

Yes, I've had a similar reaction even though I had most of the same health issues (and more) as the middle aged people I'd encounter. I was also told, "You're young; you'll bounce back from anything" repeatedly pre-diagnosis. I still haven't bounced back.

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Lauren M Explorer
Lauren M
Posted
I'm living outside of Philly, so anyone in the area email me or post back

<{POST_SNAPBACK}>

Hey Ken - I'm in grad school at Drexel!

Do you ever visit Mr. Ritts in Philly?

- Lauren

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Ken Guzzardo Newbie
Ken Guzzardo
Posted
Hey Ken - I'm in grad school at Drexel!

Do you ever visit Mr. Ritts in Philly?

- Lauren

<{POST_SNAPBACK}>

Hey Lauren - I've been to Mr. Ritts a couple of times. Their jewish apple cake is ridiculously good. what are you going to school for? i graduated from jefferson last year.

ken

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Lauren M Explorer
Lauren M
Posted

Ken,

I'm getting my masters in Publication Management. I have my bachelors in Rhetoric & Communications. For one of my grad classes last year, I "created" a magazine entirely about Celiac disease and the gluten-free diet :P

I think EVERYTHING at Mr. Ritts is ridiculously good! I'll have to try the apple cake next time. I got my birthday cake from them last year (my only request was that it had to have chocolate and it had to have peanut butter) and they came up with something that was to die for :D

It's cool to find out about others my age with celiac disease! And you're all so nice!

- Lauren

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frenchiemama Collaborator
frenchiemama
Posted

I'm in my (late) 20's as well, but I have to say that I haven't had too much trouble with people regarding celiac disease overall. My husband's family have really been the only ones to have a strange reaction ("can't she just take some benadryl?").

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jkmunchkin Rising Star
jkmunchkin
Posted

Welcome! I'm 27 (will be 28 in just over a week). I just found out a couple months ago that I have celiacs, but have most likely had it for nearly 10 years. Atleast now I know why I was always sick.

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      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

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    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
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      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
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