Who's In Their 20's?
Posted 27 August 2005 - 02:19 PM
Just conjecture here.
Posted 27 August 2005 - 05:26 PM
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.
"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
Posted 27 August 2005 - 05:54 PM
I'm twenty-.....oh, wait, no I'm 32 I forgot But I did have undiagnosed celiac all through my twenties (from 19-31), and had restrictive diets during that time, and also was on near bed-rest for a while at first. It was really really hard.
Welcome, and ask lots of questions here Are you in LA? We're having a meet soon.
Posted 27 August 2005 - 06:12 PM
I don't know about the other celiacs out there, but when I hear that others are not only gluten limited, but rice, potato, etc, it really puts my gluten intolerance in perspective. It is so easy to get caught up in this disease and feel bad for yourself (I felt this way after being diagnosed 6 yrs ago), but now I just think about it and say it could be worse! Many others have it worse than we do unfortunately.
To the newly diagnosed celiacs, you are going to get a lot of clueless people asking you dumb questions and others making you feel bad about your illness. However, you really can't let them get to you! Eventually your friends will get used to you carrying food around with you (I never leave home without my cooler-haha) and you will just phase out the negative comments. Do not forget, this is what you need to do for your health! I found that controlling my celiac has been empowering because it made me a stronger person in the process.
Gluten-free since May 1999-- My 10 yr anniversary is coming up!
Lactose Intolerant since March 2006
Posted 27 August 2005 - 11:02 PM
I get bad reactions to potatoes and rice. My stomach hurts for 5 days after eating them. I've gone through a trial and error process, figuring out which foods in addition to gluten make me sick. I am thankful that I have a couple safe complex carbs, like yams and corn. My doctor has advised that I stick to the diet I'm on for about a year (until next March) and maybe then I can re-consider adding potatoes or rice. My body is badly damaged and I'm best suited to soft, easy to digest foods, like steamed fish and baby food.
I'm hoping to graduate from baby food to pureed "real" vegetables with the cellulose coverings. Fresh corn and peas have a lot more nutrients than jars that have been on the shelf for 3 months, not to mention they taste a lot better! I have to increase my fiber gradually because things just sit in my stomach and ferment when they aren't being digested.
I would love to meet up with you guys, but I live near San Diego and I'm having a pretty hard time with going out (for the time being). I've been hospitalized this year and been on bed rest. My first step back into the real world is my college courses 3 days a week. Doing that one activity 3 days a week is just about all I can handle for now. *sigh* Hopefully I will get stronger again.
The .gif in my avatar picture is supposed to be transparent and have "moving" sparklies. I don't know what happened there, but at least I got the file uploaded.
Posted 28 August 2005 - 10:41 AM
I could hardly eat anything at first that wouldn't make me sick - not even brown rice, which is what I was told to eat since *nearly* everyone can tolerate that. Not me. So I stayed sick for awhile even after going gluten-free. I did find out that I also had a candida problem that was making me feel even worse. So I got that under control, started taking vitamins and started doing VERY MINIMAL exercise. It's gradually gotten better. I can eat anything now - except gluten of course!
Hopefully the same will happen for you. Adding fiber is an excellent thing to do. When I started taking a multi-vitamin everyday, I also started taking psyllium husk 3 times a day. The fiber has majorly helped with the bloating and constipation I used to have.
Another thing I did was to avoid all the packaged gluten-free foods out there. They are great once your body starts healing, but at first it was too much for me to handle. I stayed on a diet of meats and veggies for over a year. I've just gotten into all the baking and the pastas.
So good luck - and you're not alone. Ask lotsa questions. The people around here are great.
Posted 28 August 2005 - 09:16 PM
I just signed up for this forum. I'm 24, and I'm from California. I've had Celiac disease I'd estimate for at least 10 years, maybe longer. I just got my correct diagnosis a few months ago and I've been sick all those years. I would like to meet other Celiac people online for support and friendship.
The list of things I can't eat is pretty long: No gluten, dairy, white potatoes, tomatoes, rice, apples, vinegar, peppers, coffee, and all vegetables have to be pureed into tiny liquified bits. That pretty much leaves meat, fish, sweet potatoes, nuts, seeds, dried fruit, honey, and corn... and my lovely gruel from the blender, made with mixed green veggies and a half of banana. All my food has to be made fresh, which takes a lot of time, and I have to carry it around with me when I go out, which makes me look like a geek!
I am curious to find out how other people my age live with this disease. My friends constantly eat junk food and eat out and go to coffee shops and bars and drink. All alcohol makes me sick, and there's not a single carbohydrate restaurants serve that I can eat. I don't like to draw attention to myself in a group. Once people find out about Celiac disease, they make a really big deal about it and say things like "I could never live on a diet like that, hahaha" or "You poor thing, how tragic" and stuff like that. It just makes me angry/sad and I feel like I should try to keep it a secret when possible. People can be mean when they insist that I choose to be picky about my food and that I just have a picky personality.
I have been extremely weak since about January. I have been mostly gluten and dairy free since March, but I continued to eat oats up until last week. Big mistake, I found out! I've spent most of this year on bed rest. I'm not getting stronger fast enough for my taste, and I'm really frustrated about that. I just got some gluten free vitamins, so I'm praying that will help. I'm sure that this forum is full of good advice, and I look forward to meeting some new people...
I'm 26, and have been gluten-free for two years and CF for one, also from California. It hasn't been too hard, but my friends are all pretty understanding of it and even sorta protective of me. :-) It just takes time... I still have bits I struggle with, depending on how stressful stuff's been in my life.
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 29 August 2005 - 08:32 AM
I am a student also (grad student) and it is extremely difficult when friends want to go out for pizza and I'm stuck snacking on a protein bar that I brought along. I hate drawing attention to it as well, and most of my friends know this and try to steer the conversation away from it if that's where things are heading.
Welcome and feel free to e-mail me anytime, even if you just want to vent! I've found the Celiacs I've met through support groups and other functions to be the nicest people and so genuinely willing to help out in any way with advice and even just a shoulder to lean on. I don't think I could have gotten through my first few months after my diagnosis if it wasn't for my local support group. Now it's my turn to pay it forward!
Posted 29 August 2005 - 08:29 PM
"I'll pay you $20 to eat this crumb."
That is hilarious!
I was diagnosed shortly after my 30th birthday this year. It was really a blessing in disguise. I was expecting my 30s to be sort of the beginning of the end, so to speak. But now I feel healthier and happier than I ever have in my live as a result of this diet. I have fewer wrinkles, healthier hair, better posture, flatter stomach (no more bloated stomach, yay!!), more energy, sleep better, less 'emotional' etc, etc, etc... Once you start feeling better, you realize that the diet is a small price to pay for your health, happiness, and even vanity. Yes, eating out, traveling, get-togethers, etc suck if you aren't prepared food-wise, but there are far worse diagnoses to get. Can you say cancer? At least with Celiac, things should get better, not worse in time....
Posted 30 August 2005 - 06:42 AM
Every social situation I am in revolves around food it seems. From potlucks at friends houses to restaurants. A lot of movies too, but that doesnt have to be around food. I have learned to use the word "plain" a lot.
I am lucky i guess that i have a friend who is low carb, so she usually trys to go to places who will accomodate that, and usually that means i can eat too. Although sometimes she complains about being low carb and how hard it is, which always makes me want to scream.
I would rather be gluten-free than the other situation when i used to cancel going places with my friends because i was afraid that i would get really sick in front of them.
Posted 31 August 2005 - 07:05 AM
I'm 26 and from Maryland. It has been hard adjusting to my gluten intolerance as well as other allergies. You'll find this to be a very helpful and supportive board.
Posted 01 September 2005 - 07:23 AM
Posted 01 September 2005 - 10:17 AM
Posted 01 September 2005 - 02:08 PM
I have been diagnosed since 1997.
The first couple of years were difficult, but they got easier.
You should always be reading about celiac disease and always be reading about food. I have plenty of cookbooks and food-educational sources at home. The more knowledge the better.
This site is great, better than any Doctor I have ever seen. Welcome!
Posted 01 September 2005 - 03:52 PM
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