Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Banning Gluten Fromthe House!?
0

11 posts in this topic

So I have known I have DH for about 10 months now. What a relief to know what is going on....however changing my life around while still taking care of my family has been a challenge. I have lots of great gluten free recipies that I use. For several months last fall I just said no gluten in the house at all because my rash was so severe and I felt so sick I needed to be sure I was not contaminated. All it takes is a grain for me to feel the effects. When gluten was out of the house I healed up and felt better. Since Chirstmas there has been regular bread and tortillas in the house. It seems that no matter how careful everyone is with clean up and trying to prevent cross contamination, my rash is back in full force and I feel miserable. So I relly need to ban the gluten once again but I feel bad that as everyone likes their white bread and tortillas etc. I feel like i should be able to find a way top make it work. Any one else ban gluten in their home because they were so sensitive that it was necessary for them to stay healthy.

Any insight or support is appreciated :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm really thinking about banning it as I'm still feeling so sick at times. But it may be just because I'm in the process of healing.

0

Share this post


Link to post
Share on other sites

I haven't gone that far but if I think about what we would do if I did, I would switch all their tortillas to soft and hard shell corn and set up a sandwich making station in the garage. My DH only uses bread for sandwiches and only eats/takes them to work, not at home so since we have an extra fridge in the garage, I could set up a small table and keep cutting board, knife etc out there. The only thing would be that they would have to get washed somehow-maybe a plastic tub to carry them into the house with and take to the sink so the crumbs would be confined to tub and sink? Maybe burger and dog buns only on grill out/eat outside days?

Just some ideas that may/may not work for you.

Good luck working it out.

0

Share this post


Link to post
Share on other sites

For the most part, yes. I do allow gluten beer and some Trader Joe's Oatios. The beer isn't the problem, it's the Oatios ...or rather my son and the dog and the Oatios.

In the beginning my son (9) was good about being neat with them, but now I find them everywhere. And this morning the dog ate a bowl of them. So no, I don't think it's working!

I banned gluten for all the reasons you mentioned. And the few times I've tried gluteny hot dog or hamburger buns it's a logistical Gluten Police nightmare with me screaming "NO DON'T TOUCH THAT, you touched the buns!". My husband told me not to bother because it's a PITA to deal with.

If they'd wait to eat at the table it would help but they won't get the heck out of the kitchen and let me deal with it and put it on the table. Grrr.

I can touch gluten without a problem (I was my hands immediately). The dog thing bothers me most...

0

Share this post


Link to post
Share on other sites

Not to mention that dog's are allergic to gluten. So the dog shouldn't have them.

0

Share this post


Link to post
Share on other sites




My spouse volunteered to do this, after seeing me get knocked down one too many times by cross contamination. If he wants regular bread he eats it out at work lunches or on business travel, or rarely, at a fast food place. Bread at home is gluten free, either from a gluten free bakery, a store that sells gluten-free bread, or I make it. (I don't eat much grain bread that is purchased, regardless of source.) Tortillas are corn tortillas and we keep a lot of rice cakes around for snacks.

Our large, senior house dog is very allergic to wheat and will scratch himself a huge nasty hot spot in a heartbeat if he gets cross contaminated, plus he'll throw up and poo all over.... and my spouse's horse has massive allergies, including rye grass, soy, and barley, but as long as we keep it off the premises, for everyone and everything, everybody does much better. This means the cat foods also, because the cats can cross contaminate the dog and horse water. I don't dare feed a regular biscuit to anyone, because there is nothing worse than having a #130 lb animal and a #1000 lb animal scratching because it was cheaper. Last year, the 2nd summer on new cat food for outside cats, was probably the best ever I have seen that horse look, since he was about 5 years old. When he eats the wrong thing he becomes hypersensitive to many herbs and chemicals and cannot be fly sprayed- and he's also allergic to fly bite venom, but this way he can get flysprayed, and doesn't welt up from getting bitten.

It's a no-brainer that the animal care person-in-chief needs to be functional enough to take care of the rest of them. I get neurological problems (ataxia) when I get glutened, and it's not possible for us to keep the house cleaned up with our smallish kitchen if it were mixed.

0

Share this post


Link to post
Share on other sites

The only gluten we allow in the house is in beer, and it must be opened and consumed outside the kitchen area. This created a problem with our (adult) kids for a while and our grandchildren. The finally understood that I was serious. The only problem I still have is occasionally they will come in with cookie crumbs on their clothes. But we make sure we have safe foods and snacks for them. And now all our kids and their SO ask about anything before they bring it in. They'll even call me sometimes to check on something if they are coming over and planning on bringing something with them.

We did have a couple of pretty heated arguments early on, and it was hard on both my wife and I but it did work out. The most difficult part actually is guests who feel obligated to bring foods if we are having company but I've finally worked that out (externally and internally). We have a spiel we give them, which while not entirely accurate serves to get the point across. I have offended a couple people who ignored and brought 'just a salad', and 'just a pie' and I wouldn't let them bring them in the house. But I decided that after being so sick for so long, and knowing the consequences of days and weeks of payment, it wasn't worth the risk to my health or our marriage. I'm not very pleasant when I'm glutened, and if I get soy it is even worse (I have a similar rule about soy).

0

Share this post


Link to post
Share on other sites

Korwyn, I would dearly love to read your spiel you give guests which gets the point across. We have not had any guests as yet since i went gluten free slightly over 2 months ago but I have been racking my brain for what exactly to tell people the first time it comes up. I keep trying to think what will really get the point across.

0

Share this post


Link to post
Share on other sites

Korwyn, I would dearly love to read your spiel you give guests which gets the point across. We have not had any guests as yet since i went gluten free slightly over 2 months ago but I have been racking my brain for what exactly to tell people the first time it comes up. I keep trying to think what will really get the point across.

OK. :) It goes something like this: Don't bring food over or I'll kill you! :ph34r:

No, seriously, I have a couple variations depending on if they know something about my 'food thing' or if they are totally in the dark.

Hi, <blah blah having a party blah blah or whatever>. We'll have tons of foods/drinks/snacks/etc so we really won't need any extra food. Besides, I don't know if you're aware, but I have some food related issues that are genetic and cause serious health problems if I come in contact even with trace amounts. So please don't worry about bringing any food, and in fact if you have something specific you like I can usually find a safe version of it to have! Whats your favorite (food/drink/finger food/etc) ?

That is kinda of a nutshell version. I vary it obviously depending on what we're doing, is it a group, is it a sit down full meal, etc. I've been surprised at how many people have asked me 'is it gluten/wheat' or some variation thereof ("oh is it that gluten stuff?" was one of my favorites). It actually gives me opportunities to talk to people about celiac disease and gluten (along with processed foods, gmo, how soy effects hormones, etc). I would guess that in the last three years now I have probably a dozen or more families/individuals where one or more person is now gluten free as a result of this.

0

Share this post


Link to post
Share on other sites

Thank you very much & also for the quick reply. I think you thought it out quite well & it doesn't offend anyone.

I too like to make people aware of celiac disease & gluten & soy & so forth. I always think it might help them or a member of their family one day or even a friend of theirs. Because you just never know.

0

Share this post


Link to post
Share on other sites

We tried for a year to try to get a shared household to work. We tried all sorts of separate areas etc. Celiacs didn't come near gluten stuff etc., but we just kept getting sick. Finally when we made the household gluten free, things worked out better. The gluten eaters were still able to eat gluten at work and school, and then they washed up immediately when they got home. Then the celiacs stopped getting sick so much. We are very sensitive. I know many who can even cook for gluten eating children. It just depends on how sensitive you are.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,380
    • Total Posts
      917,560
  • Topics

  • Posts

    • Newbie: mother to coeliac kids
      Research indicates that the celiac disease blood test results do not necessarily correlate with intestinal damage.  My blood tests were "barely positive" yet I had a Marsh Stage 3B (moderate to severe damage).   But that's not important.  Your boy's health is more important!   I can see why he is suffering so much.  The good news is that he should feel well much faster because he is young.  My heart goes out to you and your family!  
    • Newbie: mother to coeliac kids
      Sorry, but I would have to remind you and those who are newbies, that a whole foods, well-cooked diet is probably best.  Avoid all processed foods.  If you have severe intestinal damage, the villi tips are so damaged (or non-existent) that they can not release all the necessary enzymes, etc. to help a person digest and absorb food well or barely!!!  Many celiacs are lactose intolerant until healing occurs (for life if you are genetically lactose intolerant like many Asians, for example).  Many celiacs have developed additional foods intolerances, so it is recommended that you keep a food and symptom journal.   Some folks might be corn intolerant and other might have issues with nightshades (like potatoes).  Others might have issues with even a good veggie like cauliflower.  I personally can not digest cauliflower after a good glutening for some unknown wacky reason.  What I am trying to say, is that everyone has to figure it out on their own because we all have different issues related to celiac damage.  Lactose intolerance is the most common and a good place to start especially with SEVERE intestinal damage like Marsh Stage 4.   
    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
    • Newbie: mother to coeliac kids
      If I am rembering correctly,  Marsh 4 is the worst damage.  So he should avoid dairy products like cheese, milk, butter, cows milk ice cream for a couple of months. celiac damages the tips of the villa that help to digest lactose ( which is in most dairy).  Being unable to digest dairy will lead to more bloating, gas, etc.. 
    • need advice
      I'll keep this as short as possible, sigh. I remember having constipation all the time till i was 10 or 11 then i started getting diarrhea all the time. Ive never been able to pin my diarrhea to a certain type of food it always has been at random. Or it seemed that way. Sometimes ill have normal BMs for a couple weeks then diarrhea for a week or normal for a day or two diarrhea for a day or 2. I started getting tingly numb hands this year, i get sick all the time, i had one rash on my stomach i couldnt get rid of for years the doc said was dermatitis. So many more symptoms that line up with celiac. Heres the beef though- 7 months ago i had my first panic attack ever. I thought it was triggered by giving up chewing tobacco and the withdrawals coupled with stress at work and being a new dad but after reading about the connection between gluten im not so sure. The past 7 or 8 months have been hell. Constant anxiety, i dont get as kany panic attacks as i did in the beginning but now im suffering from depression. So, i started gluten free 2 days ago. The second day i started having horrible anxiety and a panic attack like my first one. Extremely intense.  Is that a sign that maybe i do have celiac or intolerance that coming off would make symptoms worse? I want to get tested but ive been to the ER 3 times and seen so many docs, psychiatrists and therapists trying to figure out a cause, i cant afford anymore. I dont think i can just one day bam! Have all this anxiety without a cause. Can i just do my best to stay gluten free and see what happens or is it very important to be tested? Also, will any gastro be able to test me? If i go to a gastro should i even bring up the anxiety and depression? Everytime i do i get a response similar to " its all in your head " and they just want to throw pills at me. I'm so lost to how my life got so messed up in 7 months. I need this to be the answer.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,519
    • Most Online
      1,763

    Newest Member
    lesleeann
    Joined