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Banning Gluten Fromthe House!?
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So I have known I have DH for about 10 months now. What a relief to know what is going on....however changing my life around while still taking care of my family has been a challenge. I have lots of great gluten free recipies that I use. For several months last fall I just said no gluten in the house at all because my rash was so severe and I felt so sick I needed to be sure I was not contaminated. All it takes is a grain for me to feel the effects. When gluten was out of the house I healed up and felt better. Since Chirstmas there has been regular bread and tortillas in the house. It seems that no matter how careful everyone is with clean up and trying to prevent cross contamination, my rash is back in full force and I feel miserable. So I relly need to ban the gluten once again but I feel bad that as everyone likes their white bread and tortillas etc. I feel like i should be able to find a way top make it work. Any one else ban gluten in their home because they were so sensitive that it was necessary for them to stay healthy.

Any insight or support is appreciated :)

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I'm really thinking about banning it as I'm still feeling so sick at times. But it may be just because I'm in the process of healing.

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I haven't gone that far but if I think about what we would do if I did, I would switch all their tortillas to soft and hard shell corn and set up a sandwich making station in the garage. My DH only uses bread for sandwiches and only eats/takes them to work, not at home so since we have an extra fridge in the garage, I could set up a small table and keep cutting board, knife etc out there. The only thing would be that they would have to get washed somehow-maybe a plastic tub to carry them into the house with and take to the sink so the crumbs would be confined to tub and sink? Maybe burger and dog buns only on grill out/eat outside days?

Just some ideas that may/may not work for you.

Good luck working it out.

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For the most part, yes. I do allow gluten beer and some Trader Joe's Oatios. The beer isn't the problem, it's the Oatios ...or rather my son and the dog and the Oatios.

In the beginning my son (9) was good about being neat with them, but now I find them everywhere. And this morning the dog ate a bowl of them. So no, I don't think it's working!

I banned gluten for all the reasons you mentioned. And the few times I've tried gluteny hot dog or hamburger buns it's a logistical Gluten Police nightmare with me screaming "NO DON'T TOUCH THAT, you touched the buns!". My husband told me not to bother because it's a PITA to deal with.

If they'd wait to eat at the table it would help but they won't get the heck out of the kitchen and let me deal with it and put it on the table. Grrr.

I can touch gluten without a problem (I was my hands immediately). The dog thing bothers me most...

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Not to mention that dog's are allergic to gluten. So the dog shouldn't have them.

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My spouse volunteered to do this, after seeing me get knocked down one too many times by cross contamination. If he wants regular bread he eats it out at work lunches or on business travel, or rarely, at a fast food place. Bread at home is gluten free, either from a gluten free bakery, a store that sells gluten-free bread, or I make it. (I don't eat much grain bread that is purchased, regardless of source.) Tortillas are corn tortillas and we keep a lot of rice cakes around for snacks.

Our large, senior house dog is very allergic to wheat and will scratch himself a huge nasty hot spot in a heartbeat if he gets cross contaminated, plus he'll throw up and poo all over.... and my spouse's horse has massive allergies, including rye grass, soy, and barley, but as long as we keep it off the premises, for everyone and everything, everybody does much better. This means the cat foods also, because the cats can cross contaminate the dog and horse water. I don't dare feed a regular biscuit to anyone, because there is nothing worse than having a #130 lb animal and a #1000 lb animal scratching because it was cheaper. Last year, the 2nd summer on new cat food for outside cats, was probably the best ever I have seen that horse look, since he was about 5 years old. When he eats the wrong thing he becomes hypersensitive to many herbs and chemicals and cannot be fly sprayed- and he's also allergic to fly bite venom, but this way he can get flysprayed, and doesn't welt up from getting bitten.

It's a no-brainer that the animal care person-in-chief needs to be functional enough to take care of the rest of them. I get neurological problems (ataxia) when I get glutened, and it's not possible for us to keep the house cleaned up with our smallish kitchen if it were mixed.

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The only gluten we allow in the house is in beer, and it must be opened and consumed outside the kitchen area. This created a problem with our (adult) kids for a while and our grandchildren. The finally understood that I was serious. The only problem I still have is occasionally they will come in with cookie crumbs on their clothes. But we make sure we have safe foods and snacks for them. And now all our kids and their SO ask about anything before they bring it in. They'll even call me sometimes to check on something if they are coming over and planning on bringing something with them.

We did have a couple of pretty heated arguments early on, and it was hard on both my wife and I but it did work out. The most difficult part actually is guests who feel obligated to bring foods if we are having company but I've finally worked that out (externally and internally). We have a spiel we give them, which while not entirely accurate serves to get the point across. I have offended a couple people who ignored and brought 'just a salad', and 'just a pie' and I wouldn't let them bring them in the house. But I decided that after being so sick for so long, and knowing the consequences of days and weeks of payment, it wasn't worth the risk to my health or our marriage. I'm not very pleasant when I'm glutened, and if I get soy it is even worse (I have a similar rule about soy).

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Korwyn, I would dearly love to read your spiel you give guests which gets the point across. We have not had any guests as yet since i went gluten free slightly over 2 months ago but I have been racking my brain for what exactly to tell people the first time it comes up. I keep trying to think what will really get the point across.

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Korwyn, I would dearly love to read your spiel you give guests which gets the point across. We have not had any guests as yet since i went gluten free slightly over 2 months ago but I have been racking my brain for what exactly to tell people the first time it comes up. I keep trying to think what will really get the point across.

OK. :) It goes something like this: Don't bring food over or I'll kill you! :ph34r:

No, seriously, I have a couple variations depending on if they know something about my 'food thing' or if they are totally in the dark.

Hi, <blah blah having a party blah blah or whatever>. We'll have tons of foods/drinks/snacks/etc so we really won't need any extra food. Besides, I don't know if you're aware, but I have some food related issues that are genetic and cause serious health problems if I come in contact even with trace amounts. So please don't worry about bringing any food, and in fact if you have something specific you like I can usually find a safe version of it to have! Whats your favorite (food/drink/finger food/etc) ?

That is kinda of a nutshell version. I vary it obviously depending on what we're doing, is it a group, is it a sit down full meal, etc. I've been surprised at how many people have asked me 'is it gluten/wheat' or some variation thereof ("oh is it that gluten stuff?" was one of my favorites). It actually gives me opportunities to talk to people about celiac disease and gluten (along with processed foods, gmo, how soy effects hormones, etc). I would guess that in the last three years now I have probably a dozen or more families/individuals where one or more person is now gluten free as a result of this.

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Thank you very much & also for the quick reply. I think you thought it out quite well & it doesn't offend anyone.

I too like to make people aware of celiac disease & gluten & soy & so forth. I always think it might help them or a member of their family one day or even a friend of theirs. Because you just never know.

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We tried for a year to try to get a shared household to work. We tried all sorts of separate areas etc. Celiacs didn't come near gluten stuff etc., but we just kept getting sick. Finally when we made the household gluten free, things worked out better. The gluten eaters were still able to eat gluten at work and school, and then they washed up immediately when they got home. Then the celiacs stopped getting sick so much. We are very sensitive. I know many who can even cook for gluten eating children. It just depends on how sensitive you are.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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