Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Falling Apart


Teresa83

Recommended Posts

Teresa83 Newbie

I am new to this site. I found it while searching for info on whether or not to be tested for celiac. After years of agony I tried going gluten free. I figured it would at least do no harm. But I quickly discovered I was a different person without gluten. I felt great for the first time in many years. I was gluten free for two months, then decided to go ahead and be tested for celiac for my family. I have two children and my sisters and my mom seem to have some symptoms. So here I am, on day two of eating gluten again. I feel awful! I am supposed to be doing accounting homework but I cannot possibly comprehend the words for the fog. I'm in pain and stressed out. I didn't really have a question or anything helpful to add but thought it would be nice to know I'm not alone in this, that there are other people who are like me and survived having to eat the poison again...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



researchmomma Contributor

I am new to this site. I found it while searching for info on whether or not to be tested for celiac. After years of agony I tried going gluten free. I figured it would at least do no harm. But I quickly discovered I was a different person without gluten. I felt great for the first time in many years. I was gluten free for two months, then decided to go ahead and be tested for celiac for my family. I have two children and my sisters and my mom seem to have some symptoms. So here I am, on day two of eating gluten again. I feel awful! I am supposed to be doing accounting homework but I cannot possibly comprehend the words for the fog. I'm in pain and stressed out. I didn't really have a question or anything helpful to add but thought it would be nice to know I'm not alone in this, that there are other people who are like me and survived having to eat the poison again...

Hi you aren't alone. Many people who try to do a "gluten challenge" feel horrible. Many do not make it and just opt to skip getting an official diagnosis. My daughter went back on gluten after only two weeks and the change in her personality and health was absolutely astonishing. She felt horrible. Back gluten-free she is a totally different kid.

You have to do what is right for you. My daughter still sometimes regrets not having that biopsy to rule it out but it doesn't matter because she clearly cannot tolerate gluten.

Hang in there.

Link to comment
Share on other sites
mushroom Proficient

Hello and welcome to the board and our little community. I do feel for you, having to do the gluten challenge - that is possibly one of the most awful experiences ever dreamed up :unsure: Just the very fact that you feel so dreadful when gluten is reintroduced should be diagnostic enough, I believe. But no, we have to pass the silly test which requires us to intimately study gluten for two months :huh: Feel free to come here and vent any time you like to let off steam/pressure. We all synpathize with you.

Link to comment
Share on other sites
ndw3363 Contributor

For that very reason, I do not have a formal diagnosis. I tried doing the gluten challenge and simply couldn't make it. I was going through a very stressful and important stage in my career, and the fatigue and migraines were too much for me. Lately, something is getting me though cause I have MASSIVE brain fog that is driving me bananas (and I HATE bananas!!) :) Don't know if it was the wine I had over a week ago, my increased carb intake, or maybe a supplement. But I haven't had a drink in over a week, cut WAY back on the carbs/sugar, and I'm decreasing my supplements by one each day to figure it out. I think I'm reacting stronger to soy now, so maybe that's it.

Good luck to you! I hope it's all worth it and that you get the outcome you want - none of us WANT to have the diagnosis, but I think it makes it easier down the road when you try to explain things to friends/family/doctors. I would love for my mother to get tested (99.99% sure she needs to), but she won't do it. She got a blood test years ago that came back negative so she's convinced that's all there is to it.

Link to comment
Share on other sites
ravenwoodglass Mentor

You mention going through 'years of agony'. Has your doctor been seeing you during that time? If you have been seen regularly, pehaps diagnosed with IBS, known by us as 'I be stumped', anemia, or other health issues go to your doctor and let him know that you had gotten great relief from the diet. Let him know you are doing a challenge and what your reaction has been. If your reaction is severe when gluten is reintroduced some doctors, admittedly not many, will give you an 'official' diagnosis of at least gluten intolerant. If he won't do that he may be able to give you some medication to help with your symptoms. Be aware that you can still have a false negative with testing even after the challenge.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,480
    • Most Online (within 30 mins)
      7,748

    EJenkins
    Newest Member
    EJenkins
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
×
×
  • Create New...