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Getting Better All The Time:)
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8 posts in this topic

My daughter had a well visit appointment at the doctors today and I am amazed at the difference in her in the past year.

At a year old before going gluten free she weighed 12 lbs 10 oz and was 22 inches long.

Today at 26 months old and almost a year gluten free she weighs 27 lbs 6 oz and is 33 1/2 inches tall!

And another huge plus is that this time last year her hemoglobin was 8.3 and it is now 12.4.

Today was a day for good news with her...even though we still have things to work through I am so happy to have a healthy little girl :)

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Alex, that is wonderful news! Good for you to help her with this diet and get her what her body needs. I wish you the best with continued progress!

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Alex, that is wonderful news! Good for you to help her with this diet and get her what her body needs. I wish you the best with continued progress!

Thank you! I am actually really glad that she is so young since it was easier to change her diet and she is so used to eating this way that I don't think it will bother her.

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Congratulations!!! It's very exciting to see these awesome improvements!! I am so happy for you both:) Praise God for her growth!! Blessings.

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15 inches in one year! holy smokes. I bet your pediatrician was thrilled too. Congrats.

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Thank you! I think we were more excited then the ped since she goes to a family practice she sees a different doctor every time, she had never seen that particular doctor before.

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That is AMAZING!!!

It is awesome that you got a diagnosis at an early age, like you said, far easier to just make gluten free foods the norm for her, she never knew anything was different. My kids are 7 and 4, and while I am waiting to find out if they are celiac (I just found out 6 weeks ago for myself) I find it extremely overwhelming to think about removing their staple foods like pasta and waffles :)

It really is awesome news, I am sure you are just over the moon about it!

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That is AMAZING!!!

It is awesome that you got a diagnosis at an early age, like you said, far easier to just make gluten free foods the norm for her, she never knew anything was different. My kids are 7 and 4, and while I am waiting to find out if they are celiac (I just found out 6 weeks ago for myself) I find it extremely overwhelming to think about removing their staple foods like pasta and waffles :)

It really is awesome news, I am sure you are just over the moon about it!

It was amazing to hear that :)

As far as your children, my oldest daughter was 4 1/2 when we found out that we had a problem with gluten and her only symptoms were eczema and a bad gag reflex. We were not aware that she had a problem at the time, but the doctor said to try her gluten free to keep her little sister and I healthy (we were very surprised when her skin got better and she could eat softer foods like mashed potatoes and yogurt). Anyway she adjusted to the change pretty well since we sat her down and explained about healthy eating and how not all "healthy" foods were good for us.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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