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Getting Better All The Time:)
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My daughter had a well visit appointment at the doctors today and I am amazed at the difference in her in the past year.

At a year old before going gluten free she weighed 12 lbs 10 oz and was 22 inches long.

Today at 26 months old and almost a year gluten free she weighs 27 lbs 6 oz and is 33 1/2 inches tall!

And another huge plus is that this time last year her hemoglobin was 8.3 and it is now 12.4.

Today was a day for good news with her...even though we still have things to work through I am so happy to have a healthy little girl :)

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Alex, that is wonderful news! Good for you to help her with this diet and get her what her body needs. I wish you the best with continued progress!

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Alex, that is wonderful news! Good for you to help her with this diet and get her what her body needs. I wish you the best with continued progress!

Thank you! I am actually really glad that she is so young since it was easier to change her diet and she is so used to eating this way that I don't think it will bother her.

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Congratulations!!! It's very exciting to see these awesome improvements!! I am so happy for you both:) Praise God for her growth!! Blessings.

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15 inches in one year! holy smokes. I bet your pediatrician was thrilled too. Congrats.

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Thank you! I think we were more excited then the ped since she goes to a family practice she sees a different doctor every time, she had never seen that particular doctor before.

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That is AMAZING!!!

It is awesome that you got a diagnosis at an early age, like you said, far easier to just make gluten free foods the norm for her, she never knew anything was different. My kids are 7 and 4, and while I am waiting to find out if they are celiac (I just found out 6 weeks ago for myself) I find it extremely overwhelming to think about removing their staple foods like pasta and waffles :)

It really is awesome news, I am sure you are just over the moon about it!

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That is AMAZING!!!

It is awesome that you got a diagnosis at an early age, like you said, far easier to just make gluten free foods the norm for her, she never knew anything was different. My kids are 7 and 4, and while I am waiting to find out if they are celiac (I just found out 6 weeks ago for myself) I find it extremely overwhelming to think about removing their staple foods like pasta and waffles :)

It really is awesome news, I am sure you are just over the moon about it!

It was amazing to hear that :)

As far as your children, my oldest daughter was 4 1/2 when we found out that we had a problem with gluten and her only symptoms were eczema and a bad gag reflex. We were not aware that she had a problem at the time, but the doctor said to try her gluten free to keep her little sister and I healthy (we were very surprised when her skin got better and she could eat softer foods like mashed potatoes and yogurt). Anyway she adjusted to the change pretty well since we sat her down and explained about healthy eating and how not all "healthy" foods were good for us.

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    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
    • Personally, I would ask for the full Celiac panel and see what that shows.  I mean, the full Monty, not just cherry picking testing.  On the full panel, if the tTg and the EMA come back positive, that is a diagnosis without biopsy.  This is how I was diagnosed and there is absolutely no doubt I have Celiac.  I presented with classic celiac so it was a no brainer with my blood results. If you cannot stick to the diet religiously, without cheating, unless you have a biopsy picture, then I would go on to have a biopsy.  Like your daughter, I was way too sick to have one done at the time.  They would not have agreed to use sedation because I was so anemic and malnourished and that ended that!  Good luck with whatever you decide!
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