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When Will I Stop Losing Weight?
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I have been gluten-free for 5 months. Since then I have gone from 142 lbs to 110lbs at 5'7" I am pole thin. I am very strict with my diet and Ive found brownies and cookies gluten-free to up my weight gain. If I make a mistake I feel the symptoms immediately and usually loose 1-2lbs more. Has anyone else dropped drastically in weight since going gluten-free?

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Yes. I was at least 155 lbs and in 5 months have dropped to maybe 130 lbs. I am 5'4", and my pre-illness post-children weight was about 125 lbs, so I am not worrying about the weight loss just yet. I seem to feel symptoms very quickly and one of the earliest is nausea and loss of appetite. I will eat through this, but not as much as normal. If I've really copped it then I get a migraine and am completely unable to eat anything for a day or so, and then cannot eat all that much for a few days afterwards. My weight loss is therefore somewhat erratic, going in fits and starts. As I love food and eat well most of the time, I suspect that my weight loss may well stabilise once I get back to my skinny normal weight, which would be in the range 115 to 125lbs. Any less would not be good. My weight had ballooned in the last couple of years while I was unwell, until going gluten free.

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Yes. Since August I've lost 40 lbs. Needed to but now I'm concerned because a set back happens often and I'm steadily loosing weight. Very thin runs in my family and I don't want to be very thin. Sorry if my news is discouraging but it is the truth.

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Oh dear, that is a large weight loss in that time. My friends and family are noticing my circa 25 lbs weight loss, and either complimenting me or worrying about it. It would be odd for me to lose much more, as our family tends to the well-padded side, even the more longstanding celiacs among us. Only time will tell.

I hope you get a handle on your weight management soon.

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I was never diagnosed with celiac, rather I was having severe allergic reactions to anything with gluten. It wasn't fun being that I am German and Italian. All we know is good bread and pasta! Unfortunately, my stint in the hospital was it for me. When I first stopped eating gluten I was taking celexa and lost nothing. I was also doing Taekwondo 3 times a week and working out daily. About 4 months ago I stopped taking celexa and since I have lost 50 pounds and it is still melting. It is a bit concerning since I was never able to lose weight before. Now my concern is like yours, will it stop? I haven't really replaced with gluten free, except rice flour and Udi's white bread. I am not fond of gluten free foods So now my diet is lots of smoothies, no processed foods and mainly organic. I feel great, but I don't want to be a toothpick.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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