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Positive Or Negative? Should Have Results Soon...


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3 replies to this topic

#1 *charliesmum*

 
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Posted 20 February 2012 - 02:28 PM

Coeliac is supposed to run in families...my father has it (diagnosed about 14+ yrs) and my son has it (diagnosed last week)...whats the chances of me having it?

Blood results...no idea what they mean but I know they wernt clear...something was high at 20 (0-15 being normal) and something else being Negative (which being negative instead of positive can affect the first score)...anyone have any idea what this means???

Biopsy...should have the results fairly soon, they said a week (which is tomorrow) but I think thats being rather optimistic!!

Id like to know what people think, will I have it or wont I?? Im really eager to get the results!!
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#2 ravenwoodglass

 
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Posted 20 February 2012 - 02:54 PM

No matter what the results of your tests it would be a good idea to try the diet yourself if you are having any symptoms. False negatives are always a possiblity with testing.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 *charliesmum*

 
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Posted 20 February 2012 - 03:13 PM

No matter what the results of your tests it would be a good idea to try the diet yourself if you are having any symptoms. False negatives are always a possiblity with testing.


I dont really have any of the classic symptoms such as diorea (i dont know how its spelt) or stomach cramps but have always suffered with mouth ulcers as far back as I can remember and after having both my children I have lost weight and cant put it back on. At one point my partner actually asked me if id been eating?! Im always eating!!

Whatever the results I think I will try it anyway and see what happens. My daughter has her blood test tomorrow, shes 4 and is really not goin to like it :(

In a way it would be easier if we all just ate gluten free!
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#4 ravenwoodglass

 
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Posted 20 February 2012 - 03:24 PM

In a way it would be easier if we all just ate gluten free!

Yes it would be easier. You may not have what a lot of doctors consider to be classic celiac symptoms but I bet your mouth ulcers will go away and you will feel better over all.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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