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Confirm Of Protein In Urine


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#1 Kryptonite!

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Posted 21 February 2012 - 04:29 PM

hi to all hope all is well with everyone

ok need some feedback on this one been gluten free for 4 years,still have some issues going on.my main one is the protein in the urine.my blood work was fine cbc,cmp.so was the creatine to bun ratio.i now have to collect 24 hrs sample.i guess that is to find out how much is spilling into the urine and also what type of protein is there.has anyone here ran into this before or know a celiac who has,and what it might be,and there is bubbles.

thank you for your feedback,Kryptonite
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#2 ravenwoodglass

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Posted 22 February 2012 - 04:51 AM

I can't say the same is true for you but in my case the protein and also trace blood is from kidney damage from undiagnosed celiac. For myself there has been no further progression since I went gluten free but it hasn't gone away either. I should note that if I consume soy it does cause an increase in 'bubbles' and bleeding along with other reactions. This may not be the problem with you so do continue to seek answers from your doctor.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Kryptonite!

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Posted 22 February 2012 - 08:05 AM

I can't say the same is true for you but in my case the protein and also trace blood is from kidney damage from undiagnosed celiac. For myself there has been no further progression since I went gluten free but it hasn't gone away either. I should note that if I consume soy it does cause an increase in 'bubbles' and bleeding along with other reactions. This may not be the problem with you so do continue to seek answers from your doctor.



thanks for the feedback i am just trying to find out what could be the cause of the spilling of the protein.i read that some celiac people have kidney problems maybe there could be a link here.
Kryptonite
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#4 frieze

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Posted 22 February 2012 - 10:00 AM

thanks for the feedback i am just trying to find out what could be the cause of the spilling of the protein.i read that some celiac people have kidney problems maybe there could be a link here.
Kryptonite

it would seem, from whatever cause, this will be an ongoing issue. You need to take very good care of you kidneys from this point out. Question any drug given for any reason. good luck
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#5 squirmingitch

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Posted 22 February 2012 - 10:14 AM

Hmmmmm..... Not trying to steal the thread here but this may answer something I've wondered about. In Aug. of 2010 I went to the Primary Care doc for the once a year check up. There was microscopic blood in my urine. Went back & retested 3 times. Still microscopic blood. My hubby was going through bladder cancer at the time so this rang big bells with me. I had no idea at that time that I had celiac --- didn't even know what celiac was although I had heard the word before. Anyway, I ran right away to the Urologist to get it checked out. He did all kinds of tests, a cystoscopy, a FISH test, an abdominal CT with & w/o contrast & checked the urine on 3 separate occasions. He's an EXCELLENT Uro & he finally said, "That's just what some people do. But your tests all came back fine & the cysto is fine so don't worry about it." HOWEVER, not in the Uro's purview the abdominal CT report stated a "fatty liver" which I NOW know is related to celiac. But now 2 of you say the kidneys could be bleeding from celiac. Can you guys expostulate on that a bit further knowing what I have just told you?
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#6 Kryptonite!

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Posted 23 February 2012 - 07:07 AM

it would seem, from whatever cause, this will be an ongoing issue. You need to take very good care of you kidneys from this point out. Question any drug given for any reason. good luck



hi frieze,
yeah this sounds like this is going to be a take care of the kidneys from here on in.blood work was fine cbc and cmp,but the urine the creatine and bun where elavated.go figure.anyway any other thoughts are welcome .
thank you kryptonite
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#7 Kryptonite!

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Posted 23 February 2012 - 07:12 AM

Hmmmmm..... Not trying to steal the thread here but this may answer something I've wondered about. In Aug. of 2010 I went to the Primary Care doc for the once a year check up. There was microscopic blood in my urine. Went back & retested 3 times. Still microscopic blood. My hubby was going through bladder cancer at the time so this rang big bells with me. I had no idea at that time that I had celiac --- didn't even know what celiac was although I had heard the word before. Anyway, I ran right away to the Urologist to get it checked out. He did all kinds of tests, a cystoscopy, a FISH test, an abdominal CT with & w/o contrast & checked the urine on 3 separate occasions. He's an EXCELLENT Uro & he finally said, "That's just what some people do. But your tests all came back fine & the cysto is fine so don't worry about it." HOWEVER, not in the Uro's purview the abdominal CT report stated a "fatty liver" which I NOW know is related to celiac. But now 2 of you say the kidneys could be bleeding from celiac. Can you guys expostulate on that a bit further knowing what I have just told you?


hi, i had the micro blood in one urine test and that same test was sent out to confirm the blood and it came back neg.there was something else that tipped off the test to say blood but it was not.anyway stay on top of your health,i am just so body aware of things that whwn i see something i act on it right away.so now i am going to do a 24 hr collect tonite and tomorrow. to see how much is splling into urine.
thank you kryptonite
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#8 GFinDC

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Posted 23 February 2012 - 03:29 PM

I think kidney problems are associated with high blood sugar also. Might be something else to check on. I put in just part of the info on the page, there is lots more to read there.

Posted Image

Kidney Disease (Nephropathy)

Listen to text

  • High blood sugar can overwork the kidneys, causing them to stop working properly.
  • When diagnosed early, kidney disease can be slowed with treatment.
  • When diagnosed later, kidney failure usually results.
  • Once kidneys fail, replacement therapy via dialysis or transplant is necessary.
Kidneys are remarkable organs. Inside them are millions of tiny blood vessels that act as filters. Their job is to remove waste products from the blood.

Sometimes this filtering system breaks down. Diabetes can damage the kidneys and cause them to fail. Failing kidneys lose their ability to filter out waste products, resulting in kidney disease.



What are the symptoms?
The kidneys work hard to make up for the failing capillaries so kidney disease produces no symptoms until almost all function is gone. Also, the symptoms of kidney disease are not specific. The first symptom of kidney disease is often fluid buildup. Other symptoms of kidney disease include loss of sleep, poor appetite, upset stomach, weakness, and difficulty concentrating.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#9 squirmingitch

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Posted 23 February 2012 - 03:52 PM

Thank you GFinDC. I will follow the link.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 Kryptonite!

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Posted 24 February 2012 - 01:06 PM

I think kidney problems are associated with high blood sugar also. Might be something else to check on. I put in just part of the info on the page, there is lots more to read there.

Posted Image

Kidney Disease (Nephropathy)

Listen to text

  • High blood sugar can overwork the kidneys, causing them to stop working properly.
  • When diagnosed early, kidney disease can be slowed with treatment.
  • When diagnosed later, kidney failure usually results.
  • Once kidneys fail, replacement therapy via dialysis or transplant is necessary.
Kidneys are remarkable organs. Inside them are millions of tiny blood vessels that act as filters. Their job is to remove waste products from the blood.

Sometimes this filtering system breaks down. Diabetes can damage the kidneys and cause them to fail. Failing kidneys lose their ability to filter out waste products, resulting in kidney disease.



What are the symptoms?
The kidneys work hard to make up for the failing capillaries so kidney disease produces no symptoms until almost all function is gone. Also, the symptoms of kidney disease are not specific. The first symptom of kidney disease is often fluid buildup. Other symptoms of kidney disease include loss of sleep, poor appetite, upset stomach, weakness, and difficulty concentrating.


hi and thanks for the info my blood sugar is runs around 79-90
so thats fine my blood preasure run 125-135 systolic 80-86 dystolic so that should be ok there doc said no treatment for the tests.
doing a 24 hr collect now for micro albulmin.

thanks kryptonite
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#11 Kryptonite!

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Posted 28 February 2012 - 12:57 PM

ok got back my 24 hr test results,looks like i have leaky kidneys,the protein lose is not that much my doc said so i am now reffered to a kidney specialist.i do not know what happens from here.
kryptonite
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#12 Colleen63

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Posted 29 February 2012 - 02:17 PM

Hi Celiac Sisters & Brothers!
Just a little FYI on my kidney issues...
I too had blood in urine 3X and I noticed very foamy bubbles. My first 24 hr test can back at 3500+ for protein-WAY high!!! Next were more blood tests, more urine tests and then a biopsy. I was dx with FSGS (focal segmental glomerolsclerioses)(sp????)It means that some of my kidney filters are scarred...My foamy pee started in Feb 2011, my biopsy was in June. I recieved that diagnoses in Sep (LONG wait) and was put on Lisinopril. Kidney doctor sent me to a rheumatologist who did more blood work, I tested positve for HLA-DQ2 in Dec '11 I lost my gallbladder on 12/27/11....after that I sent myself back to my 3rd GI who agreed to do and a biopsy. I was put back on an acid reducer (I worked hard to get off them) because I have an ulcer in my small intestines that is NOT h. phylori. Weeks of anti biotics and waiting for results...On January 27, 2012 I was DX w/celiac disease!!!! It has been 10 years of an ever growing list of symptoms. Nobody could put the pieces together; my 24 migraines each month; my IBS, GERD, heavy menstral cycles (had a total hysterectomy with one ovary removed)8 years of consitpation, sensitivity to eye make up and jewelry, chronic sinusitus and rhinitus, hearing loss, tinnitus, chest pains, pressure in eyes, blurry vision, fear of crowds, depression, brittle & ridged nails, candida,hair & eyebrow loss,neck pain, back pain, bunions,feet pain and restless legs(neuropathy), and now osteo arthritis but I am SOOOOO happy to have a DX. :P B) Three days into the diet my constipation was gone and the tinnitus. But they are both back...(7 weeks in-started right after biopsy-still a newbie) I am very careful...I need to start eliminating other foods to see if it's a gluten & food combination.
P.S. I have lost 8 lbs (I was a wieght gainer-I was always starving!!!!)
May God continue to Bless you and heal you!
I pray that American doctors open their eyes, ears and medical books=it's overdue!!!!!
P.P.S. I love Celiac.com
I need you all to heal physically, mentally and spiritually!!
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oxoxox Colleen

#13 ravenwoodglass

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Posted 29 February 2012 - 03:28 PM

Hi Celiac Sisters & Brothers!
Just a little FYI on my kidney issues...
I too had blood in urine 3X and I noticed very foamy bubbles. My first 24 hr test can back at 3500+ for protein-WAY high!!! Next were more blood tests, more urine tests and then a biopsy. I was dx with FSGS (focal segmental glomerolsclerioses)(sp????)It means that some of my kidney filters are scarred...My foamy pee started in Feb 2011, my biopsy was in June. I recieved that diagnoses in Sep (LONG wait) and was put on Lisinopril. Kidney doctor sent me to a rheumatologist who did more blood work, I tested positve for HLA-DQ2 in Dec '11 I lost my gallbladder on 12/27/11....after that I sent myself back to my 3rd GI who agreed to do and a biopsy. I was put back on an acid reducer (I worked hard to get off them) because I have an ulcer in my small intestines that is NOT h. phylori. Weeks of anti biotics and waiting for results...On January 27, 2012 I was DX w/celiac disease!!!! It has been 10 years of an ever growing list of symptoms. Nobody could put the pieces together; my 24 migraines each month; my IBS, GERD, heavy menstral cycles (had a total hysterectomy with one ovary removed)8 years of consitpation, sensitivity to eye make up and jewelry, chronic sinusitus and rhinitus, hearing loss, tinnitus, chest pains, pressure in eyes, blurry vision, fear of crowds, depression, brittle & ridged nails, candida,hair & eyebrow loss,neck pain, back pain, bunions,feet pain and restless legs(neuropathy), and now osteo arthritis but I am SOOOOO happy to have a DX. :P B) Three days into the diet my constipation was gone and the tinnitus. But they are both back...(7 weeks in-started right after biopsy-still a newbie) I am very careful...I need to start eliminating other foods to see if it's a gluten & food combination.
P.S. I have lost 8 lbs (I was a wieght gainer-I was always starving!!!!)
May God continue to Bless you and heal you!
I pray that American doctors open their eyes, ears and medical books=it's overdue!!!!!
P.P.S. I love Celiac.com
I need you all to heal physically, mentally and spiritually!!

Welcome Colleen. Hopefully you will continue to improve but gluten can be sneaky so we do often have some ups and downs at first. If you go with whole foods you will heal the fastest and do make sure you are doing what you need to do to keep yourself safe from cross contamination like a new dedicated toaster, replacing strainers, not sharing condiments and nut butters, jelly etc. Some of us have issues with soy and dairy so those are best avoided for now and do be sure to check any meds and supplements you are taking to make sure they are gluten free.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#14 ravenwoodglass

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Posted 29 February 2012 - 03:29 PM

ok got back my 24 hr test results,looks like i have leaky kidneys,the protein lose is not that much my doc said so i am now reffered to a kidney specialist.i do not know what happens from here.
kryptonite


Hopefully the specialist will be able to help with this. Keep us posted.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 Colleen63

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Posted 29 February 2012 - 03:41 PM

Welcome Colleen. Hopefully you will continue to improve but gluten can be sneaky so we do often have some ups and downs at first. If you go with whole foods you will heal the fastest and do make sure you are doing what you need to do to keep yourself safe from cross contamination like a new dedicated toaster, replacing strainers, not sharing condiments and nut butters, jelly etc. Some of us have issues with soy and dairy so those are best avoided for now and do be sure to check any meds and supplements you are taking to make sure they are gluten free.

Thanks for your warm welcome!!! I have the toaster and separate condiments. I checked all my meds & vitamins. No soy I can do, but no dairy will be tough (love my cheese!) I wish I went whole food only right away!!! I am getting there...No doctor told me to avoid oranges while my ulcer is healing...I am in ulcer pain today :blink: I have read that even though I have damage to my kidneys, that going gluten-free will stop any new damage :P love it! :wub:
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oxoxox Colleen


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