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Constipation Please Go Away
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After all the testing is done and over with for you I would suggest you try a gluten-free diet trial

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Thank you so much! Luckily I have another very supportive PCP (albeit clueless) who would most certainly be willing to order the entire panel. I stopped consuming gluten about 5 weeks ago and am avoiding dairy most of the time

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burdee: Thank you!

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/begin vent...

I've been so incredibly frustrated lately. I finally get my BM's somewhat normal without taking mirilax daily, I finally began feeling a little relief from the fatigue, the gas, stomach pains, numbness, headaches, bloating and the D began to subside. My mood even started to regulate and then... I decide to eat a hershey bar. Not the safe 1.55 oz one, but the 4.4 oz one which plainly states "emulsifiers." Well I reacted and I'm feeling so defeated. Between the first ER visit for a "suspected" fecal impaction (which they said was high up), the second ER visit 2 days later for kidney stones and now a cold/sinus infection which prevented me from going to a gymnastics meet this weekend, I'm just done. I feel exactly like that run-on sentence

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The emulsifiers in the candy bar are probably not from gluten.

I suspect you are having a reaction to the milk in the chocolate?

Since steroids are given in the case of refractory sprue, and they suppress the autoimmune system, it would make sense to me that they could very well effect the outcome of your testing result, showing low antibodies.

Did the doctor think of this when testing you for Celiac???

I am sorry you are having a bad day, honey (hug) and the last thing you need is someone mocking your anxiety. It is a very REAL symptom of gluten and you are not alone. I never had it in my life until the celiac triggered and it is scary and uncomfortable and I lived with it for 3 years until it subsided after going gluten-free. I only have it return if I am "hit" by CC. <_< I HATE that sensation. ugh!

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I thought it was the milk too until I realized I did fine with the smaller one a few weeks earlier. Then I read that it could be hidden in the emulsifiers. I should probably send them an email.

Thank you, I really don't mean to sound melodramatic or complain, I've just had a slew of not so great luck. I know I should be thinking about all of the people who have had it so much worse... Thank you for all of the advice and support everyone. It helps a lot. :)

~Laura

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You are not melodramatic, honey, you feel yucky and this is the place where you can b**ch and no one will think you a drama queen.

(well, there are some DQs on here, too.... :ph34r: ) :lol:

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(well, there are some DQs on here, too.... :ph34r: ) :lol:

:lol:

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:lol:

SSSHHHH be cool now,....don't tell anyone I said that.... :lol: :lol: :lol:

man, I just wanna give that sweet doggie face a big smoochie ...he, she? is so CUTE!!!

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SSSHHHH be cool now,....don't tell anyone I said that.... :lol: :lol: :lol:

man, I just wanna give that sweet doggie face a big smoochie ...he, she? is so CUTE!!!

:ph34r:

She. :) That is actually a snapshot out of a video I took of her last year at the dog park. She was getting her neck scratched — she is such an itchy dog: she can't tolerate grains either. :-) The envy of all of us who would like naturally white teeth!

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Those are some pearly white chompers!! :lol: good for her!

My cat Bella doesn't eat any grains eaither. Her coat is luxurious--- since she adopted us :lol: and went gluten-free, too. She was a mess when we found her and now, she is GORGEOUS.

You know, if I thought my hair would grow back in that thick, I would eat her kitty cat canned salmon, too. :)

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So soft and cuddly.... :)

I think my dogs would choose a carrot over a milkbone any day. :unsure:

You know' date=' if I thought my hair would grow back in that thick, I would eat her kitty cat canned salmon, too.[/quote']

:lol:

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I think my dogs would choose a carrot over a milkbone any day. :unsure:

me, too.... :lol:

(there's wheat gluten in those things...I wish I had known all this back when I had my lab....)

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me, too.... :lol:

(there's wheat gluten in those things...I wish I had known all this back when I had my lab....)

Actually I think she chomps the carrots to keep her teeth clean and white... ;-)

YES! It's terrible and it's everywhere!

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Actually I think she chomps the carrots to keep her teeth clean and white... ;-)

YES! It's terrible and it's everywhere!

It's why Bugs Bunny has such a beautiful smile.

Yes, kiddo, life is a gluten-filled landmine...but being wise about CC is your Kevlar vest. :)

You're going to be okay. Hang in there and get your list of questions ready for the doctor. Keep us posted.

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I went to the GI doctor today. He was WONDERFUL! I'm so happy! More details to come. :D

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Hiya, constipation is the worst! Two things that definitely help me:

1. Epsom salt(magnesium)baths regularly

2. Castor Oil applied to belly at night. Use pads/a compress to keep the oil on the skin overnight.

3. Lemon juice freshly squeezed in warm water every morning.

Hope this helps.

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Thank you for your suggestions! Definitely going to give them a try

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Some people have chronic C it never gets better....I drink over a 1/2 gallon of pure water daily, take probiotics & digestive enzymes, eat a clean healthy diet with a large amount of fruits & veggies & also raw juices.... I have tried everything in the book but still have the problem. Being in the hospital twice for long periods of time I have seen many doctors. The bottom line is some people not just me have this problem..

Miralax is better than something like X-Lax or a stronger type thing...like ducolax.... Mineral oil is also better for your system than others. the main thing is not to become dependent on a laxative...Miralax & mineral oil do not ........I have learned now to take the miralax every other day & it works for me... But when I couldn't go in the hospital they were giving me it four to six times a day plus stronger drugs..I called it a poop cocktail........

once you find . your routine it all works out in the end! sorry for the pun....

I also have tried every home remedy that has ever been on the internet.net.. what works for some , not so much for others....

I take solid gold digestive enzyme & alternate probiotics monthly....Dr. Ohirra's, pearls, sustenex & others...

I have been gluten-free just over 2 years and still suffer from chronic C. It is better...some. Like you I drink 3/4 gallon of water a day, eat lots of fiber, the whole healthy thing. Take probiotics, suplements, molasses (to heal the gut), aloe and then I added a herbal laxative tea, Smooth Move (hate that name!!). Went over it with my dr and she said it was quite safe. I've been on that for almost a year and that is the only thing that keeps things moving. Now I take it every other night and that seems to work. Miralax didn't do much of anything for me. It's all in what works for you. I've seen three different dr and all said some people are just born constiapted. <_<

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Hello ninja,

I haven"t visited your thread in a while, looks like you"ve made great progress. I see you like chocolate but have gone dairy free. Have you found the enjoy life brand chocolate? It"s dairy, nut, soy, and gluten free. Made in a decitated nut and gluten free facility. It"s soooooooooo good !!! It"s a little hard to find, i have to drive a hour to get mine so i really stock up when i go. The trip home is very enjoyable.

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I just joined this website today and literately JUST put up a post asking constipation is one of the symptoms of celiacs.....I dont have an answer for you but i think you may have answered my question , thanks lol

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I just joined this website today and literately JUST put up a post asking constipation is one of the symptoms of celiacs.....I dont have an answer for you but i think you may have answered my question , thanks lol

I'm glad the thread could help you! Yes it is a symptom; everybody's body reacts differently. The big "D" and constipation went away for me with the gluten-free lifestyle. There's hope! :)

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I just wanted to add a sort of "postscript" to this thread for anyone who may go across it by chance: my "constipation" was discovered by my PCP and an ER doctor. It was reviewed by a GI doctor not too long ago and I was subsequently told that it was NOT backed up stool, but it was instead built up gas. This makes sense given the repeated failures I had with stool softeners, laxatives, enemas of various varieties...

Food for thought!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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