Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Alopecia Areata


HeatherRJSoleil

Recommended Posts

HeatherRJSoleil Rookie

Hi there,

I was diagnosed gluten intolerant in November, just before Thanksgiving (nice timing!). About two months prior, in September, I noticed a couple round spots where my hair fell out. I figured it was brought on by stress, but read recently that there's a connection between gluten sensitivity and alopecia areata. Anyway, it's been six months and the hair hasn't come back. If anything the spots have gotten bigger since going gluten free.

I've been using Nioxin, but just switched to a gluten-free shampoo and conditioner just on the off chance that there's something gluten-derived in Nioxin (I've heard mixed reports). The little bumps that appeared on my bald spots are clearing up, which is something.

Has anyone had this problem, and if so, how long did it take before your hair came back?

This has happened to me once before, in 2007, and it came back within a few months. It's pretty disturbing. I look like a sumo wrestler if I put my hair in a ponytail.

Any help would be most appreciated.

Heather

Link to comment
Share on other sites
  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFshay Apprentice

I had alopecia in a mild form all my life, but within the first year of being gluten free I lost almost all my hair! It's been very concerning and doctors have no idea why it's gotten so much worse. I don't want to scare you because I think my case is very strange. I also have some slight elevations in TSH so my doc thinks maybe a little hypothyroidism might be somewhat to blame.

My unscientific theory is that my immune system didn't have as much to fight so it decided to focus more on my hair once the gluten went away. All I know is that I've never felt better, so I'm coping with the possibility of being bald but otherwise healthy. Wigs are shockingly comfortable and realistic, and my insurance covers them. Has anyone else experienced this?

Link to comment
Share on other sites
thegirlsmom Apprentice

I have had aa for the last 10 years. It has gotten increasingly worse over time and through a lot of research I discovered the link to celiac. Dec 30 2010, I went gluten free. I found myself very discouraged as well when my hair continued to fall out and would have given up on the diet if my husband did not hold me to it. He said I was a different person - nicer and not as hormonal. So in may of 2011, I went to a natropathic practitioner. She gave me a stool test as said there was fat malabsorbtion which indicated celiac. She Also tested me for other food sensitivities. When I removed the other foods from my diet, my scalp stopped itching(my - I am about to lose hair sign). It took another 5 months or so to show regrowth. Now I have 70% regrowth! I haven't had a full head of hair for years, and now I'm hopeful I may have one soon! Hang in there. And remember it can take 2 years for gluten to get out of your system.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...