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Negative Biopsy
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but i have all of the symptoms of celiac and a positive blood test. maybe its crohns or IBD? my mom and i both think i do have celiac disease.

the GI said i dont have celiac which doesnt make sense to me.

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Did you go back on gluten prior to the biopsy? Or were you gluten-free up till the time you were scoped?

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Well, I had an "inconclusive" blood test and negative biopsy (of course this was done several months post gluten-free) We had suspicions and there was no way I could continue to eat gluten while waiting for the biospy (gotta love Canada's healthcare system!)

My mother has celiac and I had 100% the same symptoms as she had. I eliminated gluten and s...l..o..w..l..y but surely I got better. My gastro felt confident in saying I had celiac based on elimination of other diseases and family history.

Tests are not perfect! Despite my results I will NEVER eat gluten!

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i wasnt eating gluten when they did the biopsy. it makes me really sick and my bones and muscles ache. ect. my mom and i say i have celiac even though the biopsy says otherwise.

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i wasnt eating gluten when they did the biopsy. it makes me really sick and my bones and muscles ache. ect. my mom and i say i have celiac even though the biopsy says otherwise.

oh well, if you weren't eating gluten, then there you go! You have to be in order for the biopsy to be accurate. And do you feel better when you stop eating gluten? Do you need more of an answer than that? I've had a top GI tell me that clinical results are worth way more! He said negative biopsy and all, he considers me celiac...

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yes i feel alot better when i dont eat gluten. thank you for the reply :)

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I'm not doctor, obviously, but if the blood tests are positive I'd say you have celiac. If it's literally looking at your "tract" and you haven't eaten gluten then it would be negative. And I would think regardless if your blood test was positive, no matter the GI tract test, then it doesn't matter. I'm told I'm celiac and I honestly don't have many issues aside from joint, teeth issues, vitamin deficiency, passing out once in awhile and bloating/stomach aches. I bet if I had my tract checked it wouldn't be that bad and may even be negative, etc, even when I do eat gluten.

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    • sorry i did not see this until a year later.  i changed all my cat food to gluten free products.  right now i'm using a dry food made by Nature's Variety Instinct Raw Boost.  it has both dry food and freeze dried meat.  since my cats lick my face i had to make the switch.  i did not mean to remove your pets from your home.  they are loved ones and they can be eased into the diet if you have not already tried.  the wet food for my other cat is easier to find gluten free but it is expensive.
    • You might want to check out the Gluten Free Watchdog - just google it - and join. Very smart lady there who also has celiac disease. She's gone to the mats for us many times. She knows her stuff! 8 products are tested per month and there are many great articles and videos as well. She's the same lady who does the Gluten Free Dietician but on the Watchdog site, you get the test results of products as well as faster info. on breaking news.
    • After reading these few posts, I really think it all depends on where you live and the doctors attitude about the whole process. I think a biopsy is not always needed.  It depends on the circumstances and symptoms, etc.  Sometimes it is harder to piece together a proper diagnosis while other times it's so obvious.  Many people now do not even have GI issues, which used to be the hallmark of Celiac. This is why it is so difficult for some.  It would be nice if there was a very definitive test that was either positive or negative, with 100% accuracy!
    • Not to beat a dead horse here but I looked at the linked article you provided and it talked about exposure to animal feed in enclosed spaces, not driving or walking near wheat fields on a windy day.  Unless you are a farm hand, feeding cattle or horses with gluten containing feed in an enclosed, non-well ventilated area, it's not an issue. The Fasano diet is a short term diet for those who are slow to heal. Some people do have problems with grains and they found that putting them on a whole foods diet only, many of them went on to heal and could then consume processed gluten free food items like bread.  Lots of people do this in the beginning for faster healing. But it only works for people with Celiac Disease and you aren't even sure that is what the problem is. I posted this so anyone new to the diet reading these things will not become confused and think you cannot walk past a wheat field or a bakery. Inhaling visible wheat flour in a bakery is not a good idea for anyone with Celiac Disease and will make you sick/react and you won't be able to work in one but walking past bread or any gluten containing food is not cause for concern.
    • I react to certified gluten free breads, but it is NOT a gluten issue.  I react to Xanthan Gum.  I do just fine making my own baked goods from scratch subbing out the Xanthan Gum for guar gum.  My gluten-free hubby does well on commercially gluten-free baked goods.  It is just a food intolerance issue in my case.   Look to other ingredients.    
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