Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Confused About Gluten Free Products..
0

12 posts in this topic

I am newly gluten free. I understand I cannot eat anything with gluten and have been doing okay with all of that but I am confused about topical gluten, if that even makes sense ha. I have heard two things, you cannot have any makeup made with gluten touch your lips. I have also heard you cannot use anything with gluten on your body period. I do get the DH rash, but I have never found it came from a certain product, so I assume it was the food I was eating. Could some explain this to me please :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Many of us avoid all gluten because it is just not worth the risk of getting shampoo in your mouth when showering, or gluten off your hands from lotion or gluten in watering eyes from mascara. It doesn't mean we would react but it just seems so much easier for me to get the gluten out of the house entirely and not even think about it.

0

Share this post


Link to post
Share on other sites

I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!

0

Share this post


Link to post
Share on other sites

I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!

How do we go about finding out if our daily favorite products for skin, hair, makeup etc. contain gluten? It makes sense to not use topical gluten as our skin absorbs these products. :(

0

Share this post


Link to post
Share on other sites

You need to familiarize yourself with all the different ways that gluten hides. Anything that says wheat, oats, barley, avenin (oats) is of course out, although some claim hydrolyzed wheat protein is okay but I avoid it. You can call or email the manufacturer or there are iphone apps available. Here is a link: http://www.quora.com/Where-can-I-find-gluten-details-for-ingredients-commonly-found-in-beauty-products that has other links.

0

Share this post


Link to post
Share on other sites




Quite frankly, I don't believe the "experts" who say that gluten must be ingested to cause DH. There simply have been no real studies done on this. All I know is that if I use a shampoo that contains wheat, my scalp and face break out all over in DH. Back when I didn't know I had celiac, I wore lipstick (only in my teens)....and my lips would swell up and turn purple. It wasn't from ingestion of gluten--it was from the gluten touching my lips. DH is quite a different animal from celiac, I believe, and it definitely needs to be studied more.

3

Share this post


Link to post
Share on other sites

I am newly gluten free. I understand I cannot eat anything with gluten and have been doing okay with all of that but I am confused about topical gluten, if that even makes sense ha. I have heard two things, you cannot have any makeup made with gluten touch your lips. I have also heard you cannot use anything with gluten on your body period. I do get the DH rash, but I have never found it came from a certain product, so I assume it was the food I was eating. Could some explain this to me please :)

That is very astute of you to recognize the connection between a DH break-out and it being connected to the food you are eating! That is supposedly the way it works as the reaction comes from within but I think that anyone who has skin issues with Celiac probably runs a higher risk of having an additional wheat allergy, which is different to an intolerance. Coming into contact with the offending product would cause that type of reaction.

You must not use gluten containing lip products, whether you have DH or classic Celiac. You ingest what you put on your lips and that's why you have to screen lipstick. As far as body lotion is concerned, that can be personal choice but you have had issues with skin products so you might want to find one that isn't a problem and just stick with that. I always screen hand lotion, for obvious reasons, and just use that on anything else. Otherwise, I don't worry about stuff I won't ingest.

0

Share this post


Link to post
Share on other sites

Another ingredient to look out for that is derived from wheat is panthenol, and I agree with mushroom and rosetapper23!

0

Share this post


Link to post
Share on other sites

I also agree with mushroom & rosetapper23 & ciamarie!

Another reason not to use gluten containing topical ingredients is that Vit E is absorbed through the skin. Now if that Vit E happens to be wheat derived then what do you think is going to happen?

I have dh ~~~ I know that NOW. But for 7 or 8 years I have not been able to wear makeup of any kind. It would itch me so! And my face, particularly my eyes would swell up. I would wear it, come home & right away wash it off ~~ still had reactions. Tried 20 or 30 products ~~~ with the same results. Guess what? Now that I found out I am celiac & with dh & looked for gluten-free makeup. I found Afterglow (online) which is gluten free ~~~ pricey but gluten-free. I tried it. I'm a very happy girl! For the first time in years & years I can wear makeup. It's like a miracle.

0

Share this post


Link to post
Share on other sites

oh my god..I just solved my makeup allergies! my eyes can not tolerate anything...and I never understood..until this thread. thank you so much!

0

Share this post


Link to post
Share on other sites

Welcome to the board Bellanovia. It's amazing the things we learn are connected to celiac. So many things make sense now that I couldn't figure out before or that I thought were just an odd problem I had.

0

Share this post


Link to post
Share on other sites

I also agree with mushroom & rosetapper23 & ciamarie!

Another reason not to use gluten containing topical ingredients is that Vit E is absorbed through the skin. Now if that Vit E happens to be wheat derived then what do you think is going to happen?

I have dh ~~~ I know that NOW. But for 7 or 8 years I have not been able to wear makeup of any kind. It would itch me so! And my face, particularly my eyes would swell up. I would wear it, come home & right away wash it off ~~ still had reactions. Tried 20 or 30 products ~~~ with the same results. Guess what? Now that I found out I am celiac & with dh & looked for gluten-free makeup. I found Afterglow (online) which is gluten free ~~~ pricey but gluten-free. I tried it. I'm a very happy girl! For the first time in years & years I can wear makeup. It's like a miracle.

OH MY GOSH!! I used to use certain makeups that would make my face itch and turn bright red and I just wanted it off asap! I wonder if it could have been something with the gluten...however, now I wear numerous different kinds. So is most foundation contain gluten? :(

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined