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Anxiety
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I have always had mild anxiety, but about three years ago I started getting severe anxiety. Was even hospitalized for it. And I've had it ever since. No big life events happened though I started feeling weak, dizzy, jolting as I fell asleep. Could this be related to celiacs?

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Yes, it could be. I suffer from GAD and social anxiety and it is unbearable and full of panic attacks if I am glutened (or if I have any of my other intolerant foods, dairy, corn, fructose). Anxiety is common with gluten intolerants

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It's very common in Celiacs and can be due to various vitamin/mineral deficiencies. See if you can get a blood panel done to pinpoint anything you might be low on?

It's my opinion that the reason we react to glutening with anxiety is because we get a temporary flattening of the tips of the villi, which leads to malabsorption to some degree?

I've suffered from general anxiety for most of my life. I was surprised to see it's a symptom of Celiac. Mine is so bad I need mdcation for it.

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It's definitely possible. For one thing, they have found that emotions and nervous system reactions can arise from the intestines, as well as the brain. This is why people have always said they have a "gut feeling", now scientists know why. It's pretty fascinating stuff.

There's an article about here:

Think Twice: How the Gut's "Second Brain" Influences Mood and Well-Being

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I've had pretty severe anxiety for a few years now and used to get jolted awake too just as I was about to fall asleep which was pretty upsetting and frustrating. I also get weak and dizzy when I am about to have a panicky episode.

I've done TONS of research online and have a bunch of theories, one is that somehow the vagus nerve is being irritated causing all kinds of disturbing symptoms. Maybe all the bloating is causing the diaphragm to push up on everything, including the vagus nerve as well as the lungs, which would explain why I feel short of breath sometimes. I also agree there may be some malabsorption, as well as possibly lack of oxygen to the brain.

However, I have learned recently that Pepto stops my panicky feelings when I get glutened. Within 30 minutes of taking it, I feel 100% better. I also noticed that if I took it before bed, I would not be jolted awake or have nightmares. Pepto has been my best friend lately. Besides helping the panic attacks, it also really eases my GI symptoms like nausea, burning, etc.

I really hope this will help anyone having anxiety attacks from gluten. Pepto is pretty safe so it's worth a try!

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I've had pretty severe anxiety for a few years now and used to get jolted awake too just as I was about to fall asleep which was pretty upsetting and frustrating. I also get weak and dizzy when I am about to have a panicky episode.

I've done TONS of research online and have a bunch of theories, one is that somehow the vagus nerve is being irritated causing all kinds of disturbing symptoms. Maybe all the bloating is causing the diaphragm to push up on everything, including the vagus nerve as well as the lungs, which would explain why I feel short of breath sometimes. I also agree there may be some malabsorption, as well as possibly lack of oxygen to the brain.

However, I have learned recently that Pepto stops my panicky feelings when I get glutened. Within 30 minutes of taking it, I feel 100% better. I also noticed that if I took it before bed, I would not be jolted awake or have nightmares. Pepto has been my best friend lately. Besides helping the panic attacks, it also really eases my GI symptoms like nausea, burning, etc.

I really hope this will help anyone having anxiety attacks from gluten. Pepto is pretty safe so it's worth a try!

Around the time I was first DXed I was getting that same "jolt awake' when starting to fall asleep. It lasted quite a while. I found it was linked to an iron deficiency.

I've never tried taking Pepto, but I've seen others post that it helps them a lot when they get an accidental dose of gluten.

It would probably be a good idea to have it on hand..just in case?

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We know that pepto is glutenfree?

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So many posters use it, it is safe to assume that it is.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
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      St Johns Wort daily.
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      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
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