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Boils Anyone?
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I seem to get these a lot. Mostly on my side, sometimes on my thighs. They are a royal pain in the arse!!! The odd thing is they seem to conincide with stomach issues. I don't know if anyone had boils that are directly related to gluten or not.

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From the way you worded the topic title, my first response was "no thanks, I'm good." :unsure: as it sounded like you were offering them. :)

But I wanted to say that I had many kinds of sores and blisters pop up from gluten/celiac in various places :rolleyes: scalp, face, back, buttocks, etc. and some members have talked about clusters of boils on their thighs and buttocks. AND it was related to HYPOTHYROIDISM.

I wish I could recall the medical term one of them used for those boils--or where the thread is now--(sorry). You could try searching the forum --use the SEARCH FORUM VIA GOOGLE in the upper right?

Recently, when I said to my doctor that I had every single symptom except DH, he said but you had sores and lip/mouth blisters and "All skins conditions, blisters, rashes and itchy skin lesions ARE related to celiac."

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Good Morning-

My holistic doctor told me that toxins have three ways to leave our bodies -- digestive track, skin and lungs. I've had skin issues when I've digested something I am intolerant of and while my body was in full detox mode.

My son has had lung issues for the past ten years...misdiagnosed with Asthma, reflux, GERD -- didn't clear until his diet changed and his lungs still act up when he eats something that he is intolerant of.

Are you completely gluten-free? If so, perhaps you have developed a food intolerance...with skin problems sometimes it is hard to figure out what the cause is because a boil takes some time to form...not like a tingly rash that comes fairly soon after digesting the problem food. Maybe keep a food journal for a few months to find a pattern of when the boils appear?

Good Luck!

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Here it is, from a thread just a few days ago:

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Here it is, from a thread just a few days ago:

Hidradenitis suppurativa affects the armpits and groin region (something to do with the glands there) so if it's on your side it would be something else, but it could very well be related to gluten.

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Hidradenitis suppurativa affects the armpits and groin region (something to do with the glands there) so if it's on your side it would be something else, but it could very well be related to gluten.

I actually get them from the bottom of my armpit to halfway down my torso, I also get them on butt cheeks (the worst ones) and thighs sometimes. They at first hurt, then towards the end get itchy. It's a real pain and not really nice looking either. makes it a bitch to take my shirt off at the beach.

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I actually get them from the bottom of my armpit to halfway down my torso, I also get them on butt cheeks (the worst ones) and thighs sometimes. They at first hurt, then towards the end get itchy. It's a real pain and not really nice looking either. makes it a bitch to take my shirt off at the beach.

The thighs and butt cheeks are definitely places where HS tends to show up. I don't know if you can get HS lesions on your torso because there are no apocrine glands there, but I think I've read that sometimes people get them in odd places ... maybe if you have an advanced case and they are already forming tracts to different places. HS boils are deeper than regular ones and leave a lot of scarring.

You should definitely see a dermatologist - but find a good one, there are a lot of cruddy dermatologists out there who don't have a clue and could really harm you. Ask them if they know what hidradenitis suppurativa is, and if they don't know, go elsewhere.

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Here it is, from a thread just a few days ago:

Thanks, Bart--girl! That's the condition!! ;)

I knew I had read it--but could not recall the name.

see, how we tag team so well on here!

IH

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Thanks, Bart--girl! That's the condition!! ;)

I knew I had read it--but could not recall the name.

see, how we tag team so well on here!

IH

All I know is I'm getting another blood test in about a month, and I've been eating gluten with every meal pretty much. And since about two weeks ago, I've been getting them, i'm really constipated, i'm itchy all over my arms and dizzy as hell.

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Try Walgreens Pain Relieving Ointment for Boils.

It is benzocaine and calms the pain and itching.

I just read about Hydradenitis Suppurativa and suspect I have it too.

Last time I had one was following gluten CC.

It is very sensitive to gluten.

The good news is it can go away when you go gluten free.

I hope your test is soon so you can get relief.

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All I know is I'm getting another blood test in about a month, and I've been eating gluten with every meal pretty much. And since about two weeks ago, I've been getting them, i'm really constipated, i'm itchy all over my arms and dizzy as hell.

Sounds like a direct correlation to gluten then, hon. :(

Those are all symptoms I can relate to.

Plus constipation often accompanies hypothyroidism.

For constipation, try taking probiotics and lots of water to hydrate. More veggies in your diet.

Unfortunately, a gluten challenge brings on the symptoms with a vengeance.

I hope you can make it through the month. :blink:

I wouldn't last a day :ph34r:

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I hope you all just have normal boils and not hidradenitis suppurativa, because HS is a progressive disease that can become disabling if not treated properly. Anyone who thinks they might have HS REALLY needs to go to a good dermatologist (don't put it off and let it get worse like I did). And if you do go and are diagnosed with it, consider whether you want to live the rest of your life with the scarring you will have from the flare ups caused by the gluten challenge - scar tissue which may contribute to worse flare ups in later life. At least you may be able to get antibiotics to offset the effects of the gluten challenge.

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Sounds like a direct correlation to gluten then, hon. :(

Those are all symptoms I can relate to.

Plus constipation often accompanies hypothyroidism.

For constipation, try taking probiotics and lots of water to hydrate. More veggies in your diet.

Unfortunately, a gluten challenge brings on the symptoms with a vengeance.

I hope you can make it through the month. :blink:

I wouldn't last a day :ph34r:

I can manage. Doc gave some Anti Depressant's to curb my depression. My symptoms have been oddly manageable lately, I don't know if it is because I am on the AD's and the depression is a lot less. One thing I am really noticing is the dizziness and constipation are rough right now, and the boil outbreaks are sucking, but I'm managing better.

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I can manage. Doc gave some Anti Depressant's to curb my depression. My symptoms have been oddly manageable lately, I don't know if it is because I am on the AD's and the depression is a lot less. One thing I am really noticing is the dizziness and constipation are rough right now, and the boil outbreaks are sucking, but I'm managing better.

aha! well, the ADs may well be causing the dizziness and C. They are a known side effect. Once off gluten, all that may disappear because you won't be depressed and you won't need the drugs.

I would take the advice to see a derma for the boils.

Hang in there.

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
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