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I Find This Intriguing.....
#1
Posted 02 March 2012 - 10:38 AM
Anyone want to make guesses as to which AI disease he may have? Never heard of a lupus like AI disease!
#2
Posted 02 March 2012 - 10:49 AM
Thanks for sharing...going to google him to see if there have been other references to his AI condition.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#3
Posted 02 March 2012 - 10:55 AM
That is interesting...the article doesn't mention treatment so speculation is hard...I believe gluten intolerance and/or Celiac Disease is involved in many if not all autoimmune diseases. My daughter had been diagnosed with Lupus, RA, Sjogren's, Fibro, etc before I was diagnosed Celiac. She has had improvement with some of those since removing gluten and is now working on isolating other possible food intolerances.
Thanks for sharing...going to google him to see if there have been other references to his AI condition.
I really hate it when celebs disclose a health issue and then leave you hanging with the diagnosis....especially with AI diseases. I agree that if you have multiples or even one AI disease, then you better look for Celiac or do a dietary trial. I ended up with 4, like your daughter, and it was all because I went too long with undiagnosed Celiac. I will admit they are far better since going gluten-free. I do not do the Tweet thing but maybe someone should tweet this guy about Celiac.....kidney failure and blood clots are nothing to mess with!
#4
Posted 02 March 2012 - 10:59 AM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#5
Posted 02 March 2012 - 03:41 PM
#6
Posted 02 March 2012 - 10:29 PM
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
DS2(age 8):
celiac disease(positive IgA tTG, no biopsy- 11/2010)
DS1(age 12):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
#7
Posted 04 March 2012 - 05:12 PM
I read "an undiagnosed condition similar to Lupus" to mean that his doctors know it's autoimmune and systemic, but they don't know exactly what's going on.
Well...that's nothing new with doctors and autoimmune disease, is it?
#8
Posted 04 March 2012 - 09:52 PM
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