Just had to share! Thanks
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14 replies to this topic
#1
cap6
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Posted 03 March 2012 - 04:03 PM
Today I celebrate 2 years since Celiac diagnosis and without the support of family, friends and this board it would have been, well, so much harder than it has been. At two years I can say that I can finally meet Celiac with a sense of confidence and have come to accept it as part of me. That's not to say that at times I don't wish that I was like everyone else (!) but for the largest part I fell good about where I am. Still healing but boy do I feel good most of the time.
Just had to share! Thanks
Just had to share! Thanks
#2
sa1937
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Posted 03 March 2012 - 04:22 PM
Congrats, Cap! I'm about to approach my 2-year anniversary, too, and I sure do know what you're talking about!!!Today I celebrate 2 years since Celiac diagnosis and without the support of family, friends and this board it would have been, well, so much harder than it has been. At two years I can say that I can finally meet Celiac with a sense of confidence and have come to accept it as part of me. That's not to say that at times I don't wish that I was like everyone else (!) but for the largest part I fell good about where I am. Still healing but boy do I feel good most of the time.
Just had to share! Thanks
Sylvia
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010
Celiac.com - Celiac Disease Board Moderator
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010
Celiac.com - Celiac Disease Board Moderator
#3
squirmingitch
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Posted 03 March 2012 - 04:29 PM
Then I will say congratulations to you both! And when you post such as this it gives inspiration to the newbies such as myself. Thanks for sharing.
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#4
love2travel
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Čeznem da se u Hrvatskoj!
Posted 03 March 2012 - 06:08 PM
Both your stories are a great encouragement no matter what stage we all are at. Having a positive attitude as you do has a huge impact both on this forum and your healing. Great job!
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#5
adab8ca
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Posted 03 March 2012 - 06:27 PM
Yippee!!!
TTG >200 (normal <10)
IgA gliadin 24 (normal <11)
IgG gliadin 38 (normal <11)
Endoscopy showed damage that looked like "classic celiac", biopsy showed total villous atrophy
Started gluten-free diet Aug 31, 2010
Only real symptoms are huge weight loss and neuropathy
IgA gliadin 24 (normal <11)
IgG gliadin 38 (normal <11)
Endoscopy showed damage that looked like "classic celiac", biopsy showed total villous atrophy
Started gluten-free diet Aug 31, 2010
Only real symptoms are huge weight loss and neuropathy
#6
Lisa
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Posted 03 March 2012 - 06:40 PM
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#7
sreese68
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Posted 03 March 2012 - 07:12 PM
Congrats! Glad you're doing so well!
Sharon
gluten-free March 2011
Failed gluten challenge May 2011
Diagnosed celiac 5/25/11
gluten-free March 2011
Failed gluten challenge May 2011
Diagnosed celiac 5/25/11
#8
bigbird16
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Posted 03 March 2012 - 07:18 PM
Congrats to you both!
Migraines, ataxia, peripheral neuropathy, anxiety, paranoia, joint pain, vivid nightmares, exhaustion & lethargy, brain fog, bloat, GI issues--all gone or significantly reduced since dietary changes were made
Gluten-free (Nov. 2008), dairy-free (June 2009), soy-free (Aug. 2009), all-grains-and-grasses-but-rice-free (Nov. 2011); double HLA-DQ7
"'Always remember, Bilbo, when your heart wants lifting, think of pleasant things.' 'Eggs, bacon, a good full pipe, my garden at twilight....'" (The Hobbit, animated movie, 1977)
Gluten-free (Nov. 2008), dairy-free (June 2009), soy-free (Aug. 2009), all-grains-and-grasses-but-rice-free (Nov. 2011); double HLA-DQ7
"'Always remember, Bilbo, when your heart wants lifting, think of pleasant things.' 'Eggs, bacon, a good full pipe, my garden at twilight....'" (The Hobbit, animated movie, 1977)
#9
melikamaui
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Posted 04 March 2012 - 10:25 AM
Congratulations! It's inspiring to hear that you are doing so well now. Thanks for sharing!!!
#10
GottaSki
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"Migratory flight complete."
Posted 04 March 2012 - 12:19 PM
Hip Hip Hooray! Thanks for sharing
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#11
Bubba's Mom
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Posted 04 March 2012 - 01:31 PM
I'm so happy for you both! It's encouraging to see people are doing well on the diet.
I think a lot of people post when they're new to the diet, and not feeling very good? Then, if they respond well to the diet..just sort of move on and we don't hear from them?
I think a lot of people post when they're new to the diet, and not feeling very good? Then, if they respond well to the diet..just sort of move on and we don't hear from them?
#12
lucia
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Posted 04 March 2012 - 02:02 PM
Congrats! I'm on the run up to 2 years as well. What do you still struggle with? Or, is this the wrong place to talk about that?
#13
squirmingitch
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Posted 04 March 2012 - 04:03 PM
Congrats to you too lucia.
I think this is a good place to talk about what you are still struggling with. IMHO.
I think this is a good place to talk about what you are still struggling with. IMHO.
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#14
ChristenDG
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Posted 05 March 2012 - 01:53 PM
Congrats! That's awesome! :>
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Bipolar Disorder: 02/2010
Celiac Disease: 02/06/2012
Gluten-Free: 02/15/2012
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Bipolar Disorder: 02/2010
Celiac Disease: 02/06/2012
Gluten-Free: 02/15/2012
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#15
Kim69
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Posted 08 March 2012 - 12:11 PM
I am coming up to two years too. I have been posting a bit today just to let people know that your tastes and cravings can change. I still have and pain issues but am slowly working through them. It's great to hear you are doing better! Thanks for posting.
May 2010 Diagnosed coeliac via biopsy - on gluten-free diet, now not anaemic
March 2010 Still Anaemic and very fatigued, abdominal pain still (Drs had thought it was related to abdom operation)
May 2009 Anaemic - had abdominal surgery; hysterectomy to remove large fibroid
March 2009 Vestibular neuritus (not sure if related but who knows!)
November 2008 Depression (still on meds - working well)
March 2010 Still Anaemic and very fatigued, abdominal pain still (Drs had thought it was related to abdom operation)
May 2009 Anaemic - had abdominal surgery; hysterectomy to remove large fibroid
March 2009 Vestibular neuritus (not sure if related but who knows!)
November 2008 Depression (still on meds - working well)
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