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Weight And Other Serious Issues
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4 posts in this topic

Hi,

I am suffering from severe complications of celiac disease and where i live, doctors do not understand the disease. I live in Jamaica and no doctor that i visit knows how to treat my condition. They don't even have sugestions.

I am 25 years old and i weigh 91 pounds. I am on a gluten free diet totally but i am still losing weight and i sufer from constipation, very dry skin and acid reflux. I also have swollen gums and my hands are always cold.

I know many Americans have this condition and they are more educated as doctors are well equiped with information so i am asking your help in managing this disease. My 6 year old daughter also has the same symptoms and i just don't know how to manage.

My skin is very saggy like an old woman in her nineties. my hair falls out in clumps everytime i comb it. I don't have money to come to the U.S for treatment so i am asking what can i do to regain weight and stop the symptoms? As for my daughter, what do you suggest for her regarding her weight and so forth. She is very tiny for her age.

My email adress is bestchoiceever@rocketmail.com

Thanks much.

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Hey,

I need help with getting my 6 year old daughter to gain weight. She is a celiac like myself but she has very dry saggy skin, bad breath sometimes and weighs 2 pounds. I also am underweight and has dry skin and constipation. We are totally on a gluten free diet as i read every label, from food to shampoos, lotion etc.

I live in a country where the people are not aware of this disease. Not even the doctors. I need help and i think this is the right place to get advise. Please help me with solutions to regain weight and eliminate the other symptom.

Thanks...

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A bit more information would help.

Perhaps you could post what you or she eats in a typical day? Maybe we could find something you might be missing or should add to your diet.

I'm sure the weight of 2 pounds is a typo. How long have you and she been gluten-free? How were you diagnosed? Did they check for any vitamin deficiencies? parasites? Are you sure she isn't getting gluten at school?

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I merged her 2 separate threads so that all the information can be together. It will be easier for everyone to respond this way.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
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      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
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