Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Weight And Other Serious Issues


Sashya

Recommended Posts

Sashya Newbie

Hi,

I am suffering from severe complications of celiac disease and where i live, doctors do not understand the disease. I live in Jamaica and no doctor that i visit knows how to treat my condition. They don't even have sugestions.

I am 25 years old and i weigh 91 pounds. I am on a gluten free diet totally but i am still losing weight and i sufer from constipation, very dry skin and acid reflux. I also have swollen gums and my hands are always cold.

I know many Americans have this condition and they are more educated as doctors are well equiped with information so i am asking your help in managing this disease. My 6 year old daughter also has the same symptoms and i just don't know how to manage.

My skin is very saggy like an old woman in her nineties. my hair falls out in clumps everytime i comb it. I don't have money to come to the U.S for treatment so i am asking what can i do to regain weight and stop the symptoms? As for my daughter, what do you suggest for her regarding her weight and so forth. She is very tiny for her age.

My email adress is Open Original Shared Link

Thanks much.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sashya Newbie

Hey,

I need help with getting my 6 year old daughter to gain weight. She is a celiac like myself but she has very dry saggy skin, bad breath sometimes and weighs 2 pounds. I also am underweight and has dry skin and constipation. We are totally on a gluten free diet as i read every label, from food to shampoos, lotion etc.

I live in a country where the people are not aware of this disease. Not even the doctors. I need help and i think this is the right place to get advise. Please help me with solutions to regain weight and eliminate the other symptom.

Thanks...

Link to comment
Share on other sites
kareng Grand Master

A bit more information would help.

Perhaps you could post what you or she eats in a typical day? Maybe we could find something you might be missing or should add to your diet.

I'm sure the weight of 2 pounds is a typo. How long have you and she been gluten-free? How were you diagnosed? Did they check for any vitamin deficiencies? parasites? Are you sure she isn't getting gluten at school?

Link to comment
Share on other sites
kareng Grand Master

I merged her 2 separate threads so that all the information can be together. It will be easier for everyone to respond this way.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,989
    • Most Online (within 30 mins)
      7,748

    DanielleMM
    Newest Member
    DanielleMM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...