Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New From Akron, Ohio
0

9 posts in this topic

Hi, I am Shari and I am from Akron, Ohio. I was diagnosed with hypothyroidism in 2006 and Hashimoto's thyroiditis in 2011. A little over a week ago after undergoing tests to see why my thyroid medicine was not working, I was diagnosed with celiac disease. Been gluten free now for a little over a week. Still feeling somewhat overwhelmed but starting to get the hang of it. Thank goodness to a co-worker who was diagnosed with celiac three years ago, she has been great recommending different gluten free foods.

Looking forward to getting to know others with celiac disease and any advice is greatly appreciated.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome, Shari! This forum has a wealth of information that you'll find helpful!

Just keep reading and asking questions you may have. It does get a lot easier after awhile...it's pretty normal to be overwhelmed at first.

0

Share this post


Link to post
Share on other sites

Welcome Shari! I never met a person from Ohio whom I didn't like & that's the truth.smile.gif

And aren't you lucky to have a co worker who can help you along this rock strewn path. And this forum is amazing too. So you have resources plus back up. It doesn't get much better than that.

I don't think I've read a single post where the new person is not overwhelmed at first (& even sometimes for a while). It's normal. Stick to whole foods for several months as your gut begins healing & while you get the hang of the gluten-free diet & all the minefields where gluten hides.

All the best to you.biggrin.gif

0

Share this post


Link to post
Share on other sites

Thank you Sylvia and squirmingitch for the welcomes

0

Share this post


Link to post
Share on other sites

Welcome aboard Shari! Our ship is setting sail for a bright and beautiful gluten free future. We all have to get out and row sometimes but we are making a little progress every day. Fortunately we have a bunch of navigators who have been there before us and can keep us pointed in the right general direction. Once we get past the rocky shoals of adjustment it is much smoother sailing.

Don't worry about being perfect at the gluten-free diet right away, but spend some time reading the threads and FAQ info here. Check out the threads on breakfast ideas or dinner ideas or even snack ideas (if that kind of thing appeals to you). <ahttps://www.celiac.com/gluten-free/uploads/emoticons/default_smile.png' alt=':)'> There even threads on safe candy for Halloween and other holidays. And a recipe area for lots of great things to eat.

You may have noticed lots of people getting on board lately who don't even have celiac disease. They know a good ship when they see one though. Our good ship has become very popular lately! )

0

Share this post


Link to post
Share on other sites




Welcome aboard Shari! Our ship is setting sail for a bright and beautiful gluten free future. We all have to get out and row sometimes but we are making a little progress every day. Fortunately we have a bunch of navigators who have been there before us and can keep us pointed in the right general direction. Once we get past the rocky shoals of adjustment it is much smoother sailing.

Don't worry about being perfect at the gluten-free diet right away, but spend some time reading the threads and FAQ info here. Check out the threads on breakfast ideas or dinner ideas or even snack ideas (if that kind of thing appeals to you). <ahttps://www.celiac.com/gluten-free/uploads/emoticons/default_smile.png' alt=':)'> There even threads on safe candy for Halloween and other holidays. And a recipe area for lots of great things to eat.

You may have noticed lots of people getting on board lately who don't even have celiac disease. They know a good ship when they see one though. Our good ship has become very popular lately! )

Thank you GFinDC

0

Share this post


Link to post
Share on other sites

I'm up in the Cleveland area. There is a support group up this way.

http://neohioceliac.com/

Maybe we'll meet up sometime! (Sorry so short.. Sleeping baby on one arm ;) )

0

Share this post


Link to post
Share on other sites

I'm up in the Cleveland area. There is a support group up this way.

http://neohioceliac.com/

Maybe we'll meet up sometime! (Sorry so short.. Sleeping baby on one arm ;) )

Thank you for the information. I just signed up for the pot luck on the 25th of March

0

Share this post


Link to post
Share on other sites

Hello Sharilee,

I am also new to this board, but have been diagnosed for years. I live in cleveland and I wanted to say hello. The cat you have for your avatar looks EXACTLY like my cat.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,670
    • Total Posts
      921,685
  • Topics

  • Posts

    • So my heart has been doing weird stuff post gluten challenge. Skips beats, arrhythmias, chest pain. It was getting a bit better then worse again in July.   My cardiologist has done 2 stress tests, halter monitor, and we have not caught anything other then harmless pvc's. But I KNOW this is not right for my heart and it has gone wacky out of sync and we never catch it on a damn test. All of my doctor's were connected out of a larger practice, so the GI, cardio, neuro, and primary care can all see the mountains of tests I had and think I am a nutcase the moment I walk through the door. I will admit that I informed the old GI about the DGP test being positive and I sent over some info on the test as they were basically using TTG and old gliadin tests, and they were receptive. But for the most part, I do not trust doctors. I was once told I was in false labor when I actually had 13 gallstones and an infection in my bile duct. I have more horror stories, as we all do. So, my protein and RBC were low in the hospital but all up to good levels now so it is not a vitamin deficiency. My heart has already skipped multiple beats today. The other day, it again went out of rhythm for just 20 seconds or so. I am not drinking coffee or alcohol because of the acidity, so it is not that. I was glutened on August 24th and probably once in July. Does anyone have weird heart issues that vanish eventually? If so, how long does it take? I am an over-thinker, which has its pros and cons. I know we are at an increased risk for CAD which is not really my concern right now. My gut is inflamed, my thyroid is inflamed and my adrenal gland was effected by all of this. I sort of wonder if an exposure to gluten causes some kind of myocarditis, an inflammation that would not be picked up a sonogram per se, and may eventually vanish with a gluten free diet. Has anyone ever had experience with myocarditis? I did a lot of reading on Roemheld syndrome, gastro-cardio syndrome, which is basically a set of cardio symptoms resulting from your gut. Praying it is just that! I just feel like now that I have a diagnosis, I need to rebuild a team of doctors that I feel have my back. This is a sucky disease that can have a lot of ill effects and I need a team I feel is intelligent, supportive and willing to research. I already have a new GI and a great Endocrinologist. I am seriously contemplating a new cardio and neuro as they both talk to me like I am a 12 year-old with "hysterical girl syndrome".
    • I was not officially diagnosed with narcolepsy when I was younger and still haven't.  However, even in my junior high and high school years and on through my college years staying awake was always a struggle for me.  maybe the gluten was a factor back in junior high and just didn't realize it.    There were times in church and other times I would just BAM fall asleep without warning.  Frustrating and somewhat embarrassing to say the least.  Now that I have been off gluten for close to a year now, the "feeling" of needing to sleep is becoming less and less.  Still have periods of sudden sleepiness, but not as often any more.
    • when they first came out, I read the ingredients on them, and they don't seem to contain malt.  But the company, at that time specifically posted on the website that they  are not gluten-free.  So I don't drink them.
    • Rum is naturally gluten free, but in cases where it is flavored, spiced, etc. you have to be careful where they might add a malt in the natural flavorings. I been using Admiral Nelsons coconut rums in cooking for finishing off stir frys, and adding a bit of flavor to caramelized ingredients for a few years now, I have never had issues with those. As for the Morgan, I would be careful with the spiced version as they might use a malt based ingredient in it. I did a bit of research and like you found no conclusive evidence to if it contains gluten or not. The plain rum from them is listed on many and been tested by several groups and has come up gluten free. On a side note if your a celiac or have intestinal damage I would avoid alcohol or drink in moderation. I personally only use it in cooking.
    • Hi, It seems they advertise it as a malt beverage.  Malt is made from barley normally, so it would not be gluten-free.  Unless they specify the malt is corn malt, it is always assumed to be barley malt per FDA labeling regs.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,669
    • Most Online
      3,093

    Newest Member
    Cjplmon
    Joined