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New From Akron, Ohio
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Hi, I am Shari and I am from Akron, Ohio. I was diagnosed with hypothyroidism in 2006 and Hashimoto's thyroiditis in 2011. A little over a week ago after undergoing tests to see why my thyroid medicine was not working, I was diagnosed with celiac disease. Been gluten free now for a little over a week. Still feeling somewhat overwhelmed but starting to get the hang of it. Thank goodness to a co-worker who was diagnosed with celiac three years ago, she has been great recommending different gluten free foods.

Looking forward to getting to know others with celiac disease and any advice is greatly appreciated.

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Welcome, Shari! This forum has a wealth of information that you'll find helpful!

Just keep reading and asking questions you may have. It does get a lot easier after awhile...it's pretty normal to be overwhelmed at first.

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Welcome Shari! I never met a person from Ohio whom I didn't like & that's the truth.smile.gif

And aren't you lucky to have a co worker who can help you along this rock strewn path. And this forum is amazing too. So you have resources plus back up. It doesn't get much better than that.

I don't think I've read a single post where the new person is not overwhelmed at first (& even sometimes for a while). It's normal. Stick to whole foods for several months as your gut begins healing & while you get the hang of the gluten-free diet & all the minefields where gluten hides.

All the best to you.biggrin.gif

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Thank you Sylvia and squirmingitch for the welcomes

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Welcome aboard Shari! Our ship is setting sail for a bright and beautiful gluten free future. We all have to get out and row sometimes but we are making a little progress every day. Fortunately we have a bunch of navigators who have been there before us and can keep us pointed in the right general direction. Once we get past the rocky shoals of adjustment it is much smoother sailing.

Don't worry about being perfect at the gluten-free diet right away, but spend some time reading the threads and FAQ info here. Check out the threads on breakfast ideas or dinner ideas or even snack ideas (if that kind of thing appeals to you). <ahttps://www.celiac.com/gluten-free/uploads/emoticons/default_smile.png' alt=':)'> There even threads on safe candy for Halloween and other holidays. And a recipe area for lots of great things to eat.

You may have noticed lots of people getting on board lately who don't even have celiac disease. They know a good ship when they see one though. Our good ship has become very popular lately! )

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Welcome aboard Shari! Our ship is setting sail for a bright and beautiful gluten free future. We all have to get out and row sometimes but we are making a little progress every day. Fortunately we have a bunch of navigators who have been there before us and can keep us pointed in the right general direction. Once we get past the rocky shoals of adjustment it is much smoother sailing.

Don't worry about being perfect at the gluten-free diet right away, but spend some time reading the threads and FAQ info here. Check out the threads on breakfast ideas or dinner ideas or even snack ideas (if that kind of thing appeals to you). <ahttps://www.celiac.com/gluten-free/uploads/emoticons/default_smile.png' alt=':)'> There even threads on safe candy for Halloween and other holidays. And a recipe area for lots of great things to eat.

You may have noticed lots of people getting on board lately who don't even have celiac disease. They know a good ship when they see one though. Our good ship has become very popular lately! )

Thank you GFinDC

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I'm up in the Cleveland area. There is a support group up this way.

http://neohioceliac.com/

Maybe we'll meet up sometime! (Sorry so short.. Sleeping baby on one arm ;) )

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I'm up in the Cleveland area. There is a support group up this way.

http://neohioceliac.com/

Maybe we'll meet up sometime! (Sorry so short.. Sleeping baby on one arm ;) )

Thank you for the information. I just signed up for the pot luck on the 25th of March

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Hello Sharilee,

I am also new to this board, but have been diagnosed for years. I live in cleveland and I wanted to say hello. The cat you have for your avatar looks EXACTLY like my cat.

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    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
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    • OK so been to the doctor, they've sped up my referral and I should get the appointment booking form in the post shortly. They've said stay off the gluten until I have a date for the appointment then in the weeks leading up to it go back on - thoughts? Did my bit of sport last night which was a great relief to be free of any illness-related thoughts for an hour or two; didn't think I'd have the energy at the start but soon got going and was OK so that's a plus I seem to be getting some strange symptoms at the moment that have only happened since trying to remove gluten, do these sound familiar to anyone? dry forehead, just starting to go red \ itchy in places. Treating with E45-type cream tender scalp and sides of head, almost like a pulling feeling and a bit sensitive to touch. Scared this one matches the symptoms of GCA, a particularly nasty autoimmune disease that can lead to blindness 
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    • First of all, welcome to the forum! it's good to have you here. Secondly, I can really relate to the fatigue portion.  it really hadn't affected me until everything hit the ceiling medically for me.  I was constantly tired all the time, and waking feeling rested in the morning. Prone to depression and anxiety, definitely.  It drove me nuts for those first few weeks.  That's when I decided to try going off the gluten to see what happened.  I still dealt with the depression, anxiety at crazy levels, and inability to focus/concentrate, but it had gotten progressively better.  The anxiety got so bad I would have panic attacks in public areas which only ramped up the anxiety because people saw what was happening.  I would encourage you and your doctor to do a full Celiac panel before you decide to try the gluten free diet.  I had my blood work done after I was off gluten for about two months or so.  Thankfully, my levels were still high to register at least a gluten sensitivity.  Since going off gluten for almost a year now, things have started to finally appear "normal".  Whatever normal means for me now.  As I am healing from the 30 years of glutenizing, I combined both natural methods with the medical methods.  If you are interested in the different avenues of natural methods, I would be willing to share with you.  I will be praying for you as you go through this journey. Let me assure you, you are not alone in this journey.  Depending on family dynamics, they can be a great source of support.  This forum is also a great place to bounce thoughts or concerns off of.  Good luck.
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