Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Lip Issues?
0

7 posts in this topic

Feel free to move this into a new section since I'm new here.

I have had issues with health for years and recently, around christmas, I had blood test results come back saying I am one number from being technically "celiac." You need an 11 or higher to be counted as "positive" and I have a ten. Can't remember exactly what the number represented, some type of antibodies? I forget quite honestly.

Also very low on b12 and vitamin D. I started taking a bunch of vitamin recommended by a holistic doctor I go to..but I don't think I absorb anything.

I didn't think celiac was really that bad until recently I've been having bloating problems, stomach issues, etc. And recently, last week, I've been having this really strange lip issue. First it started out that my lips were really dry for the first two days and when I drank pop my upper lip felt tingly and numbish. Then the third day I woke up and my upper lip(not the outside, but the inside by gums)was swollen and hurt. The next day I woke up with blood crusted on my lips, painful, still swollen, etc. Little bits of skin came off when I rubbe da wet washcloth over my lip to clean it.

Every day the pigment of my lip inside has gotten more and more red. It feels like the entire inside is burned and I lost a layer of skin. I noticed at lunch in my cars mirror that the red pigmant is literally spreading onto my gums. The part above my two front teeth is much more read than any other part of my gums. It's literally "spreading."

I'm only 17, nearly 18, and can't really afford a gluten free diet or anything, etc. I am hoping to get vitamin b12 shots since it will be directly into my blood stream. I assume since I'm having more and more syptoms that number of antibodies(or whatever it is) is probably getting higher and I'm getting worse. :X

Anyone know what this is? I do have another holistic doctor appointment this wednesday as a checkup. (I'm scared to admit to her I haven't improved my diet too much.)

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you have Celiac, you need to be on a gluten free diet, hon.

No excuses.

Celiac disease is not curable, but it is treatable by a strict gluten free diet. That's it.

This is not something you can do once and while.

It will not do any good to take B-12 injections if you are continuing to ingest gluten. The gluten is CAUSING the deficiency in the first place.

You have symptoms because you are not following the diet.

From your confusion, it appears you do not really understand the disease process, what gluten antibodies are, etc. and you need to learn about celiac disease right now.

Start reading, because this is for life.

WHO diagnosed you? That doctor should have told you EXACTLY what to do. When you say "Holistic"--do you mean a Naturopathic Doctor?? or a Medical Doctor who is also integrative?

You should see a medical doctor --preferably the one who diagnosed the celiac--right away about those sores.

0

Share this post


Link to post
Share on other sites

The medical Dr. may not know anything. Mine didn't regarding celiac, absolutely stupid. The blood test just came about 10 years ago and mine know nothing. Can you see a demitologist? My dentist is clueless about celiac too. He has no clue that celiac causes emamal to deteriorate. So you need to see first the Dr. that did your blood test, then a dermitologist.I've heard some know about celiac. And I agee with the others, get rid of the holistic one. Eating gluten free can be cheap if you want it to be. It just takes planning and that is the hard part.

0

Share this post


Link to post
Share on other sites

I was thinking, if your gums are sore and "peeling", you could also have periodontal disease.

My lips often peeled and I had sores on my mouth and inside--from gluten.

See the doctor who diagnosed your celiac right away!!

Since you are a minor, can you get your parents on board with the gluten -free diet?

Surely they understand you have this disease.

0

Share this post


Link to post
Share on other sites

My lips peeled and shredded for over a year before I found out about gluten and went gluten free. I used to use a steroid ointment to treat the pain it caused, it completely went away when i had been gluten free for a few months.

0

Share this post


Link to post
Share on other sites




do you use lipstick? if so there might be gluten in it causing this issue.

0

Share this post


Link to post
Share on other sites

do you use lipstick? if so there might be gluten in it causing this issue.

I'm new here at this board so I'm not sure if, as a 20-something, I still count as a 'young adult [???]'. But anyway, here's my answer: I was getting sores inside my mouth ALL the time before I was diagnose with celiac (by blood test and endoscopy). That went away about a month after I started going gluten free.

As for doctors: My regular doctor is awesome, but my gastroentrologist talks to me for five minutes and then sends me out the door. I don't feel like I get much in the way of an exam with him. And my dentist was completely clueless about what celiac really meant. He thought it was the same thing as 'lactose intolerant'. To which I had to say, no one gives you a tummy ache and the other prevents me from absorbing the food I eat, causes malnutrition, my severe anemia, and could cause a bunch of awful cancers if not taken seriously. People are so ignorant about celiac, it's not even funny.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,109
    • Total Posts
      920,402
  • Topics

  • Posts

    • Why would your PCP go against the advice of leading celiac researchers and the American and British GI Associations?  The endoscopy/biopsy is still the gold standard for diagnosing celiac disease.     I understand your daughter's  situation, but I would get a second opinion from a GI before going gluten free.   http://www.cureceliacdisease.org/screening/ http://gut.bmj.com/content/early/2014/06/10/gutjnl-2013-306578.long#T2 http://www.worldgastroenterology.org/guidelines/global-guidelines/celiac-disease/celiac-disease-english  
    • It might not be Celiac, if your tests are negative.  Have you been to a doctor and been tested for diabetes or thyroid issues lately?  What are your parents doing about your issues?  Some things like acne and shin splints might be explained by age or activity, but passing out and depression need to be addressed.
    • I will visit  Johannesburg  international airport, is there any gluten free food available? The so called customer service office did not answer my question! So I am taking it to the forum. If you know of any restaurants inside the airport please let me know.  
    • I will visit Beijing international airport, is there any gluten free food available? The so called customer service office did not answer my question! So I am taking it to the forum. If you know of any restaurants inside the airport please let me know.  
    • Instead of going to my doctor I went to theranos to get a celiac blood test done. Doctors never seem to want to hear about you diagnosing yourself so I decided against going to the doctor . So my symptoms are/were being bloated after eating, stomach pain, constipation, also diahrea (my poop is always green ik tmi), bad anxiety, depression, irritability, insomnia and anger after consuming a big meal of gluten, I also have a rash on my right leg below my butt I don't think it's dh tho, I'm always thirsty (like I can't get enough water), dizzy spells (fainting and blacking out), my left side of my face tingles (could do with anxiety), my face also feels hot after consuming gluten, I have acne, hip pain and shin inflammation, back pain, and dandruff. My theranos results came back negative with everything ranging from 0-3 so it was super low. I had the celiac panal done. Well anyways I thought maybe it's wrong and went off gluten anyways. This is my 6 day gluten free and my symptoms haven't resolved at all really. My bloating has lessened a tiny bit but I still get bloated after every meal. And im constipated all the time. My poop stopped being green though. I'm not eating dairy right now either. I'm also having worse anxiety and am still depressed. If Im gluten sensitive shouldn't I be feeling better by now? I also live in a house with gluten eating people sense im only 15 but I try hard not to cross contaminate. I eat lots of veggies  (Kale and salads) and lots of nuts and beans and indulge salmon and tuna a few times a week and eat quinoa every morning for breakfast. I'm scared I'm not gluten sensitive and I don't know what to do. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,145
    • Most Online
      1,763

    Newest Member
    bradlost
    Joined